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Biomarker for Diffuse Scleroderma skin has been discovered!


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Disability finally


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#1 Sam

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Posted 01 October 2010 - 12:57 AM

Hi all! I know I haven't posted in awhile, been feeling really tired and just don't feel good, coming down with a cold or something.

Ok to get to the title disability. I received a letter from the judge in Boston, MA saying I was approved for disability but they are only going back to 2008 I think maybe 2007. Hey its better then nothing, and I am going to accept it, I have been trying since 2003 to get on disability and I have had a lawyer from day one. I really didn't want to say anything until I was for sure but I got a letter from my State Representative and it said I won. YAY!! I am very pleased and it will help out financially.

Well I am going to go I have to pack yet and get some other stuff around before I leave this afternoon. Take care and have a great weekend. Okay for those who live in Michigan and Ohio stay warm cooler weather this weekend.


Sam

#2 Purr

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Posted 01 October 2010 - 02:57 AM

Great news Sam. I'm very happy for you!
Love makes the world go around!

#3 red

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Posted 01 October 2010 - 02:59 AM

Congratulations Sam! Wow, it is very discouraging to see you've been fighting this, with a lawyer no less, for 7 years!!! I just took the disability plunge in August, after getting a not-so-good echo report. My primary has been encouraging me for 2 years to go on sick leave due to worsening GI issues with 30 lbs weight loss; joint and muscle pain; fatigue; bilateral carpal tunnel with only partial improvement after surgeries; vocal cord fibrosis; asthma and now diastolic dysfunction because of cardiac fibrosis. He says I certainly have enough medical evidence to qualify, but even he said it's a tough road and takes a long time to get approved even when it's clear you have a well-defined disability. I'm fortunate that my employer is covering me with full salary until next June (guess they were tired of waking me up every afternoon when I fell asleep on my desk!!) but after that I don't know how I can manage financially if I haven't been approved. Did you find your lawyer helpful? Any suggestions on how to be successful in getting approved??

Hope you're not getting the flu or even a cold, and congrats again,

red

#4 Shelley Ensz

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Posted 01 October 2010 - 09:08 AM

Well, Sam, isn't that about time?

Congratulations on getting your disability approved, at long last! What a long and uphill battle that was for you!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 Annie20

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Posted 01 October 2010 - 10:51 AM

Hi Sam,

Congratulations!!!! I'm so happy for you! :bye:

Annie
Diffuse Systemic Sclerosis, (Scleroderma). Lung, skin and gastrointestinal involvement.

#6 Sherion

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Posted 01 October 2010 - 12:48 PM

Wow, Sam!! That's the best news I've heard in a LONG time!!!! Congratulations!!! It's got to be a huge relief for you!

Sherion

#7 Sam

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Posted 08 October 2010 - 12:33 AM

Well now I have to go back to the lawyers and let him know if I want him to continue with the old claim from 2003. I am not sure what I should do but I am thinking of not going ahead with it. I will receive disability for the past few years but not all the way to 2003. This is my second Judge and this has been going on since 2003. I am just happy that I got disability finally. What would you do if it was you? I am not going to change my mind with my decision, its better then nothing.

I am so tired lately and I just don't feel like doing anything and of course the weather is cooler out now, I am freezing already, not too happy with that but what are you going to do, when you live where you get all four seasons. I do like this time of year though, the color in the trees and the smell of autumn. Not to mention drinking warm apple cider. Having some pumpkin pie or bread or rolls. Okay I need to stop I am getting hungry now. :rolleyes:

Well all I am going to go you all have a great day! Take care.

Hugs,

Sam

#8 Shelley Ensz

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Posted 08 October 2010 - 04:28 AM

Hi Sam,

I think I read somewhere once that they can only go back a maximum of 2 years on disability pay. But I don't know if that is from the time disability is first applied for, or from the time of the eventual approval. This is the sort of question that the lawyers get paid big bucks for, so I'd first select a good lawyer whose opinion I could trust, and then follow their advice. I sure would not do it, myself, if it could potentially wipe out this last, successful, decision.

Warm apple cider and pumpkin bread sounds fabulous! Something about autumn reinvigorates our appetites around here, too.

So, what on earth are you going to do?
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#9 Sweet

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Posted 13 October 2010 - 08:44 AM

Oh Sam, that is terrific!!!!! Good for you for continuing to press the issue!
Warm and gentle hugs,

Pamela
ISN Support Specialist
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#10 Jeannie McClelland

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Posted 13 October 2010 - 10:46 AM

Good news, Sam! What a battle, eh?

Keep warm and get some rest and most of all, watch out for the adrenalin lag that comes from relief. ;)
Jeannie McClelland
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#11 Shelley Ensz

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Posted 19 October 2010 - 10:15 AM

Sam, did you figure out what to do about the disability, whether you will file for going back farther, or not?
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#12 smac0719

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Posted 26 October 2010 - 11:51 AM

Sam that is great news as you have been so diligent with your fight for some time now. I hope you are keeping warm.
I may have Scleroderma, but Scleroderma doesn't have me!