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Digital Sympathectomy


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#1 Purr

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Posted 21 October 2010 - 10:25 AM

Lisa, I was wondering how things are going with the digital sympathectomy surgery you had a while back? My rheumatologist is going to refer me to a cardiovascular doctor.

Thanks.

Purr
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#2 Shelley Ensz

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Posted 22 October 2010 - 02:47 PM

Hi Purr,

I'm sure Lisa will answer your question as soon as she can. I can just tell you that as far as I know, she is really doing great after her digital sympathectomy.

In fact, she put on her annual Scoring for Scleroderma Soccer Tournament for us (the ISN) just 10 days after that surgery! Can you even imagine? I sure can't!
Warm Hugs,

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#3 Purr

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Posted 26 October 2010 - 01:27 AM

Lisa....where are you????
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#4 LisaBulman

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Posted 27 October 2010 - 01:20 AM

Hi Purr,
I'm here!!! Sorry...things have been a bit crazy here. The kids are in school(with plenty of 7th and 5th grade homework) and we are running to activities 5 nights a week(sometimes in two different places on the same night) and I care for my niece and nephew two days a week so there are days where I just can't get on here.

Any way, I am doing great. I am so pleased with the surgery I can't wait to get my left hand done! For me the process was easy. It may not be the same for everyone. I had no pain after the surgery other than if something hit my incision or I stretched my hand too far.I'm sure you have seen my pics I posted after the surgery, if not let me know and I can direct you to them. The stitches in my wrist were taken out two weeks after the surgery and the one's in my palm were taken out three weeks after. This was because the surgeon told me to use my hand, so I did and I made a few openings in between the stitches. It has only been 7 weeks since the surgery and I am almost 100%. My wrist is only sore if I out a lot of pressure on it. My palm has an area on it, to the right of where the incision was, that is raised and hard but not bothersome. I go back to the specialist in two weeks for another check. I saw my rheumatologist on Monday and he couldn't believe how great my hand looked. He said he wants to sit in on my next surgery so he can watch the process.
I will let you know it is not a cure all. My hand will still turn blue but I have to be really cold for this to happen. It has helped tremendously with the day to day activites such as getting things from the fridge or even changing the laundry from the wash to the dryer. Those attacks have just about stopped. It is really weird to see one hand blue and the other pink. When it is blue, the return to normal is so fast now it is incredible. My left hand was blue and numb for about 20 minutes the other day but my right hand came back to normal so quickly I was amazed. Also know that there are no long term studies on this procedure. They told me they had no idea how long it would last...could be forever, could be a few years. The risk was worth it because I was so miserable. I had ulcers throughout the summer so I knew the winter would be horrible.
Please let me know how your consult goes!

If you have any questions ask away!

Hugs,
Lisa
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#5 Purr

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Posted 27 October 2010 - 01:44 AM

Thanks Lisa. That's good news. I go on 11/11 for a consult. Then a pain test will be done to determine if the sympathectomy would be beneficial. I can't imagine it wouldn't be. Then the surgery will be scheduled. I'll keep you updated.

Take care and get some rest. Sounds like you've been very busy.

Purr
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#6 LisaBulman

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Posted 27 October 2010 - 03:46 AM

Hi again,
My dr didn't do a pain test. I guess the pain was obvious but he did do an xray of my hand and a cat scan to make sure there were no blockages and all was good so he didn't have any surprises when he went in. The procedure was quick too. I arrived at the hospital at 7am and was out the door heading home at 1.

Again, good luck and keep me posted.

Hugs,
Lisa
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#7 Sheryl

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Posted 28 October 2010 - 10:18 AM

Purr,
I didn't realize your hands were that bad. So sorry to hear that you may have to go through this surgery. Please do keep us informed on what the doctors advise.
Strength and Warmth,
Sheryl

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#8 debonair susie

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Posted 30 October 2010 - 08:13 AM

Hello Purr,

If you are having such difficulties, I also would think they would go ahead withsurgery.

I hope that you'll let us know how your appointment goes and what you find out.
Until then, will be keeping you in my thoughts.
Special Hugs,

Susie Kraft
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