Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Welcome New Members!

  • Please log in to reply
20 replies to this topic

#21 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,556 posts
  • Location:West Sussex

Posted 12 November 2010 - 02:57 AM

Hi Tw1nkles

A very warm welcome to this friendly and informative forum.

I certainly think it would be beneficial for you to consult a Scleroderma specialist as it is such a complex disease and sadly a lot of rheumatologists don't really understand it fully.

Like you I have also been diagnosed with Limited Sclero, although thankfully I don't have any gut involvement at present (fingers crossed!! ;) ) Unfortunately my lungs have been affected but due to my receiving excellent treatment, thankfully my quality of life is still very good, with the added bonus of being able to bore my long suffering husband and friends with every minute detail of my illness! :lol:

I do hope that you will post often and let us know how you are faring.

Jo Frowde
ISN Assistant Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)