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Fecal Incontinence/Bowel Control

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22 replies to this topic

#21 Buttons


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Posted 27 October 2010 - 09:58 AM

Hi Jeni

I had problems for sometime, after my first visit when they did all the tests I had to start doing biofeedback for about 6 months & then was tested again there was no improvement. Then I was put forward to have the nerve stimulator put in place, I had a trial one put in for 2 weeks to see if it helped, before & during this time I had to keep a daily monitoring record and have had regular monitoring done since.

I was told it was used for bladder incontinence & pain management but my consultant had done trials for using it with bowel incontinence and had a lot of success with it. I'm certainly glad I had it done because it has made a big difference to me.


#22 debonair susie

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Posted 28 October 2010 - 04:53 AM

Hi Jeni,

Oh, how this thread :wacko: hits home

It's unfortunate that so many of us have this troublesome problem in common. I too, deal with this on a (mostly) daily basis.
Because my internist moved to Hawaii (poor thing...tongue in cheek!), I was once again, forced to seek out, yet another, which is difficult for those of us with chronic illnesses).
My "doc of choice" turned out to be my husband's dr. Even though he knew my health history (having stepped in for previous doctors on two occasions), I must have overwhelmed him with my questions, on the first visit.
This happened to be one of the problems I "tossed" to him and he told my to do kegel exercises....YIKES!!!
It was as though he stuck a pin in me...and I was a balloon :o
I have spoken to three doctors, prior him and (coincidently), they were ALL men and I received a cool response, which left ME stunned, as two of them were gastrointerologists!
Needless to say, I surely can understand your frustration/desperation, concerning the "lack of compassion" and resolve, on the part of the doctors you also have come to with this problem.

At any rate, as you have mentioned...you don't stand alone on this issue, Jeni, I'm sorry to say.

By the way, this has GREATLY affected MY outings (too)as well, as the first thing I do is scope out the locations of the restrooms.

Fingers Crossed, my (female) rheumatologist is able to be more compassionate and I hope you have better luck too!
Special Hugs,

Susie Kraft
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International Scleroderma Network (ISN)

#23 Sheryl


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Posted 28 October 2010 - 08:38 AM

Jeni, go t a Gastroenterologist. They make you feel so comfortable and talk easily about bowel incontinence. My family doctor really didn't understand how bad I was doing with incontinence but my gastro doctor has helped me out on several occasions. Sometimes it is simply bacterial overgrowth and a regimen of antibiotics puts you back to rights and no more surprises of running to the restroom or changing clothes a couple times daily. There are several medications out there that really work well if you are having problems. My Gastro doctor said that many people with Scleroderma have these issues. He is the doctor who informed me I had Scleroderma. We have been through a lot together. He is my favorite doctor. Make and keep your appointments. You will be happy to have this issue over and done with. No more sleeping with baby mattress pads protecting your bed. No issues at all once the problem gets under control.
Strength and Warmth,

Sheryl Doom
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