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Mind Games

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5 replies to this topic

#1 giorgigirl


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Posted 17 February 2007 - 06:04 AM

Hi all,
Since I have had this lovely desease, I have noticed that I have to write most things down, especially appointments, when I sent off things like letters etc as otherwise I just can't remember.....I have also noticed that I can read something and things just dont register even though I have thought I have read and internalised what was said.....I seem to get days mixed up, names mixed up, can't remember how to spell the simplest of words and generally I really dont think I am as mentally sharp as I use to be. Im 52 and accept that as we age we tend to get more forgetful, however I am not totally convinced that this is the only reason for these occurances. I have also noticed that my head does a jerk to the left on occassions which has been happening for the last nine months or so.

So my question is to all you lovely people...does sclero effect the brain, its function, the capacity to remember, those sorts of things....or am I just growing old gracefully but my brain has decided to go at at slightly quicker pace!!

Sincere regards to you all


#2 Margaret


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Posted 17 February 2007 - 06:59 AM

Hi Giorgigirl ,

I know that my son has shown a marked decrease in academics this past school year and when I asked his ped psychiatrist about it last Dec., he told me if he does have Scleroderma that it will only get worse. Even with Gareth's DS/Autism, he is a very high functioning kid academically, but those abilities are dropping very fast. He has told me 'I don't understand words.' The Sclero A-Z has some reports of decrease cognitive abilities. I don't think it affects eveyone, though. It's probably like all the other sclero stuff......everyone is unique in their disease.
Take care, Everyone.

#3 Shelley Ensz

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Posted 17 February 2007 - 07:30 AM

Hi Giorgigirl,

I'm sorry you are having difficulties with concentration and such. We have a page on Brain Involvement, which may answer many of your questions, or even inspire new ones.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 Sweet


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Posted 17 February 2007 - 08:12 AM


I can relate all to well!!! I've always been "list" maker, but I have what I call "brain fog" all the time and it is getting worse. Thank goodness my husband knows what I'm trying to say, because he has to finish my sentences for me quite often.

Take a look at the link Shelley gave you. I hope it helps.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 Margaret


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Posted 17 February 2007 - 12:52 PM

Hi Everyone....while we are on the issue of cognitive abilities or decreasing abilities, has anyone experienced unusual anxieties or fears along with their sclero. Gareth has come up with a few 'quirks' that can't really be explained......fear of the gym (he always loved PE), fear of going into/staying in church (he use to love church music), doesn' want the TV/sterio on. Just curious. It could very well be the autism.....it rears it's ugly head at times and shows some new, weird, extreme quirks.
Take care, Everyone.

#6 nan


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Posted 17 February 2007 - 02:26 PM

I felt so much better when I read your post because I know that I am not alone. Most of the time I am in a "brain fog". I have fibromyalgia too so I figured it was that. I feel that it has gotten worse though. Sometimes my husband and son just look at me so puzzled. Bless their hearts! I love to read and I find that when I read my book before falling asleep the next night when I go to read it I don't remember what I read the night before and I have to go back and glance over it. It takes a pretty long time to get through a book. :D
Hang in there and take care of yourself.