Jump to content


Did you know that exercise increases inflammation in systemic sclerosis?


Photo

Digital Sympathectomy


  • Please log in to reply
9 replies to this topic

#1 Purr

Purr

    Silver Member

  • Members
  • PipPipPipPip
  • 264 posts
  • Location:Kokomo IN

Posted 09 November 2010 - 12:02 PM

Just an FYI..

The office that the doctor is in called and said they just found out yesterday that he no longer does the digital sympathectomy (DS) surgery. They have scheduled me with another one that does. It won't be until 11/30 and it's at 9 am. Eek! That means I will have to leave home at 7:30 am. That means I'll have to get up no later than 6:30 am! Whaaaaaa. But I'll survive :). Luckily, I'm not driving. One of my friends will be doing that. It's at Methodist Hospital in Indianapolis.

Purr
Love makes the world go around!

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,275 posts
  • Location:Minnesota

Posted 09 November 2010 - 03:23 PM

Hi Purr,

I'm sorry you need to have the digital sympathectomy surgery in the first place. Do you get to meet the surgeon before then?

It sounds like you'll get to enjoy Thanksgiving in relative peace. I know what you mean by early appointments, and factor that in to the fact that you might not sleep as well the night before and just be dosing off when it's time to get up.

The only positive thing about getting up that early is that you won't be totally starved to death by surgery time. We try to always ask for the first surgery of the day, as it's such a trade off between not sleeping and not eating.

Here are some pre-surgical flowers to help you bide the time (and pain) between now and then.

:flowers:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Purr

Purr

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 264 posts
  • Location:Kokomo IN

Posted 10 November 2010 - 09:45 AM

Shelley, the appointment won't be for the surgery. I want to find out what is involved before that's done. This will be a consult.
Love makes the world go around!

#4 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 10 November 2010 - 10:00 AM

Purr, you would have thought the doctor's office would have known that information when you made your original appointment. Well, at least it is only a 3 week wait. Some people have to wait 6 months or longer to get in to see new doctors. Sometimes having our illness(s) we seem to get in to new doctors pretty quick. I know you will keep us up to date on what you decide. Maybe this new doctor will put all your fears or nervousness to rest. I'll be keeping you in my thoughts.
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#5 LisaBulman

LisaBulman

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 11 November 2010 - 05:57 AM

Purr,
I was just thinking about you! I'm glad you got another appointment so quickly. I went for my final check of my hand 8 weeks after my surgery. It is healed and doing very well. So well, that I am going to schedule my other hand to be done after the holiday's. I am being scheduled for a CAT scan, then I will meet with the surgeon for another consult and then the surgery. I'm excited! My rheumatologist asked if he could sit in on my next surgery.

Please keep us posted.

Hugs,
Lisa
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#6 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 11 November 2010 - 07:48 AM

Hi Purr,

Even though I've been following your thread here, I've not taken the opportunity to post...until now.

Please know that I'm keeping you in my thoughts and will be watching for your post, once you've visited
with the surgeon and gotten the information you've been waiting for.
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#7 HeatherT

HeatherT

    Senior Bronze Member

  • Members
  • PipPipPip
  • 36 posts

Posted 12 November 2010 - 01:40 AM

Hi there,

I have been thinking about this surgery lately as I have a persistent, painful, purple finger and I don't know what to do! I'll be following your journey! Good luck!

Heather in central NY

#8 LisaBulman

LisaBulman

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 13 November 2010 - 04:00 AM

Heather,
I would highly recommend the surgery if you have a great surgeon. As I posted earlier I had my right hand done and now I am having my left hand done in the beginning of next year. It was relatively easy, painless and a quick recovery. My doctor did my whole hand, not just one finger. You can see my pics from 5 days post op if you want to look under my profile.

Good luck on your decision,
Lisa
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#9 Purr

Purr

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 264 posts
  • Location:Kokomo IN

Posted 15 November 2010 - 03:17 AM

Wow Lisa. It sure looks painful!! I'll try to get pictures too. We can compare surgeon techniques (or lack of). :VeryHappy: I'm getting anxious.

Purr
Love makes the world go around!

#10 LisaBulman

LisaBulman

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 16 November 2010 - 02:31 AM

Purr,
It looks way worse than what it was. I was relatively pain free unless I tried to stretch my hand. I won't do that next time because I pulled away and the incision. Honestly it really loooks much worse.

hugs,
Lisa
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)