Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Adopting with Scleroderma diagnosis

  • Please log in to reply
9 replies to this topic

#1 HeatherT


    Senior Bronze Member

  • Members
  • PipPipPip
  • 36 posts

Posted 12 November 2010 - 01:51 AM

I just wanted to post some great news. a couple of years ago I remember posting a question to the forum about adopting. I got some great support, and a little info. I thought I would get back to everyone about our adoption. We have been matched to a 14 month old little boy from Ethiopia. We travel to meet him on Thanksgiving and then once his immigration paperwork is complete we will return to Ethiopia to bring him home (January or so). We are using an international adoption agency.

A little history. I was diagnosed with diffuse scleroderma 6 months after I gave birth to our first child (5 years ago) and 3 days after I had my carpal tunnel release surgery. I have been on cellcept and therefore unable to plan another pregnancy. I have no organ involvement but have GERD, Raynaud's, joint pain/restriction, and bad hands. I turned 40 this year and feel so lucky to have such a great rheumatologist, and support group (including this forum).

Thanks and wish us good luck!

Heather in central NY

#2 miocean


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 920 posts
  • Location:NJ

Posted 12 November 2010 - 02:40 AM

Dear Heather,
Congratulations on the new addition to your family. :happy-day: He is a lucky little boy. My sister-in-law adopted twins from China and changed their lives forever. I'm sure you will make a great mom, even with your scleroderma.

Best wishes,
ISN Artist

#3 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,902 posts
  • Location:West Sussex

Posted 12 November 2010 - 03:11 AM

What wonderful news, Heather; I'm so pleased for you! :VeryHappy:

May you, your family and your little boy enjoy many happy years together! :happy-day:
Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#4 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,282 posts
  • Location:Minnesota

Posted 12 November 2010 - 03:28 AM

Hi Heather,

Major congratulations on your upcoming adoption!
You are a wonderful example of the old slogan, When life hands you lemons, make lemonade. Except of course in this case, it would be babies. :jump-for-joy:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,925 posts
  • Location:U.K.

Posted 12 November 2010 - 03:43 AM

Hello Heather

Giving a child a loving home is one of the best things a person can do. It benefits not only the child and yourself but society because well cared for children become caring parents who have well cared for children who become caring parents and so forth and so on.

The very best to you and your family.

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#6 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,624 posts
  • Location:(United States)

Posted 12 November 2010 - 03:46 AM

This is such very special news, Heather...Congratulations to you and your family! :jump-for-joy:
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#7 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,895 posts

Posted 12 November 2010 - 05:30 AM

Oh Heather how wonderful!!! :happy-day:
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#8 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,696 posts
  • Location:in the Rocky Mountains of the USA

Posted 12 November 2010 - 08:42 AM

Heather, that's just the greatest news! I've got friends who are either adoptive parents or were adopted children and they are all very special people. I hope you'll let us know when your son arrives home and maybe even post a photo.

:jump-for-joy: Babies cause joy and laughter!

Warmest wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#9 judyt


    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 653 posts
  • Location:Auckland, New Zealand

Posted 12 November 2010 - 10:11 AM

Hi Heather,

Congratulations and lots of good luck to you and your new boy. Being an adoptive Mum I can well remember the joy of knowing that a new bably will soon be yours. We live in New Zealand and our 2 are in their 30's now. They are both of the same ethnicity as us, although our daughter as it turns out is 1/32 Maori, and often wonder how we would have handled a child who is from another ethnicity. I think it would have been exciting and interesting learning about their own culture and trying to pass it on but I will never know now.

One thing I DO know for sure is that genes play a larger part in a person's life than upbringing. A good upbringing can change outcomes for somebody but genes will never be overridden. Our children look like their parents, speak like their parents, think like their parents, BUT their values are OURS. Both of our children know their birth families and our daughter, in particular, has a lot to do with her mother and half-siblings, half nieces and nephews now too.

Our son's mother never had another child and that has coloured their relationship and not for the better either. I think her sorrow was too great to overcome really. He can never live up to what she would like her child to have been. Never mind, we love him to bits, faults and all.

I don't quite know why I am rambling on like this, your news got me started thinking!! The great thing is to love him for who he is and accept what he becomes. Both of our children say they are thankful they were brought up by my husband and me, rather than their other families, they can see that they would have been very different in different circumstances.

Lots of hugs and love to your new little one.


#10 Sheryl


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,023 posts
  • Location:Brooklyn, Michigan

Posted 12 November 2010 - 11:12 AM

Heather, congratulations on the new adventure you are undertaking. You are giving a great gift to some very lucky little boy. Your son will have a little brother to enjoy and grow up with. My daughter - in - law was adopted. My brother adopted 4 beautiful little girls. Each of a different ethnicity. They all love each other so much. Their, 3 natural children were all boys so they now have a large loving family. Cheers to all parents of adopted children. You are the best.
Strength and Warmth,

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)