Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Can anyone enlighten me am confused about cough.

  • Please log in to reply
8 replies to this topic

#1 Lynnie


    Silver Member

  • Members
  • PipPipPipPip
  • 172 posts

Posted 14 November 2010 - 02:05 PM

Hello everyone top and bottom of the problem is my chest/persistent tickly cough that wakes me 4hrs into sleep! :emoticon-bang-head: every night and at times during the day!!!

I picked up a virus that's been going through the U.K. population recently. Its been a pretty rotten one to boot, affecting a lot of people in different ways. I came down with it on the 25th September and 2 lots of heavy duty antibiotics and a sputum sample that showed no infection. It persists, I just can't get rid of it. I had my lung function last Wednesday and the technician said there wasn't much to be worrying about, but obviously needs a doctor to oversee it and report on it. My own general practitioner seems to think I've had pneumonia in a mild form, thank goodness.

Can a persistent dry tickly cough be all part of the sclero? I would appear to have no heart or lung involvement as yet. Is it normal for us when we get a chest infection and even though the infection has healed our lungs are still be upset and sensitive for a while? All sorts of things have been going through my head as it does when you've a immune system tearing around the house having a hissy fit. :lol:

It attacks what you don't want it too and doesn't kill off what it is supposed too. I would welcome any feed back if any of you have/do suffer with a cough like this, and how you sort it out!!! :mellow:

Many thanks and hugs as per
Lynn :emoticon-hug:

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,280 posts
  • Location:Minnesota

Posted 14 November 2010 - 04:57 PM

Hi Lynnie,

I'm sorry you've been sick and are still not better yet. I hope you will be improving every day.

Please keep in mind that I'm not a doctor, which is a blessing to the whole human race, I tell you. :lol:

As it happens, a dry ticky cough would only be part of scleroderma if there was lung involvement trudging on the severe side, such as pulmonary fibrosis or pulmonary hypertension. And that seems to have been safely ruled out by your recent lung exams, I do hope. It could just be the tail end of your infection clearing up.

Interestingly, it might also be due to heartburn. So if you also have heartburn, be sure that you have it under adequate control now. Sometimes even cough drops can cause heartburn for me, which ironically can cause me to cough.

It's all such a round robin, isn't it?

Anyway, if your cough isn't clearing up shortly, you'll probably need to see the doctor again, to make sure it isn't turning into bronchitis or some such thing. Keep us posted on how you're doing, won't you?

Here are some get-all-the-way-over-this-infection-hugs.

Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 judyt


    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 653 posts
  • Location:Auckland, New Zealand

Posted 14 November 2010 - 10:01 PM

Hi Lynnie,

I too often have a dry cough which drives me crazy at times. I have Sjogren's Syndrome which affects mucuous membranes and causes a dry mouth and throat - so that makes me cough and a mouthful of water is the only way to stop it.

Lately I have been on heavy doses of antibiotics for other infections and the capsules seemed to get stuck half way down my oesophagus and that caused more irritation. You have to cough but it doesn't help and I nearly turn myself inside out trying to settle it. So my general practitioner's solution to that one has been to give me my next round of antibiotics in syrup form - boy does that taste disgusting!!!

No wonder we had trouble getting our children to take their medicine. Actually, I think that is why I taught mine to swallow pills quite early on. BUT I am not coughing.

So, as others have said, there are all sorts of things about our disease which can cause us to cough and once the likelihood of a lung infection is ruled out it seems that we just have to put up with it. I get lots of sideways looks from people around me when I suddenly get caught in a coughing fit and there is usually no way of reassuring them that it is not a bug.

I carry a bottle of water with me at all times - and I thank my lucky stars for the sippy lids which make life so much easier.

Best of luck with solving your problem.



#4 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,901 posts
  • Location:West Sussex

Posted 15 November 2010 - 06:32 AM

Hi Lynn

Sorry to hear you haven't been feeling very well and I think I'd probably go back to the doctor again if it persists.

I, too, have lately developed a cough and tightness in my throat and upper chest and although I have got interstitial lung disease, my gut feeling is that it is probably a chest infection. It's always worrying, isn't it, and difficult to distinguish between a common or garden infection or another symptom of Scleroderma.

I think you said you were now on immune suppressants, didn't you? I am, as well, and have found that the course of the infections I've developed since being on them seems to have been different. In my case, they don't seem to be so severe, but they linger on for months and the persistant cough seems to be a typical example.

I really hope you can finally get the problem sorted out. (I'd send you a hug, but my emoticons aren't working!!)
Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#5 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,696 posts
  • Location:in the Rocky Mountains of the USA

Posted 15 November 2010 - 06:42 AM

Me too. Coughing, I mean. I'm wondering if having the furnace on all the time (forced hot air) making our usual very low humidity even worse might not be contributing to my cough.

Annoying, isn't it?

Warm hugs,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#6 Buttons


    Senior Silver Member

  • Members
  • PipPipPipPipPipPip
  • 606 posts
  • Location:UK

Posted 15 November 2010 - 06:59 AM

Hi Lynn, sorry to hear you've gone down with a virus and you are left with a bad cough.

I had a virus a few weeks ago and it affected my chest (having asthma doesn't help), I drank plenty of water and used a pain medication based linctus and also did steam inhaling to help stop the irritation. It's certainly not a good time too get chest problems but they can last for some time before clearing up. If it persists do go back to your general practitioner.

Take Care and stay warm.


#7 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,624 posts
  • Location:(United States)

Posted 15 November 2010 - 08:40 AM

I really like what Buttons does...especially steam inhalation, which I'm inclined to do any time I get the "tickle cough".
I also like to drink decaffinated tea with honey, which helps calm/relax my throat during those times.

I'm just so sorry to read that you are still struggling with this, Lynn, as it's miserable enough for just a few days. Here you've been dealing with this for nearly 2 months now :crying: You've got to be so sleep depraved.

Here's hoping this is soon over for you.
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#8 miocean


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 920 posts
  • Location:NJ

Posted 15 November 2010 - 04:39 PM

I, too, had a dry cough for a couple of years. There is a discussion on the forum about dry cough. Dry Cough/Throat clearing.

So far this year, with the onset of cooler weather, my cough hasn't returned. I hope it stays this way for me and that you get to the bottom of your problem.

ISN Artist

#9 Lynnie


    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 172 posts

Posted 18 November 2010 - 12:21 PM

Hi Everyone,

Many thanks for your replies and info. I had a browse on the topic.

Miocean, I went back to my doctor again. Luckily the doctors in my practice are lovely, and understand the battle our disease presents!! I mentioned what you all said in my own way, don't want to get their backs up. He's prescribed a steroid nasal spray and 2 inhalers similar to that for asthma. I had whooping cough when I was little so there's a weakness there in the first place. I'm only coughing in bouts now not all night. The morning is the worst, ukky stuff, and then I'm dry the rest of the day. I guess the infection and bronchitis that's followed is just taking its time to go. I can get about and am not short of breath so I'll just watch how I go.

Take care everyone
lynn xxx :emoticon-hug: