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Ear problems


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#1 lizzie

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Posted 27 November 2010 - 11:39 AM

I've yet again got labrynthitis. I'm dizzy (but not blonde), feel like someone who has had a glass or two too many when I walk, keep nearly falling over when I get out of bed or get from sitting to standing and have nystagmus (flickering eyes) which is making it more difficult to read the computer screen. The general practitioner says it is likely due to a virus. He is probably right, but I just have a few doubts as this is the 3rd time I have had it in 18 months. I'm just beginning to wonder if it is autoimmune related. Has anyone else suffered this type of problem?

Lizzie

#2 ladyhawke

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Posted 27 November 2010 - 01:31 PM

Well, not sure if it's the same but the last couple months, I've had a feeling of slight dizziness, almost like when you get off the ride at the fair but still feel a bit whoozy. It's not falling down dizziness, just like a bit of a head spin. I came off the prednisone (after weaning off it for 4 years) and wonder if that has anything to do with it, as I've never had this before. Will be interested to hear if anyone else has anything like this as well. - Lisa
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#3 susieq40

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Posted 27 November 2010 - 02:09 PM

Lizzie,

Just a note to say that I had vertigo, it's feeling dizzy and having that spinning feeling, and rapid eye movements. A feeling almost like you're drunk and it lasted for like 2 weeks at a time. And I had it for two weeks and then not, and then again for another two weeks, and now I haven't had it for a while, But Boy is it MISERABLE!!! The Ear Nose and Throat doctor said I had Meniere's disease, an inflammatory disease of the inner ear. I don't know if everyone that has sclero gets it or not? It really stinks! At first I was like what disease do I NOT have? But when it went away it was great! When I heard the spells could last a long time or be gone tomorrow...just don't know... I hope you find relief!

Best wishes!! HUGS!

#4 Snowbird

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Posted 27 November 2010 - 03:14 PM

Hi Lizzie

I'm sure that's the name of what my mother gets and a friend at work gets it as well. It is not autoimmune related that I know of (neither of them are autoimmune) and it is fairly common.

My mother was told by one doctor to try to keep her ears dry (ie, to keep water from getting in her ears when she washes her hair as that can apparently trigger an episode). He told her to put cotton balls in her ears to try to stop the water from getting in (if you know what I am trying to explain, like if you tilt your head under the tap and loads of water gets in your ears, not good). So perhaps keep that in mind although I think it could also be a challenge if the cotton balls get wet :lol: . The doctor said that once you get it, it can always come back, it is definitely not a one time thing because it is an inner ear imbalance. Some people get it more frequently than others. I think there is also medication that can be taken to help too, but you likely know that already.

Hope this helps some.
Sending good wishes your way!

#5 barefut

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Posted 27 November 2010 - 04:51 PM

Hi Lizzie,

I get that too - never knew it had a name. I also have recurring bouts of vertigo that can last anywhere from an hour to days and vary in intensity throughout the episode. Once had it so bad upon waking I crashed into the hall wall, slid down to the floor and that's where I stayed until my mother in law came to the rescue. Really weird! And not fun when it triggers vomiting too.

I will have to look up labrynthitis to learn more. I'm sorry you are suffering with it. Dizziness and nausea are awful!

My doctor advised over the counter motion sickness medicine, Meclizine. It helps me some. Hope you find relief soon!

#6 Joelf

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Posted 27 November 2010 - 07:50 PM

Hi Lizzie

I'm so sorry to hear that you've been suffering with dizziness; it really is very unpleasant! :(

Thankfully I don't have this, but my husband, like Susie, has Menieres Disease (inflammation of the inner ear); the symptoms of which are very similar to Labyrinthitis. It affects his balance and has caused him to have very bad dizzy spells. When he first suffered it, he would collapse and be vomiting, as everything would be spinning around and rather embarrassingly this has happened in the street, where people have thought he was drunk and stepped around him in a disgusted way....poor soul! He also experienced the eye flickering you were describing. Fortunately the attacks of violent nausea have subsided and he now has a slight, generalised dizziness a lot of the time which he is able to control.

As far as I'm aware Labyrinthitis not an autoimmune problem, (I'm not a doctor, though! ;) ) I really sympathise with you as I can see how horrible it is. :emoticon-hug:

I think I would advise you to go back to your doctor if it persists to see if he/she can give you something to settle the dizziness; my husband had a small tablet he would insert under his tongue to dissolve when he felt an attack coming on.

I do hope the dizziness settles down and that you soon feel better. :)

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#7 sarasmile

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Posted 29 November 2010 - 02:59 AM

I have been woozy and slightly dizzy for years. Finally, my rheumatologist said I should go to an inner ear doctor. Turns out I do have some inner ear imbalances that they are now working to fix. The ear doctor said that autoimmune diseases can be linked to it since they cause inflammation in the body in general, so they might also inflame parts around the inner ear, causing issues.

#8 Sandy B

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Posted 29 November 2010 - 03:31 AM

Hi Lizzie,

Fortunately I have only had labyrinthitis only the once and that was one time too many, I was off work for about three and a half weeks. It was several years ago and was probably due to a viral infection I had had a few weeks before hand. At it's worst I had to stay in bed for a few days. I once knew a lady who used to get it so bad that she couldn't walk and actually had to crawl out to the bathroom on her hands and knees.

I often suffer from light headedness and slight dizziness, but do not relate this to labyrinthitis, I have always assumed that it is one of the symptoms of the scleroderma.

I hope you feel better soon and if you don't feel like doing anything, then don't, the cleaning can wait, you take it easy.

Sandy B

#9 Amanda Thorpe

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Posted 30 November 2010 - 04:58 AM

About two weeks ago I had dizzyness for 2 days that was made worse by standing and moving. When it started it was really bad, I staggered around the bedroom and nearly fell over. I wonder if it was *labyrinthitis I may remember to mention it next time I go to hospital. I just hope it never comes back!

*Emedicine
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#10 lizzie

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Posted 30 November 2010 - 10:38 AM

It does seem that dizzy do's are common in us sclerodermians! Sarasmile: I was very interested in what the doctor had to say re association with autoimmune disease, could explain some of the dizziness people experience. Amanda- your experience sounds very similar to mine, so if you do remember to ask about it at your next appointment,I will be interested to know what they say. Anyway, whatever the cause, I am now feeling much better.

Lizzie

#11 Snowbird

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Posted 30 November 2010 - 02:28 PM

Amanda/Sandy

That has happened to my mother...the room spins and because of that, she could not see or feel her footing on the floor...hence causing the falling around part and the crawling due to the dizziness. They kept her overnight in the hospital that particular time.
Sending good wishes your way!

#12 Patty Arche-Hueck

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Posted 02 December 2010 - 07:23 AM

Well interesting enough, last Saturday I was shopping for some food with hubby and felt dizzy. I usually do not worry about it since I had never loss consciousness. My dear hubby remembers that in my flare up that was the second thing it happen to me. He is worried sick. Yesterday I fell down coming in to the bank, and it was hard to stand up (my hands don't help) so someone helped me and called my husband, now I am grounded and not allowed to go out by myself. I am skipping out like a teenager to do my stuff ..laugh out loud.

So please Amanda keep me posted with the rheumatologist visit. I will see mine on soon and will let you know then.
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