Posted 27 November 2010 - 11:39 AM
Posted 27 November 2010 - 01:31 PM
Posted 27 November 2010 - 02:09 PM
Just a note to say that I had vertigo, it's feeling dizzy and having that spinning feeling, and rapid eye movements. A feeling almost like you're drunk and it lasted for like 2 weeks at a time. And I had it for two weeks and then not, and then again for another two weeks, and now I haven't had it for a while, But Boy is it MISERABLE!!! The Ear Nose and Throat doctor said I had Meniere's disease, an inflammatory disease of the inner ear. I don't know if everyone that has sclero gets it or not? It really stinks! At first I was like what disease do I NOT have? But when it went away it was great! When I heard the spells could last a long time or be gone tomorrow...just don't know... I hope you find relief!
Best wishes!! HUGS!
Posted 27 November 2010 - 03:14 PM
I'm sure that's the name of what my mother gets and a friend at work gets it as well. It is not autoimmune related that I know of (neither of them are autoimmune) and it is fairly common.
My mother was told by one doctor to try to keep her ears dry (ie, to keep water from getting in her ears when she washes her hair as that can apparently trigger an episode). He told her to put cotton balls in her ears to try to stop the water from getting in (if you know what I am trying to explain, like if you tilt your head under the tap and loads of water gets in your ears, not good). So perhaps keep that in mind although I think it could also be a challenge if the cotton balls get wet . The doctor said that once you get it, it can always come back, it is definitely not a one time thing because it is an inner ear imbalance. Some people get it more frequently than others. I think there is also medication that can be taken to help too, but you likely know that already.
Hope this helps some.
Posted 27 November 2010 - 04:51 PM
I get that too - never knew it had a name. I also have recurring bouts of vertigo that can last anywhere from an hour to days and vary in intensity throughout the episode. Once had it so bad upon waking I crashed into the hall wall, slid down to the floor and that's where I stayed until my mother in law came to the rescue. Really weird! And not fun when it triggers vomiting too.
I will have to look up labrynthitis to learn more. I'm sorry you are suffering with it. Dizziness and nausea are awful!
My doctor advised over the counter motion sickness medicine, Meclizine. It helps me some. Hope you find relief soon!
Posted 27 November 2010 - 07:50 PM
I'm so sorry to hear that you've been suffering with dizziness; it really is very unpleasant!
Thankfully I don't have this, but my husband, like Susie, has Menieres Disease (inflammation of the inner ear); the symptoms of which are very similar to Labyrinthitis. It affects his balance and has caused him to have very bad dizzy spells. When he first suffered it, he would collapse and be vomiting, as everything would be spinning around and rather embarrassingly this has happened in the street, where people have thought he was drunk and stepped around him in a disgusted way....poor soul! He also experienced the eye flickering you were describing. Fortunately the attacks of violent nausea have subsided and he now has a slight, generalised dizziness a lot of the time which he is able to control.
As far as I'm aware Labyrinthitis not an autoimmune problem, (I'm not a doctor, though! ) I really sympathise with you as I can see how horrible it is.
I think I would advise you to go back to your doctor if it persists to see if he/she can give you something to settle the dizziness; my husband had a small tablet he would insert under his tongue to dissolve when he felt an attack coming on.
I do hope the dizziness settles down and that you soon feel better.
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Posted 29 November 2010 - 02:59 AM
Posted 29 November 2010 - 03:31 AM
Fortunately I have only had labyrinthitis only the once and that was one time too many, I was off work for about three and a half weeks. It was several years ago and was probably due to a viral infection I had had a few weeks before hand. At it's worst I had to stay in bed for a few days. I once knew a lady who used to get it so bad that she couldn't walk and actually had to crawl out to the bathroom on her hands and knees.
I often suffer from light headedness and slight dizziness, but do not relate this to labyrinthitis, I have always assumed that it is one of the symptoms of the scleroderma.
I hope you feel better soon and if you don't feel like doing anything, then don't, the cleaning can wait, you take it easy.
Posted 30 November 2010 - 04:58 AM
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Posted 30 November 2010 - 10:38 AM
Posted 30 November 2010 - 02:28 PM
That has happened to my mother...the room spins and because of that, she could not see or feel her footing on the floor...hence causing the falling around part and the crawling due to the dizziness. They kept her overnight in the hospital that particular time.
Posted 02 December 2010 - 07:23 AM
So please Amanda keep me posted with the rheumatologist visit. I will see mine on soon and will let you know then.