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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 verschneider

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Posted 27 November 2010 - 05:14 PM

Hi, I'm Sue from Virginia Beach, Va, USA. I was diagnosed about 3 years ago, peeked around at this site then. But since I hadn't truly convinced myself the doctors were right, I didn't really look into it much. Well now, I have what feels like a rotting finger on my left thumb and the very start of it on my right thumb, I'm getting nervous.

I have a lot of the white patches all over my abdomen and a scaly like rash that runs about half from the end of my back to the middle of my back right long the spine.

Anyone have any advice for me on it? The white patches were horribly itchy for years, and either I got used to the itchiness and can ignore it more or it's gotten better. As for my back, that about drives me bananas and it doesn't help that it's raised up like scabs almost except it's one long strip.

Thank you, I hope everyone had a wonderful weekend so far.
Sue

#2 Jeannie McClelland

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Posted 27 November 2010 - 05:49 PM

Welcome to a new member Sue!
Jeannie McClelland
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#3 Joelf

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Posted 28 November 2010 - 01:54 AM

Hi Sue

Welcome to the forums!

I'm sorry to hear that you've been suffering with itchy patches; it can be very exasperating and irritating! sad.gif

Although one of my many pleasures is telling my doctor how to do her job, I actually have no medical training, so can only advise you from my own experience. I have Limited Sclero and am fortunate enough to have very little skin involvement (merely the tips of my fingers.) We have a link regarding Morphea Scleroderma which I hope you will find helpful.

Do you suffer with Raynaud's phenomenon? The reason I ask is that it can develop into Digital Ulcers on the tips of your fingers which really does neccessitate a visit to your doctor. Hopefully he/she will be able to give you some medication to alleviate some of the discomfort in your finger tips. It's also very important to keep your fingers as warm as possible; I have Raynaud's and I find that it is also troublesome if I let my actual body temperature get too cold.

Do please post often and let us know how you're faring. I'm looking forward to reading your future posts. smile.gif


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#4 barefut

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Posted 28 November 2010 - 04:54 AM

Hi Sue!

Glad you have joined us. You have come to the right place for top notch information and sincere, caring support.

Have you seen your doctor for your back? If not you'd better get there girl! If so, what did he/she say?

#5 janey

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Posted 28 November 2010 - 12:07 PM

Sue,
Welcome to the Sclero Forums! I'm sorry that you are starting to acquire some possible complications due to scleroderma. When you were diagnosed 3 years ago, did your doctor tell you what type of scleroderma - linear or systemic? Both types can affect the skin, but in different ways. At this point, I would definitely agree with the others and highly recommend that you see your doctor, preferably the one that diagnosed you in the first place. Bothersome symptoms such as what you are describing, should be seen by a doctor. We never know what's going on, but when something starts happening, the sooner it's taken care of, the better.

Please let us know how you are doing and what your doctor tells you. Again welcome!
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#6 Amanda Thorpe

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Posted 30 November 2010 - 04:29 AM

Hello Sue

Welcome to the forums! Have you considered seeing a scleroderma expert? Either way you need to be under the care of a doctor because although scleroderma can't be cured (yet) the symptoms can be treated.

Take care and keep posting.
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#7 Sweet

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Posted 30 November 2010 - 10:26 AM

Hello Sue!

Welcome to the forums. I'm so very glad you've joined us! :flowers:
Warm and gentle hugs,

Pamela
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