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I am new to this diagnosis.

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7 replies to this topic

#1 bubee



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Posted 28 November 2010 - 03:01 PM

Thank you for this site. I am new to this diagnosis and to the information. Looking to learn more.

#2 Joelf


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Posted 28 November 2010 - 08:23 PM

Hi Bubee

Here's a very warm welcome to these forums!

I'm sorry to hear that you've been recently diagnosed. I have Systemic Limited Sclero and know how worrying it can be when you first learn of this bizarre disease.

I hope you will be able to find the same wealth of help and support from these friendly and informative forums as I have done. I've posted a LINK HERE which I hope will give you some more information.

Do please post again and let us get to know you.

Jo Frowde
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International Scleroderma Network (ISN)

#3 Shelley Ensz

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Posted 29 November 2010 - 01:00 AM

Hello Bubee,

Welcome to Sclero Forums!

Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 NorthStarHope


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Posted 29 November 2010 - 02:09 AM

Hi Bubee,

You have came to the right place, you will really find so many very caring and wonderful people here, and they are truly the best! For all of my down moments, I have many very happy moments through Sclero Forums. :)




northstarhope* :emoticons-i-care:  :thank-you: 

#5 Jeannie McClelland

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Posted 29 November 2010 - 03:34 AM

Hi Bubee,

Welcome to the Forum! Tell us a bit more about yourself. Got questions? Ask away!

Best wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
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International Scleroderma Network

#6 Snowbird


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Posted 29 November 2010 - 02:25 PM

Hi Bubee

You're in the right place...you will find good factual information here. It's the best place to ask questions because there is always someone in the know that truly understands.

Might I suggest that you do yourself a favor and do not surf the net (if you are considering doing that?). Most, if not all of us, have been there at some point, done that, not going back...this is definitely the best place to be :) .

Looking forward to getting to know you better.
Sending good wishes your way!

#7 Amanda Thorpe

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Posted 30 November 2010 - 04:21 AM

Hello Bubee

Welcome to the forums, we look forward to getting to know you better!

Take care and keep posting.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
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International Scleroderma Network (ISN)

#8 Sweet


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Posted 30 November 2010 - 10:27 AM

Hi Bubee (love your name)

Welcome to our family. I'm so glad you joined us. I'm looking forward to knowing you better. :flowers:
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)