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Biomarker for Diffuse Scleroderma skin has been discovered!


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Shipley woman Bev Myers hoping to contact fellow sufferers


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#1 janey

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Posted 29 November 2010 - 08:51 AM

Shipley woman Bev Myers hoping to contact fellow sufferers.

After struggling to find a support group near Shipley for scleroderma sufferers, Mrs Myers is hoping to set up her own. Helen Patchett. Telegraph & Argus. 11/05/10.

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
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#2 lizzie

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Posted 30 November 2010 - 10:26 AM

Was very interested to read this as this lady lives very near me. Unfortunately there is no contact details in the article, so will have to try and track her down!

Lizzie

#3 Joelf

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Posted 07 December 2010 - 04:58 AM

Hi Lizzie

The Scleroderma Society have various groups around the country.

For more information, particularly if you want to set up a local group in your area, please contact Liz Holloway, the local group co-ordinator.

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#4 Peter

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Posted 08 December 2010 - 10:14 PM

Hi Bev,

Back in the summer St Luke's hospital conducted a seminar for fellow suffers. They are in the process of setting up a contact group for similar people. I am a fellow sufferer and would also be interested a local group. You could leave me your contact details through this site.

Best regards,

Peter

#5 Amanda Thorpe

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Posted 09 December 2010 - 04:48 AM

Hello Peter

The Scleroderma Society has 17 local groupsthat meet around the country, there may be one in your area. Have a look at the list, alternatively contact the local group coordinator.

Take care and keep posting.
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#6 smiler

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Posted 02 January 2011 - 08:53 AM

Would be very interested in joining a group as I have systemic scleroderma and don't know anyone with my condition.

I live at Horsforth which is not far from Shipley.

#7 Joelf

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Posted 02 January 2011 - 09:11 AM

Hi Smiler

Welcome to the forum!

The Scleroderma Society has 17 local groups so if you click on the links in mine and Amanda's posts it will take you to the list of local contacts where hopefully you will be able to contact other people around or near your area.

I host a local group for West Sussex and can verify that it's a very good way to meet other Scleroderma sufferers. :)

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#8 Amanda Thorpe

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Posted 03 January 2011 - 08:35 AM

Hello Smiler

Welcome to the forums! As mentioned by Jo the Scleroderma Society has various local groups that meet across the country.

Have you been diagnosed long? I'm into year 4 and it's been a bumpy ride that's for sure but never boring.

Take care and keep posting
Amanda Thorpe
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