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Janet Paulmenn, Thanks for Tackling Scleroderma Now!


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#1 LisaBulman

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Posted 30 November 2010 - 01:38 AM

We heartily thank Janet Paulmenn for her donation to tackle scleroderma from 2010 to Present.

 

The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. We rely on volunteers as much as possible to give donations the absolute maximum impact for scleroderma. We all desperately need more research, support, education and awareness for scleroderma and related illnesses. 11/18/10. (Also see: Sclero Shop/Donate)


This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman
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International Scleroderma Network (ISN)

#2 miocean

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Posted 30 November 2010 - 01:01 PM

My donation is in honor of the many volunteers who devote so much of their time and much needed energy to ISN. Special thanks go to Shelley and Gene Enze for their corporate office! :thank-you:

When you begin to understand what goes on to maintain this very wonderful forum and all the pages of resources it is absolutely amazing!



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#3 janey

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Posted 21 March 2011 - 09:09 AM

The nonprofit International Scleroderma Network thanks Janet Paulmenn for tackling scleroderma through her recent comprehensive donation for research, support, education and awareness. Posted 03/18/11.

 


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#4 miocean

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Posted 21 March 2011 - 10:57 AM

This donation was in memory of my mother, for her birthday. For the past several years I have been unable to travel to her gravesite to place flowers, which has made me feel very guilty because she was always the "grave tender" in the family. I have memories of being very little and going to the cemetery with flowers from her garden. Although this year I could have made the trip she always said "you can do more for the living than you can for the dead."

miocean

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#5 Joelf

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Posted 24 July 2011 - 07:24 AM

We heartily thank Janet Paulmenn for her donation to tackle scleroderma, in loving memory of Marjorie Elaine Settle. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. Janet, this is a wonderful way to honor her memory, and we deeply appreciate your thoughtfulness. 07/22/11.

 


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#6 miocean

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Posted 24 July 2011 - 11:15 AM

Marjorie Elaine Settle was my husband, David Settle's mother and the best mother-in-law anyone could ever have. When she was diagnosed with scleroderma I thought "oh, this doesn't sound good" never dreaming the same fate would befall me. She was an inspiration to me. She maintained her great sense of humor and never complained. Her birthday is August 13th and this is in her honor.
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#7 Chopper

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Posted 25 July 2011 - 07:43 AM

How nice. And how fortuntate that you knew someone so close that was a help and encouragement to you. Isn't it strange how it's a 'rare' disease, but I have a friend in my congregation is who has it also, and we know of three others in our town.
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#8 Amanda Thorpe

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Posted 25 July 2011 - 09:54 AM

Hello Miocean

You are the second person I know of who has scleroderma and so did their mother in law. You must miss her greatly.

Take care.
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#9 Joelf

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Posted 09 January 2012 - 07:00 AM

The International Scleroderma Network thanks Janet Paulmenn for her abiding donations to tackle scleroderma!  Posted 01/09/12.

 


Jo Frowde
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#10 Joelf

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Posted 05 July 2012 - 02:56 PM

The International Scleroderma Network thanks Janet Paulmenn for her comprehensive donation to tackle scleroderma and pulmonary hypertension with research, support, education and awareness. Posted 07/05/12.

 


Jo Frowde
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#11 Joelf

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Posted 14 February 2014 - 10:57 PM

The International Scleroderma Network thanks Janet Paulmenn for her donation to tackle scleroderma research, support, education and awareness! Posted 02/04/2014.


Jo Frowde
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#12 miocean

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Posted 15 February 2014 - 04:55 PM

Thanks for all the ISN does!! Where would we all be without you!


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#13 Joelf

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Posted 11 December 2015 - 06:23 AM

The International Scleroderma Network thanks Janet Paulmenn for her donation to tackle scleroderma research, support, education and awareness!  Posted 12/10/2015.


Jo Frowde
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#14 Shelley Ensz

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Posted 11 December 2015 - 01:41 PM

Janet, thank you for your enthusiastic and ongoing support.  We really appreciate your concerted efforts to tackle scleroderma research, support, education and awareness!


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.