Update on sclero-soldier
Posted 04 December 2010 - 06:38 AM
I've been missing you guys! It feels like I've been away from this awesome forum for so long. But tonight I finally just sat down, took my sis' laptop and logged in.
I'm not sure if you remember me and there are so many new people in here. But anyway, I'm Emmi, 20-year-old linear scleroderma patient from Finland. I've lived with this for 14 years now I guess and it's been a bumpy ride. A year ago I was still on methotrexate, but after talking to my dermatologist we both agreed that I was just medicating my medication. I dropped all pills that I could, started training more seriously again, and I've never felt better.
Last year was really rough emotionally and health-wise as well. This year has been a lot different; It's been rough physically. Since July 2010 I've been serving my country in The Finnish Defence Forces. I'll be serving 362 days and I'll be a Corporal before Holiday's. Most likely I'll be a med Sergeant before getting back home. My boyfriend is also serving a year but he'll be a navy officer. We don't get to see each other a lot these days, but he's been extremely supportive over the phone, always asking me how am I doing and telling me how proud he is. Same as my family.
That's pretty much it these days. I can only tell you that a year ago I couldn't have even imagined that I'll be this far now. It takes a lot of effort to get through these hard days and training in the army but still after every day it feels like it's all worth of it. And I'm still smiling as often as I used to.
Just wanted to let you know how I'm doing and tell you that I really miss you guys! Now please let me know what's up with Your Lives? I hope everyone has been warm and healthy and will remain so.
Take care, warm hugs,
Posted 04 December 2010 - 07:23 AM
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Posted 04 December 2010 - 09:20 AM
This is the first time I have read one of your posts and I just want to say I feel very proud of you too and what you have achieved despite the scleroderma. Hats off to you for serving your country, but more importantly for showing us what is possible when you are determined to live your life to the full despite this horrible disease. You are a true inspiration.
All the best
Posted 04 December 2010 - 11:09 AM
What a very inspiring post!
This past year sounds as if it's been very full and exciting for you and many congratulations on not only becoming a Corporal but also proving that there is a really good life to be lived, after a diagnosis of Scleroderma.
The very best wishes to you.
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Posted 04 December 2010 - 11:48 AM
I remember you!!! I saw your heading *Sclero-soldier* and thought "WHAT" ?!?!? Congratulations!!! You have been so busy, weren't you just on holiday in the Mediterranean?!?!? Do you still dance?
My son, Gareth, is doing quite well. It's been 4 years now.
Do take care and keep us all posted of your happenings.
Posted 04 December 2010 - 08:29 PM
So good to hear from you all! Thank you for you compliments, it's been quite an amazing year and I just hope that my health stays OK over this winter that's been promised to be the coldest in a century or something. I was actually quite amazed that after spending literally the whole November in a forest in a tent I didn't get my fingers amputated due Raynaud's. Thanks to Adalat I survived even though it was tough every now and then. Good thing that I won't have to go to another training camp for two months now I guess.
Margaret, good to hear that Gareth is doing fine. What is he up to these days? And yeah, my Mediterranean trip was in 2008 so that was couple of years ago already! Time flies by so fast.
Posted 04 December 2010 - 10:59 PM
So nice to hear from you...what a trooper you are (and literally now too)!! We've missed you as well.
You sure do like a challenge and more importantly, you always prevail...we're as proud of you as ever.
Hopefully, every now and then you will still be able drop us a line or two. Take care.