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Breast Cancer and Scleroderma


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#21 Joelf

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Posted 11 December 2010 - 01:02 AM

Hi Vanessa

One of the most positive things to come out of your diagnosis is that you have found really true friends and a staunch new love, who is now proving that he is prepared to love and support you through such a difficult time. You must be quite a special person to have inspired such loyalty and devotion.

As I said in my previous post, two of my friends have undergone very successful mastectomies and reconstructions and in fact one of them (who has very few inhibitions! ;) ) uses her reconstruction as a subject for discussion at dinner parties and is not averse to showing her 'battle scars' at the slightest provocation!! :wacko: :lol:

I will be thinking of you and wish you the very best of luck with your surgery.

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#22 Shelley Ensz

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Posted 11 December 2010 - 01:08 AM

Hi Vanessa,

It sounds to me like you have everything in place for having a good surgery. I'm sorry you need to have a mastectomy (that must have dashed a few hopes) but if it were me, the less worry afterward, the better.

I love it that your family is being so supportive, and that you are putting your pre-surgical time to good use by doing exciting and enjoyable things! Here are some extra flowers and hugs, just for you.

:flowers::emoticon-hug:
Warm Hugs,

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#23 epasen

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Posted 11 December 2010 - 03:54 AM

Hello Vanessa,

I, as well, am very sorry to hear about your diagnosis. But I'm also glad to notice that your family and friends are showing such a huge amount of support, that is the most valuable thing in life at this point, I guess.

You showed your concern on how your skin would heal after surgery. I know a scleroderma patient with 90% of his skin being affected by sclero. His body sometimes developes ulcers by itself, which might stay open for years. However, whenever he had had a surgery or something outside from his body which has caused a wound to his scleroderma-skin, those wounds always heal properly. That is quite interesting I think as well as a bit weird, but after living with this for 14 years I've noticed that scleroderma is far away from normal anyway.

Take care and good luck with your treatments,
Emmi

#24 barefut

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Posted 11 December 2010 - 04:35 AM

Vanessa,

Your last post has me in tears. I am so sorry you have to have a mastectomy but it makes my heart happy to hear about all the wonderful people and support you have around you. Thanks for sharing your story. I have not had a mammogram in over 5 years. I am making my appointment on Monday.

Best wishes and good thoughts coming your way!
XX

#25 Amanda Thorpe

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Posted 11 December 2010 - 05:35 AM

Hello Vanessa

I am so sorry you are having to deal with this. You have great support around you and I am sure you will enjoy your trip to Jamaica.

Take care. :emoticon-hug:
Amanda Thorpe
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#26 Buttons

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Posted 11 December 2010 - 08:08 AM

Vanessa, I'm so sorry to hear that you have to deal with a full mastectomy but it never ceases to surprise me what the medical staff can do. My own sister went through exactly the same operation in January last year, she has been given the all clear at her recent checkup so was over the moon with joy.
It makes a big difference when you have such a supportive network of friends and family so use them when you need to to lean on.

Best Wishes

Buttons

#27 debonair susie

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Posted 11 December 2010 - 08:54 AM

Hi (again), Vanessa,

This will be echoing what so many Ladies before me already mentioned, yet I feel compelled at this juncture.

How very fortunate you are to have the loving daughter, plus a new love in your life...very special.(You must be VERY proud :wub: of your daughter)! What an especially important time for you to have such support and from them BOTH...Obviously, you are quite a special Lady.

How awesome that you opened up your home to someone in need and yet, the rewards seem to be coming (back) to you many times fold...through this person...also. We can never have enough friends, yet those who really care uncondtionally...are truly the keepers in life.
It seems as though you touch the lives of everyone you come in "touch" with, Vanessa...I will continue to hold you in my thoughts.
Special Hugs,

Susie Kraft
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#28 Vanessa

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Posted 11 December 2010 - 11:40 PM

Thank you once again for all your kind support, dear friends.

And take note of Barefut - Check those breasts regularly.

It is a beautiful day here. I have just tucked into a delicious plate of eggs and bacon and buttered toast and am going to sit down with three girlfriends and a cup of tea to watch X Factor on catch up.

Bliss

#29 barefut

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Posted 15 December 2010 - 06:04 PM

Vanessa - ahhh life's simple pleasures!

Just wanted to let you all know I had my mammogram on Tuesday and all looked good. However, I am also having a sonogram to check for inflammatory breast cancer as I have had some tenderness and swelling and an unusual shaping to my left. Saw my family doctor and got some bloodwork done as well. That was also yesterday and I have not yet heard back from them so slow news is good news.

Inflammatory breast cancer will not show up on a mammogram so a sonogram is the next step and then MRI. I'm sure its probably just sclero related tenderness but since I have been on Cellcept for nearly 5 years it puts me at risk. Better safe than sorry and inflammatory breast cancer is something you do want to catch early. So something to think about girls.

Take good care all!

#30 Joelf

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Posted 15 December 2010 - 08:30 PM

Hi Barefut

I shall be thinking of you and hope your sonogram and blood tests show a good result.

Jo Frowde
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#31 debonair susie

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Posted 16 December 2010 - 07:14 AM

Isn't it wonderful to have great friends, especially those you are able to get together with, Vanessa?

Keeping positive thoughts about all you have going on :emoticon-hug:

Thank you for checking in and keeping us in the know of how you're doing.
Special Hugs,

Susie Kraft
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