Jump to content


Did you know that exercise increases inflammation in systemic sclerosis?


Photo

Foot Tendon and Nerve Problems


  • Please log in to reply
6 replies to this topic

#1 mollie

mollie

    Bronze Member

  • Members
  • PipPip
  • 24 posts
  • Location:Texas

Posted 10 December 2010 - 08:26 AM

Hello Everyone...just wanted to check-in and see if anyone is experiencing tendon and/or nerve pain in their feet.

It seems over the last several months the tendon pain on the top of my feet and also nerve pain in my feet and legs is getting worse. Wondered if you are experiencing this and what type of treatment you are receiving. Thank you in advance for your assistance.

Mollie

#2 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 10 December 2010 - 09:28 AM

Hi Molly,

Yes, my feet give me the same problems. I give them lots of rest, stretching, massage, hot soaks, I've even used menthol rub products on them. Also good, supportive shoes are a must!

Hope you can find some significant relief soon.

Hang in there and welcome to ISN!

#3 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 10 December 2010 - 09:29 AM

Hi Mollie

I'm very sorry to hear that you're getting pain in your feet and legs.

I do sympathise as constant, irritating pain can be very wearing. I did have awful pain in my joints, particularly my knees and wrists, which thankfully dissipated once I started on my medication. On one occasion we went to the theatre and by the end of the evening I couldn't actually get up from my seat as my knees, which had ached continuously throughout the performance, were so stiff and painful. :(

Unfortunately I have no actual medical training, so I couldn't really say what the reason for your pain is, or whether it's anything to do with the recent IVIG infusions you've had. However, I think that if your pain persists it would be worth going to your doctor or rheumatologist to see whether he/she can prescribe something for you to alleviate the discomfort.

Do let us know how you get on.

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#4 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 10 December 2010 - 10:43 AM

Hi Mollie,

Sore feet? Yep, got that. Nerve pain? Yep, got that too. For the feet, I'm with Barefut (the person, not sockless and shoeless!) - all the things she suggests are good. I know a lot of folks also like paraffin baths (hot wax), but if you have any diminished ability to tell the temperature of the wax, that wouldn't be a good option.

Nerve pain, well, the only thing that has helped that has been prednisone and that's definitely not for everyone. I tried a number of the medications that sometimes help, like gabapentin and a couple of the tricyclic anti-depressants, but for me the side effects were worse than the pain. I put on huge amounts of weight with the gabapentin and the amount of the anti-depressant it took to make a significant difference in the pain level left me feeling like a zombie. (I probably wouldn't have noticed if you'd set my nose on fire.)

Good luck with finding some relief and let us know how you are getting on, OK?

Warm wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#5 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 11 December 2010 - 07:40 AM

Hello Mollie

Foot pain is now one of my biggest problems. I either have skin pain, nerve pain, mechanical pain, rheumatic pain or at times all four at once! I take pain medication and anti depressants for the pain and it just takes the edge off it. Do let me know if you hit on any solutions!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#6 mollie

mollie

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 24 posts
  • Location:Texas

Posted 11 December 2010 - 11:53 PM

Good Morning, Everyone...

Many thanks for your responses...they are actually very helpful.

Amanda...my pain is very similar and I also take pain meds and antidepressants for the discomfort as well (which basically just takes the edge off, too). It does seem that during the 3-3 1/2 week period after my IVIG infusion that the pain is not as severe (but not sure if that's just wishful thinking or my imagination). Sometimes I wake up at night and the pain and burning is so very uncomfortable. I'm going to talk to my neuro and rheumatologist again next month but I fear that there isn't really anything that can be done except my just grinning and bearing it. I really do appreciate you listing and letting me vent and this site so much.

Thank you all again. -Mollie

#7 Dorothy

Dorothy

    Newbie

  • Members
  • Pip
  • 9 posts

Posted 14 December 2010 - 08:36 AM

My physical therapist has me doing a series of walking steps and stretches in the heated therapy pool. It is uncomfortable when I do the movements, but see the benefits within the next day.

The heat and water pressure really help control my pain. All I take is Tylenol before and joint ointment afterwards (not including my regular methotrexate, etc)

Good Luck!