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From: Do I move to Queensland?


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#1 Nia

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Posted 13 December 2010 - 04:50 PM

Hi all,

Just checking in to see how this new forum operates. ;-)

At first I wondered why I couldn't post, then I realised I had to register (using an icon near the top RH corner of the page). Registration was easy and fast.

While Im here.....
Ive been toying with the idea of spending substantial amounts of time in a wamer climate over the Melbourne winter. I'm a nurse, so I could potentially work in Queensland in winter and return to Melbourne for the summer.

But I have heard that after a while in a warmer climate you acclimatise somewhat, so that while you get relief from Raynauds at first, the benefit reduces over time.

Any Queenslanders care to comment?

Hooray for summer, its 33 degrees here today :-))))))

Nia

#2 Helen

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Posted 13 December 2010 - 08:05 PM

Hi Nia

I live in Rockhampton,Queensland. We have very mild winters here. I have had Raynauds for 4 1/2 years and I don't have too much trouble in winter. I didn't even get to wear my Ugg Boots this year as it wasn't cold enough. I have more trouble with air-conditioning in summer. I haven't been to Melbourne since I got sclero so I don't know how I would handle the cold.

Enjoy your summer :happy1-by-lisa-volz:

Helen

#3 judyt

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Posted 13 December 2010 - 09:18 PM

Hi Nia,
I am not a Queenslander, but I do live in the South Pacific - Auckland to be precise. I first developed Raynauds when I was 22 and we were living in the UK on our OE. I just thought it was because of the fact that I was not used to such cold weather for so much of the year. However when I got to Cape Town, South Africa that's when I really started to find out what Raynauds could be!!! Cape Town is generally much warmer than Melbourne but not as warm as Brisbane on average I would say. So living in a warmer climate was OK until I went shopping - air-conditioning in the shops is the killer. Particularly the supermarket. As lots of our US and UK friends will tell you it is the change in temperature more than the level of temperature which is the trigger. It took me many years to learn what was wrong but my own defence was to dress warmly in layers, particularly close to the skin. I find if you keep your core warm you can cope better. Today, where we live it has been about 26 degrees inside but with a stiff breeze off the sea which comes into the house to cool my overheated husband. I am sitting here with a mohair jumper on!!!!! It is the cool breeze I can't handle.

Melbourne is COLD I agree and it would probably be easier to live in Brisbane or somewhere up there but I don't think you would beat the blue fingers entirely.

I have been very lucky that medications have helped me. I take Amlodipine and Cardizem every day and I have to say that I have not had a Raynauds attack for nearly a year now - since I added the Cardizem. I do have hypertension and Rheumatic Heart disease as well as CREST and I take the Cardizem to help my heart and the Raynauds relief is more or less secondary.

If I had the opportunity to live in Queensland I would no doubt have taken it but I don't think you will solve your problem completely.

Warm and humid hugs from NZ (but don't tell those girls in the US and UK or they will hate us for ever)

Judyt

#4 Jeannie McClelland

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Posted 14 December 2010 - 02:57 AM

Judy, you are right - no fair rubbing the warm temperatures in when we in the Northern Hemisphere are blanketed in snow!

Nia, I live in a climate that gets pretty hot in the summer and pretty cold in the winter (no humidity in either season). What I have discovered is that there seems to be a certain range of temperature that is my comfort zone. That seems to be getting a bit narrower as time goes on. Maybe it is my Raynaud's getting worse? I do know that the air conditioning doesn't have to be set very low to have a bad attack when I come in from outside. A draft will even do it sometimes. I think if all other things were equal, I'd probably prefer to live in a climate that didn't have such a big seasonal temperature range, even if the average was a bit cooler.

Now, my joints, on the other hand, would dearly love to be slow roasted!

Warm hugs,
Jeannie McClelland
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#5 Joelf

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Posted 14 December 2010 - 03:34 AM

Hi Nia

The climate in the UK tends to be very damp a lot of the time. It's really only been the last two winters that have been really cold with heavy (for the UK!) falls of snow.

I suffer with Raynaud's and prior to taking my medication, also with stiff, painful joints which have been worse these last two years. I'm sure it's because the weather has been colder. Also, like Judy, I find that the air conditioning in the supermarkets in summer and around the frozen food aisles sets it off as well.

Ah, Judy, I envy you your warm climate! ;)

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#6 Amanda Thorpe

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Posted 14 December 2010 - 12:29 PM

Hello Nia

Welcome to te forum! I'm in the UK and it's so small there's nowhere to go for Raynaud's relief! :lol:

Take care and keep posting.
Amanda Thorpe
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#7 Melody

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Posted 14 December 2010 - 11:15 PM

Hi Nia

I've just registered too as I saw we now have an Australian site although I've been reading the main forum for a long time. I live in
Queensland and have noticed that my Raynaud's is getting worse even though the winters aren't getting any colder. I guess it's just disease progression but I'm sure I would suffer a lot more if I lived in a colder climate. As others have posted, air conditioning sets off attacks for me as well.

Raynaud's aside, spending half the year in Melbourne and the other half in Brisbane sounds like a great lifestyle change!

Melody

#8 Robyn Sims

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Posted 14 December 2010 - 11:29 PM

Hello Nia,

Great to see so many people giving you advice and empathising with your situation.

It's wonderful to see our new Sub Forum set up and running. Welcome to Melody who has posted for the first time and thanks to all for supporting Nia in this way.

Warm regards to all,


Robyn

#9 Joelf

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Posted 15 December 2010 - 01:18 AM

Hi Melody

Welcome to these friendly and informative forums!

I'm looking forward to reading your posts and getting to know you. :)

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#10 Amanda Thorpe

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Posted 15 December 2010 - 08:11 AM

Hello Melody

Welcome to the forum! I hope you find it helpful and look forward to hearing more from you.

Take care and keep posting.
Amanda Thorpe
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#11 Jeannie McClelland

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Posted 15 December 2010 - 11:31 AM

Hi Melody,

I'm glad you've decided to join us! You are certainly very welcome here. Here's a big ISN hug for both you and Nia. :emoticon-hug: :emoticon-hug: (One each so you don't have to share. :rolleyes:)

Best wishes to you both,
Jeannie McClelland
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#12 Melody

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Posted 15 December 2010 - 02:19 PM

Aww thanks for the welcome - you're all so nice :VeryHappy:

Melody

#13 Shelley Ensz

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Posted 16 December 2010 - 04:10 AM

Hi Nia,

Why don't you try out a long trip there and see how you like it, then make a decision?

If you know you already love the area, then definitely do it if you can. It may not make a huge difference in Raynaud's, but it might be a place you'd truly love and possibly even want to do this every year, or even move there permanently.

I just wouldn't make the move only for Raynaud's. I live in Minnesota and have a much worse time with Raynaud's during the summer, as they set air conditioning dial to "F" (for Freezing) in restaurants and stores around here, and it looks weird to be wearing coat and gloves then.

You can say that Raynaud's was your inspiration and other factors (warmth, sunshine, no shoveling, more enjoyment) were your decisive factors.
Warm Hugs,

Shelley Ensz
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#14 Nia

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Posted 18 December 2010 - 08:01 PM

Thanks everyone for your warm (get it?) responses to my question.

I try to have a holiday in a warm climate every winter and that seems to largely keep the ulcers at bay.

I too think that dressing warmly is the only way to deal with Raynauds - prevention, as always, is better than cure.

Best wishes to everyone for the holiday season.

Nia.

#15 Shelley Ensz

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Posted 08 January 2011 - 03:30 AM

So, Nia, does this mean that you are going to pursue moving, or not? I'm happy for you, whatever you decide to do!
Warm Hugs,

Shelley Ensz
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#16 Kaz

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Posted 01 March 2011 - 04:47 AM

Hi Nia

I was diagnosed in '85 with systemic scleroderma and was living in Adelaide. The cold weather was stopping me from doing so much and after having half a finger removed due to the condition, I decided to move to Darwin.

I had just endured 8 months of excruciating pain, 8 panadeine forte and 4 sleeping tablets a day and was missing out on enjoying my children grow. I had nothing to lose and found that I was still mobile enough that I could play netball 4-5 times a week in the warmer climate.

During the 10 years I was there I had endoscopies every 6-12 months as I have chronic esophagitis, but life was much better. My digits rarely suffered infections and I wasn't held back from doing what I wanted. I now live in Paradise (Sunshine Coast) in Queensland. I have a great general practitioner who looks out for me and updates my Health Plan every 6 months. He also assists me in receiving free additional medical and dental care. My gastroenterologist has me in for an endoscopy every year and although it is chronic I am controlling it with medication.

The winters here are bearable and personally the move from the freezing Adelaide winters has made my life so much more enjoyable. Although I am not in total control of my scleroderma, through diet, a great network of family & friends and making the "sea change" I don't dwell on my condition and just look forward to completing my 'bucket list'.

Onwards and upwards with gusto!
Kaz

#17 Robyn Sims

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Posted 01 March 2011 - 07:33 AM

Hello Kaz,

Welcome to our forum, so pleased that you were able to give some positive advice to Nia.

Glad to hear that you are getting good treatment in Queensland. It's great that you have a good general practitioner, they do make such a difference.

Hope to hear from you again.

:emoticons-group-hug:

#18 Joelf

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Posted 01 March 2011 - 08:39 AM

Hi Kaz,

Welcome to these helpful and informative forums!

I'm pleased to hear that you've managed to get your Sclero symptoms under control and I do admire your very positive attitude, which really does go a long way when coping with a chronic illness. It's also such a bonus to have a first rate medical team behind you; as Robyn has said, it makes all the difference. :yes: We have a link here to Gastrointestinal Involvement which I hope you'll find interesting.

It sounds as if the climate where you are now living has certainly helped you; how lovely! I live in the UK where a lot of the time (particularly this time of the year) it's cold and wet.....with the emphasis on wet! :(

Do please keep posting and let us get to know you. :)

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#19 Jeannie McClelland

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Posted 01 March 2011 - 10:54 AM

Hi Kaz,

I'm just popping in to welcome you to the Forums. It's always nice to have a new member join us and I hope you'll make lots of friends here at sclero.org. Would you perhaps want to post a message in the Main Forum to let everyone know you are here and to welcome you?

It sounds like your decision to move was a really good one. It's sometimes difficult to up stakes and move far enough to have the benefits of a better climate. We moved from the UK to the northeast of the USA (cold and wet to cold and buried under snow or sweating in heat and high humidity) and then to the Rocky Mountains which I'd also call paradise. It's very dry and even though it does get cold, we at least see sunshine often enough to know what that bright light in the sky is! :lol:

I hope you'll post often and let us get to know you.

Best wishes,
Jeannie McClelland
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#20 Amanda Thorpe

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Posted 01 March 2011 - 02:35 PM

Hello Kaz

Welcome to the forums! I'm in the UK like Jo and it's turned cold and wet again :angry: Oh well!

Good to hear from someone who has lived so long with scleroderma, gives us all hope! :great:

Take care and keep posting.
Amanda Thorpe
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