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Scleroderma Family Registry and DNA Repository on Facebook


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#1 janey

janey

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Posted 10 January 2011 - 05:00 AM

Scleroderma Family Registry and DNA Repository on Facebook.

It was started by Dr Maureen Mayes in 2001 at the Wayne State University, Detroit, MI. Since then, it has relocated to UT Houston Medical School and gained over 6000 subjects. We are always in need of more patients willing to participate. Facebook. December 2010.
According to the most recent count, the Scleroderma DNA Registry needs 250 more subjects with Scleroderma as well as 250 more controls to meet its goal and perform the DNA validation analysis. We are currently at 7,143 subjects and controls. Give us a call if you'd like to participate! Facebook. October 6 2010. (Also see: Scleroderma Family Registry and DNA Repository)

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)