Well, we all know it is a special date today, 1-11-11.
But for me it marks the 10th month anniversary of my kidney as well!
So many things besides the quality of my life have improved. My skin had started to soften and continues to, down to 8 from 45, my pulmonary function has improved, my echo showed no signs of Pulmonary Hypertension, and I definitely have more energy not having a dialysis machine, while giving me life, suck the life out of me three times a week. The calcinosis on my buttocks, while still there, is not as painful and the one area that was rough to the touch and really hurt, is gone.
All is not perfect, the transplant did not make the scleroderma magically go away. My GI system is worse and I am dealing with issues of diarrhea, probably medically induced and nothing I can do about it. I have more medicine to treat it. My lung fibrosis has increased. My hands are less swollen but seen to be curving more and I am back at Occupational Therapy. The joint at the base of my left thumb is extremely painful and I wear a splint most of the time. Surgery "may" be in my future but between the transplant and scleroderma it might not even be an option. It's not painful enough at this point to even consider it. I have times when I just crash. I do too much and then pay the price. All I can describe it as is my legs "just go." Then I am out of action for a while.
Don't get me wrong, I'll take it Anything is better than the "life" I had before the transplant. I realize now how very sick I was. People are telling me how worried they were about me. (I thought I was doing pretty good ) I still need to learn to pace myself. I tend to "use up all my spoons."
Well, after resting yesterday, I need to get a move on. Too much to do and not enough time. I try to pace myself so I don't end up with a day of not being able to do anything, like yesterday. Hope you are all doing well, thanks for all the support