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Disability in Systemic Sclerosis (SSc) - A Longitudinal Observational Study.


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#1 Jeannie McClelland

Jeannie McClelland

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Posted 12 January 2011 - 03:45 AM

Disability in Systemic Sclerosis (SSc) - A Longitudinal Observational Study. Our study provides strong evidence that SSc causes increased disability over time, with breathing problems and disease type being the strongest predictors of disability. Statistical modeling accounting for informative patient dropout is necessary to properly assess the outcomes of patients followed longitudinally. Mireille Schnitzer, Journal of Rheumatology, December 15, 2010. (Also see: Prognosis and Disability)

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Jeannie McClelland
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#2 scragporter

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Posted 12 January 2011 - 06:50 AM

Hi,
Long-term disability is a major factor due to the present management being on relieving symptoms rather than treating the condition. New therapies are coming out all the time and the treatments are getting better. A lot of these chronic disorders are now more effectively treated and the management is improving year on year. Patients are seeing improvement, my wife being one and she is hiking mountains where she couldn`t climb stairs two years ago. My wife got better and she tells me all the time how she didn`t know how bad she was until she improved. Why should disability be the final outcome when there are tough ladies on this website battling everyday?
Thanks Craig