Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Guess I'm doing ok

  • Please log in to reply
3 replies to this topic

#1 NorthStarHope


    Senior Bronze Member

  • Members
  • PipPipPip
  • 72 posts

Posted 19 January 2011 - 07:24 PM

Hi Everyone,

Well I was waiting for test results from the doctor, and blood test seem to check out okay. He tested me for scleroderma and other things and I am thankful that these tests are negative. He did tell me that I have very high cholesterol, and also arthritis, also I am having some pretty major breathing problems, so he prescribed an rescue inhaler. I had quit smoking about 4 months ago, and about 2 months ago I started having trouble breathing, some people say this is because the lungs are trying to clear out. Sometimes the breathing problem seems bad enough to go to the hospital, then like a hour later it subsides, this goes on and off like that all day. I am hoping the inhaler will work. By the way, I haven't heard too much from my sister lately, but my mom says shes doing okay. She has moved closer to me, but crazy as it seems we haven't spoken for almost over a week. I'm thinking sis might have got tired of all the company and needs a little me time. I do check on her by talking to mom to make sure things are okay.

But when you have diffuse scleroderma are things ever okay?? Maybe I should say that I hope for my sister and everyone out there that things are the best they can be.

northstarhope* :emoticons-i-care:  :thank-you: 

#2 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,905 posts
  • Location:West Sussex

Posted 20 January 2011 - 02:16 AM

Hi NorthStarHope,

It's good news that you've had your tests and that they've come back negative. I hope that the inhaler prescribed for you will help with your breathing and improve your quality of life.

I'm pleased that your sister seems to have settled a little and is obviously feeling a bit better. I think with Sclero things do stablise a bit and also your sister is perhaps learning to cope with the disease a little.

Do please keep us posted, won't you? :)
Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,925 posts
  • Location:U.K.

Posted 20 January 2011 - 04:55 PM

Hello NSH

Good news and well done on quitting smoking! No doubt your sister is just happy to be home and enjoying her natural habitat!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#4 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,624 posts
  • Location:(United States)

Posted 22 January 2011 - 07:46 PM

Hi NorthStarHope,

Please take care of yourself and thank you for the update.

Also, as for your sister...it seems good news that she's acclimating to and enjoying
"just being at home"....May she continue!

Soft Hugs for you both!
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)