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Breathing Prolems

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#1 summer


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Posted 21 February 2007 - 12:24 AM

Hi Everyone,
I am experiencing shortness of breath, it is not all the time. Some days I'm fine
and some days my breathing feels really laboured especially when I'm walking aroound or doing things . When this happens I feel really dizzy and have to sit down and rest . Is this related to Scleroderma?. I am due to see my rheumatologist in 3 days time for the 1st time, as I've not been officially diagnosed yet! It seems that every day their are new symptoms to add to my list!!!
Many thanks

#2 Heidi


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Posted 21 February 2007 - 02:25 AM

Hi Celia,

Your shortness of breath could definitely be related to scleroderma as lung involvement is often a complication of the disease. Here is a link that discusses lung involvement in scleroderma. This is something you will definitely want to mention to your rheumatologist. I think you should expect him to order lots of tests so that he can get some baseline readings and make sure that you don't have any internal organ involvement.

I am glad your will be going to the rheumatologist in 3 days. Please let us know how it goes.

Warm wishes,

#3 susie54


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Posted 21 February 2007 - 02:39 AM

Hi Celia,

I have lung problems with MCTD sometimes and yes , it can cause shortness of breath. Sometimes when you feel that way, you overbreathe and this can make you dizzy. Be sure and discuss this with your rheumatologist so he can evaluate it. Many times just knowing what is going on will make you relax. Hope you feel better. I know that is an awful feeling. Susie54

#4 Claudia-DR


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Posted 21 February 2007 - 03:47 AM

Hi Celia! I agree with the responses you have gotten so far. By all means DO tell your rheumatologist about the shortness of breath. Have you had pulmonary function tests and echocardiograms done on a regular basis? If you haven't, now may be the time to start.

I also have small dizzy spells once in a while, triggered by stress and dehydration. Be sure to drink lots of water, even if its cold outside.

Good luck with your appointment!



#5 peanut


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Posted 21 February 2007 - 04:23 AM

Hi. Yes, yes.. I agree. Sometimes the meds can make one dizzy, but it's important to rule out if you do or do not have lung involvement caused by scleroderma. Spirometry, PFT tests and perhaps X-rays and a CAT scan are important. I just did mine yesterday for my lung involvement. If your rheumatologist is unsure or lungs are beyond his area of expertise you might look into seeking a pulmonologist who knows about Scleroderma.


You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#6 janey


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Posted 21 February 2007 - 04:58 AM

Ditto to everything! If you do get a diagnosis of scleroderma, you'll be getting lots of tests. Yes, you'll get tired of them (even though 99% are non-invasive) but they are necessary to establish baseline for the various conditions that could arise in the future. The lung CAT and PFT were two of my first tests (4 years ago) and were very handy in establishing my current scleroderma associated lung condition.

By all means - mention the shortness of breath to your rheumatologist. If he or she doesn't recommend at least a pulmonary function test (PFT) or x-ray then I might look for another rheumatologist.

Just a side thought - if you do get a diagnosis of scleroderma, be sure to ask your rheumatologist how many scleroderma patients they have treated. Experience is important.

Please let us know how the appointment goes. We'll be thinking of you!
Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#7 summer


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Posted 21 February 2007 - 05:50 PM

Thank you all for your thoughts and opinions it is most appreciated.

#8 graywolf14


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Posted 22 February 2007 - 03:38 AM

Hi Ced,

I experience that feeling also. I was diagnose Lupus and Scleroderma which they call it an overlap. I have the lung involvement that causes me to have a shortness of breath sometimes.

Graywolf :mellow: