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Biomarker for Diffuse Scleroderma skin has been discovered!


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Culture Fair Project on Scleroderma


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#1 barefut

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Posted 25 January 2011 - 05:12 PM

Well tonight is the night. (We were snowed out 2 weeks ago and had to reschedule) I will be sitting with my 7th grader next to his masterpiece, tri-fold, cardboard, stand-up display on, "A Day in the Life of My Mom".

All 200-ish 7th graders' boards will be displayed in the gym and tonight at 6:30 families are invited to browse the displays. Each student chose a topic, did their research and constructed their display board with regard to how their topic relates to their personal family culture and/or the culture of our community.

I was surprised and proud when my son told me he wanted to do his on scleroderma, and prouder still when he stuck to the topic when all of his friends were doing theirs on sports.

I must say he did a wonderful job and with the help and support of Shelley and her generous scleroderma awareness care package, it turned out great! He got 60/60 points for his oral presentation. The overall project has not been graded yet.

I am looking forward to tonight but at the same time, I feel a little nervous about letting the whole community in on my disease. My close friends already know. It will be interesting to see how others receive this information. I will let you all know how it goes and post some photos as well.

Stay Healthy, Happy, Safe and Warm!

#2 Shelley Ensz

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Posted 25 January 2011 - 05:39 PM

Hi Barefut,

I'm pleased as punch that he got a 60/60 on his oral presentation -- you can't get any better than that, and it shows he really did his homework on the subject, too. I'm sure his display will be a big hit, as he has really prepared well for it. I'm also glad he stuck with it when everyone else bailed for easier topics like sports!

Please let us know how it all goes, and take some pictures for us too, will you?

:happy-day:
We are thrilled with the work he is doing to help raise awareness of scleroderma. It brings tears to my eyes to think how much he cares for you!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 debonair susie

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Posted 25 January 2011 - 07:10 PM

This is really, really wonderful, Barefut...Please give your son {{{{Big Bear Hugs}}}} on behalf of all of us (of COURSE, yourself included, Mom! :wub:)
Congratulations to him for his 60/60...AWESOME!!! I just KNOW he'll do very well all the way around.

Thank you for sharing this with us and we are looking forward to the photos!


(Of course, Shelley, you ALSO rock)! :emoticons-yes:

My best to ALL of you.
Special Hugs,

Susie Kraft
ISN Support Specialist
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International Scleroderma Network (ISN)

#4 Joelf

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Posted 26 January 2011 - 09:32 AM

Hi Barefut

Many congratulations to your son on the wonderful full marks for his oral presentation. :emoticons-yes: It sounds as if he thoroughly deserved it for all the hard work he's done!

I hope he does equally well on his overall project and I can't wait to see the photos!! :happy-day:

Jo Frowde
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#5 ladyhawke

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Posted 26 January 2011 - 04:11 PM

Wow! I am SO impressed....good for him and kudo's to you as his Mom! Be sure and let us know and would love to see some photo's! - Lisa
Life is NOT meant to be a struggle. Life is meant to be joyously abundant.