Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Foot Inserts for Sclerosis Problems in Feet

  • Please log in to reply
8 replies to this topic

#1 uknlv18


    Silver Member

  • Members
  • PipPipPipPip
  • 152 posts

Posted 29 January 2011 - 11:40 AM

Hi everyone,

I am going on Monday to meet with a Podiatrist Researcher who is looking into some new inserts that can help Sclero suffers who have pain in their feet when they walk. It is a trial being run here at The Leeds Teaching Hospitals Trust, and I will get either the actual insert that they are trialing or the dummy one and then I have to wear it for a couple of months in my shoes (I think) and then write down if they are helping with the pain or not.

If anyone in the area is interested in taking part in the study PM me and I will give you the Podiatrists contact details. Also I will keep you posted as to whether these help or not, and if I got the good ones or the normal ones. The inserts they are trialing are supposed to produce heat in the soles of your feet! I hope they work as walking any distance has become a thing of the past for me. Getting out into the country used to be one of my great joys in life, so with any luck I will be able to do it again!


#2 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,904 posts
  • Location:West Sussex

Posted 29 January 2011 - 12:46 PM

Hi Jean,

That study sounds very interesting and exciting! Presumably you're not told whether you are getting the actual insert or the dummy one so the results are completely unbiased.

Certainly if it helps you to enjoy walking again and helps to alleviate the pain you're experiencing it's got to be a good thing; I'm all for anything that can improve the quality of our lives. :)

Be sure to let us know how you get on, won't you?
Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#3 uknlv18


    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 152 posts

Posted 31 January 2011 - 11:40 AM

Hi everyone,

Had my inserts put in today, no idea if they are the good or normal ones. 12 weeks of wearing and testing them! Hoping for the best :happy1-by-lisa-volz:


#4 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,925 posts
  • Location:U.K.

Posted 31 January 2011 - 04:00 PM

Hello Jean

I really, really hope the results are good! Thank you for taking part in the trial!

I find my foot pain crippling at times and now with the ulcers...OUCH!

Take care and keep us updated.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#5 Deb1million


    Silver Member

  • Members
  • PipPipPipPip
  • 108 posts
  • Location:Maldon, Essex, UK

Posted 28 May 2011 - 02:43 PM

Hello Jean

Did you get the results of the shoe inserts trial?

I hope you noticed an improvement in the pain in your feet (as if you don't have enough else to cope with!)

Best wishes

#6 uknlv18


    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 152 posts

Posted 29 May 2011 - 12:18 PM

No results yet, but I have finished wearing the inserts and they were of no help at all in my case, and I was told I was wearing the special inserts not the regular ones. No heat added to my feet and definately not very much support. The insoles that came with my shoes worked far better than those did. :(


#7 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,624 posts
  • Location:(United States)

Posted 29 May 2011 - 02:31 PM

That's a real shame, Jean. However, I'm glad you get some relief with the shoes and their particular design.
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#8 HazelTree


    Bronze Member

  • Members
  • PipPip
  • 11 posts
  • Location:Ireland

Posted 07 September 2011 - 03:12 AM

Just got a pair of special trainers delivered yesterday. I tried on my sisters and they felt comfy and spongy lol.. Its not for the fitness aspect, I got them to see if they would alleviate the pain and help when I have to walk outside.. I have calcinosis growing out of the bottom of my foot so I know I'll still have pain with that until it comes out. Hope they help, I'm gonna wear them for the next few days and I'll post back how I get on!

#9 suze932


    Senior Bronze Member

  • Members
  • PipPipPip
  • 39 posts

Posted 11 September 2011 - 03:30 AM

:flowers: Hi Amanda

I have just taken part in the orthotics trial at the Royal Free and they are looking for willing Sclero sufferers who have foot pain. Maybe the insoles will help with your ongoing foot problems. So sorry that you are having so many problems. :temper-tantrum: Hugs and warm wishes . :flowers: