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Biomarker for Diffuse Scleroderma skin has been discovered!


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#21 Amanda Thorpe

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Posted 12 March 2011 - 04:54 PM

Hello Svos

"Scler-o-what-apous? Isn't that close to the sinuses?" :great: Love the "elephant in the room" reference too! :bravo:

What's red velvet cake?

Take care.
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#22 svoss

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Posted 13 March 2011 - 01:24 AM

Hi Amanda,

Ahhhh - red velvet cake ... one of life's delectable moments ... sensous ... rich ... beautiful ... moist ... full of calories (of course) and worth every one!

It's a cake attributed to the Deep South (which are the southeastern) United states. Made from scratch it's fantastic ... there are box mixed out there that are ... great for kids cupcakes. It's basically a chocolate cake with red food coloring and cream cheese frosting. Beautiful at Valentine's day baked in heart shaped pans, cut the layers in 1/2 and a six-layer version is lovely. Also beautiful at holiday ... or for anyone's birthday ... a wedding ... or anytime you want to. One of the parts of making the cake is tapping baking soda over a tablespoon of vinegar ... and letting the two foam into the cake, then gently folding just prior to pouring in the pans.

In south Georgia, they double (sometimes maybe even triple) the recipe, bake it in 10" round pans and resulting in a cake nearly a foot tall.

I can post the recipe if you like.

Svoss

#23 Joelf

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Posted 13 March 2011 - 01:48 AM

Hi Svoss,

Ah, ah, hmm, how gorgeous is that!!! :great:

My gastric juices are working overtime at the thought of it...a cake over a foot tall!! I wouldn't dare make it because we'd have to eat it all! :lol:

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#24 svoss

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Posted 13 March 2011 - 02:08 AM

Hi, Shelley,

Absolutely -- EVERYONE seems to understand and sympathise with rotator cuff surgery ... it's a rough one and even the big 'tough' guys in our physio therapy location cry and passout from time to time.

The hardest part (aside from getting past the physical changes that are/will be coming) was the reaction of my lifetime friends. One took a great interest and spends a good deal of time researching and sharing with me what she learns (wonderful); another has withdrawn somewhat and never wants to talk about it; most have withdrawn almost completely ... friendly, but not interacting like we used to - they're busy a lot recently ... as if they're afraid they'll catch it or I'll die in the middle of a conversation. That's been difficult. I try not to judge them, but have to say my feelings have been hurt. There will be new friends, but gee it's shocking when some of the ones you love so dearly fall away.

And you're right -- out of no where will come this person (I think they're angels, actually :) ) who want to hear about it. My tongue gets tied

The best part is that I have an incredibly supportive husband who really took that "better or worse, sickness or health" thing seriously. He has his days where he has had enough (who doesn't)? But he is so kind, so considerate, so caring -- yet doesn't treat me like a cripple and still manages to find me "sexy." And my grandkids are amazing ... they notice white fingers or nose sometimes before I do, and bring me a blanket or a pair of gloves, grandson comes to 'spot' during the weight exercises or walks with me, baby will 'rub' (aka smear) lotion onto my face and hands. And then they go casually back to their activities or conversation ... , as though it's all just 'normal.' Imagine that.

And how quickly I am learning to reorganize priorities since I've met you all ... laughing with the kids and letting the dishes go, watching the first spring robin with awe, finding beauty in the snow, not minding the snoring of my husband because I'm thankful he's beside me. There are the depressing days, the painful ones where getting out of bed feels impossible and none of the joints work and I can feel the changes that seemed to happen to me over night, that the makeup covers a little less today than it did yesterday, or I forgot the scarf and someone stares horrified at the strange color and texture of my neck and chest. Your positive support and varied input is pulling me out of the fear and enhancing my sense of humor.

What a wonderful 'therapy' and comfort this form is. Thank you for beginning it!
SV xx

#25 Amanda Thorpe

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Posted 13 March 2011 - 05:23 PM

Hello Svoss

You can post the recipe in the Sclero Kitchen, just have a read of the recipe guidelines first! I think I might be trying the recipe for a certain cake and the frosting!

Take care.
Amanda Thorpe
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