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Perceived Parenting Ability and Systemic Sclerosis

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#1 Jeannie McClelland

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Posted 01 February 2011 - 06:14 PM

Perceived Parenting Ability and Systemic Sclerosis. The purpose of this study was to compare perceived parenting abilities in mothers with systemic sclerosis (SSc) based on the subtype of SSc and age group of their children, and to examine how the degree of pain, fatigue and functional ability relates to parenting ability. Poole JL (PubMed) Musculoskeletal Care. 2010 Nov 24 (Also see: Family and Health)

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
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#2 Shelley Ensz

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Posted 02 February 2011 - 12:30 PM

Thank you for this news article, Jeannie. I am always in awe of the tremendous articles that our news teams provides us with each week; it is a steady and nourishing stream of carefully selected information, from the marvelous team that is led by Janey.

Anyway, what I want to say is, I'm very fortunate in that our children were all raised before I was diagnosed with scleroderma. I really can't imagine all the challenges entailed in trying to raise a family while also coping with the endless demands of scleroderma. My sincere "hats off" to every parent who has scleroderma, and to their spouses, too. You have my total admiration for every day that you somehow manage to survive both parenting and scleroderma, together.

Shall we declare a "hats off to scleroderma parents" day? Let's pick a special day and celebrate it, just for them, and use the day to also discuss the special issues they face, and share ideas on how to ease their never-ending extra burdens.

My flowers for parents with scleroderma:

Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 barefut


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Posted 02 February 2011 - 12:39 PM

Janey and Shelley - THANKS! And I'm in for a Parent's Day and discussion thread. I'm sure my sons may have some things to say too.

#4 Amanda Thorpe

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Posted 02 February 2011 - 01:47 PM

"Hats off to scleroderma parents day"

Absolutely! It makes me feel overwhelmed just thinking of contenting with scleroderma and children! I don't know how you parents with scleroderma do it but do it you do, day after day after day. Your children benefit from having such determined, resourceful and inspiring people parenting them.

Take care.
Amanda Thorpe
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