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Narrowing Down To Diagnosis - Pretty Soon I Think

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#1 Jersey-Itch


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Posted 22 February 2007 - 03:13 AM

Hi! In case you don't remember me, I was the one with Leukocytoclastic Vasculitis diagnosis with a continous itchy rash for over 8 months straight.

I found a really good Rheumatologist, but, for a couple of reasons decided to find another one. The new one had a cancellation yesterday and I went to see him. He's even better (and closer) - so I'm going to stay there.

Anyway, a couple of weeks ago, I had another blood test, CT scan for sinus, and chest X-Ray which my first rheumatologist ordered.

The blood tests came back normal, except that my C-Protein was moderately elevated and my white count was moderately elevated as well. Don't think the ANCA was done.

Chest X-ray was normal ... but the sinus scan was not. It contained significant thickening of the sinus wall, and a significantly deviated septum.

At the end of my visit with the new rheumatologist, he suggested that I probably either have Wegener's Disease at a non-threatening stage, or, Cutaneous Vasculitis of an unspecified kind. Yesterday he took another 8 vials of blood, and ordered a contrasting CT scan for my chest (probably because my general practitioner thinks I'm dealing with a bout of Pluerisy).

The Rheumatologist also put me on "Colchicine" which is usually used for preventing flares of Gout, but, apparently is also good at claming these LCV rashes.

Lastly, he told me that I was "in luck" because apparently there's a Wegener's expert in NYC (I live in a suburb) who is also an ENT. So I will also be seeing him in the relatively near future. Eventually, I suspect that he'll operate on the deviated septum, and take advantage of that opportunity to biopsy the sinus.

Questions: Is "C-Protein" part of a blood profile like ANCA or SED rate? Or is it separate and distinct? Anyone have experience with Colchicine?

#2 Heidi


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Posted 22 February 2007 - 04:12 AM


Thanks for sharing your update with us...I was wondering how you were doing. I am glad that you found a rheumatologist who is good and is trying to get to the bottom of what is going on with you. That is great that there is a Wegner's specialist near you if it ends up being needed. I do hope you get the answers you are looking for SOON! Please do let us know the outcome of all of these most recent tests.

Warm wishes,

#3 Sweet


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Posted 22 February 2007 - 06:38 AM

Hi Jersey!

Really good to hear from you and it sounds like you're making progress! Yippee. C-Reactive Protein is a stand alone test as far as I know. I've been a nurse for many years and have drawn many tests and in the facilities I worked it was not part of a panel, but a separate test.

Keep us posted!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#4 ssakar


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Posted 22 February 2007 - 08:00 AM


I have been taking Colchicine since Jan. 9th. I take it 3x a day. I have Scleroderma and was told to take it to help with the tightening of my skin.

I do feel it is helping somewhat.