My 9 yr old just had knee surgery to fix her discoid Meniscus
Posted 18 February 2011 - 08:47 PM
My 9 year old just had arthoscopy knee surgery to fix and repair her discoid meniscus (a congenital birth defect). The surgery took longer than expected because the meniscus tore almost completely off the bone so the doctor had to sew it back down which means for a lot longer recovery time. Now instead of crutches she will be in a wheelchair for a couple months while it heals and in about 2 months they will go back and do her other knee. The Ortho surgeon showed us pics of the inside of her knee and showed us a lot of very "thick" and red areas (her words) which did not coincide with discoid meniscus but something rheumatologic (her words) She also took a biopsy of the synovial membrane and the synovial fluid.
My question is...does anyone here have joint involvement and if so what are the usual symptoms? She has had swelling that wasn't related to the discoid meniscus and the area was hot (in both knees). Her PT also mentioned when she was checking her that it felt "thick" kind of like a balloon.
It's all so weird and my head continues to spin. I don't want her to have anything wrong, but I also know there is something else going on. We just have all these pieces. (Really high ANA and positive Scleroderma test and the above.)
One more thing, last year she had this red blood vessel thingy on her nose that the dermatologist zapped and now a year later it is starting to come back. Is that something?? I know I am really worried and don't want to ignore anything!!
Thanks again for all your help!
Posted 19 February 2011 - 10:13 AM
Firstly here's a big for your little girl and at least the first part of her knee surgery is over.
One of the first symptoms I had in the beginning (I have Limited Systemic Sclero) were very swollen, painful joints, particularly my wrists and knees. My fingers were huge; to give you an example I wear two rings on my thumb and at the worse point I could only get one of the thumb rings on my middle finger where it was very tight. In my innocence I put the joint pains down to over exertion at the gym and like your daughter's knees mine were hot and would stiffen up if I sat in the same position for any length of time. However I would emphasise that joint pain can be caused by many different problems and even with the positive Scleroderma anti bodies it still is by no means conclusive that your daughter will develop the full blown disease. Also one of the most important things I've learnt about Sclero is that it seems to affect all sufferers in different ways so although my joint pains did subsequently turn out to be due to Sclero, it doesn't mean to say that your daughter's will develop in the same way.
I'm afraid I've not experienced a symptom like the red blood vessel on your daughter's nose so can't advise you but we have a link here to Telangiectasia which I hope will be helpful to you. I think that if you're concerned about it the best thing to do would be to go back to your daughter's dermatologist and ask his advice.
I do hope your daughter recovers quickly and easily from her surgery and that the operation on her other knee goes well with no further complications.
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Posted 19 February 2011 - 11:56 AM
You are a wonderful mom and very attentive to your daughter's needs.
There are rheumatologists who (also) specialize in juvenile rheumatologic issues, so you may want to
seek one out for your daughter. Once she has been examined by a rheumatologist,
he/she will be able to make recommendations for treatment, if deemed necessary at this juncture.
In the meantime, please don't overwhelm yourself with "too much information", because it really CAN make the head spin!
I am sending hugs for you both and asking that you please keep us posted?
Posted 19 February 2011 - 12:59 PM
I am glad your daughter's surgery was a success although her recovery time is now going to be longer than initially expected.
We have information about juvenile scleroderma you may find helpful.
I appear to be unusual in that I don't have joint pain, mind you I have enough pain in my feet to more that make up for it!
Take care and keep posting.
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