Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Sjogren's and Earache

  • Please log in to reply
6 replies to this topic

#1 Robyn Sims

Robyn Sims

    Silver Member

  • Members
  • PipPipPipPip
  • 166 posts
  • Location:Melbourne Australia

Posted 20 February 2011 - 03:45 AM


I have had an enquiry from a lady in Melbourne, Australia who has been diagnosed with Sjogren's disease and is experiencing constant earache. I am responsible for answering telephone calls for Scleroderma Victoria.

Her rheumatologist has told her that this has nothing to do with her Sjogren's disease, yet she firmly believes it is. She has been sent to a Ear, Nose and Throat specialist who cannot find any problem with her ear.

As this lady does not have access to internet I am making this post on her behalf.

Would be very grateful to have some antecdotal evidence for her.

Thanks :emoticons-group-hug:

#2 uknlv18


    Silver Member

  • Members
  • PipPipPipPip
  • 152 posts

Posted 20 February 2011 - 08:47 AM


Well I am not sure if it is related or not as I am newly diagnosed with Sjogren's but I get severe ear pain quite often and I am always positive it is an ear infection but when I go to my general practitioner there is no infection. So I have been trying various home cures for it and can suggest things that worked for me.

I rub Ibuprofen gel around the outside of my ear, down the neck and in front, basically where your glands are by the ear. And then lie on a heating pad or hot water bottle, this has so far helped to get rid of the pain for me. Pretty much anything warm on the ear is helpful, and also try to keep any air going into the ear as well.

I hope and she gets to feeling better very soon.



#3 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,696 posts
  • Location:in the Rocky Mountains of the USA

Posted 20 February 2011 - 12:26 PM

Hi Robyn,

I have Sjogren's and get earaches, but who knows if the two are related. Neither the articles on our site nor on the Sjogren's Syndrome Foundation mention any ear involvement.

Other causes of mine have been a little build-up of wax on the most-affected side (already ruled out for her) and my habit of clenching my teeth at night or when I am stressed. Maybe the lady could see her dentist? There are many medications which can cause ear problems (ototoxic medications). I have pretty severe tinnitus (ringing in the ears) and had developed the unconscious habit of rubbing my ears which was causing a sort of earache. It was hard to break the habit, but doing it helped. The other thing I can think of that might help is making sure she drinks as much water as she can. Even being slightly dehydrated affects so many things.

Earache is no fun. I hope she can find some answers and relief.

Give the lady our kind regards and best wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#4 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,910 posts
  • Location:West Sussex

Posted 20 February 2011 - 12:42 PM

Hi Robyn,

I'm not sure if this is any use, but could your lady be suffering with toothache caused by Sjogren's dry mouth? There's a link here.

I have suffered with a dreadful aching pain which I was convinced was an ear infection but subsequently turned out to be an abcess on my tooth. The pain was excruciating and made my ear throb (at one point I would have happily considered amputation at the neck to relieve the pain!! :emoticon-bang-head: )

As Jeannie has said, perhaps a visit to her dentist might help her?

I do hope she gets some relief from the pain and soon feels better.
Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#5 docmartenmom


    Senior Bronze Member

  • Members
  • PipPipPip
  • 57 posts
  • Location:NY

Posted 20 February 2011 - 10:44 PM

Hi -

I also have Sjogren's and ear aches - not sure if they are directly connected, since I have other diseases going on, but when the eara che hits it's awful...


#6 Robyn Sims

Robyn Sims

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 166 posts
  • Location:Melbourne Australia

Posted 21 February 2011 - 07:47 AM

Thank you to all who helped with my query.

The lady was very pleased to find that others experience ear pain and that she is not going crazy. I passed on your tips and advice.

Now I have learned something also. What a great resource this forum can be.


#7 KayTee


    Senior Bronze Member

  • Members
  • PipPipPip
  • 84 posts
  • Location:Northern California

Posted 24 February 2011 - 11:40 PM

I agree with the tooth to ear connection. I had ear problems for the first time 2 months ago but it turned out to be a gum infection from scleroderma related issues causing the ear ache.

Good luck.
Kay Tee