Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

itch


  • Please log in to reply
11 replies to this topic

#1 dot

dot

    Newbie

  • Members
  • Pip
  • 6 posts

Posted 25 February 2011 - 04:54 PM

Dear forum friends,

This may be nothing at all to do with scleroderma, but I thought I'd ask if anybody else has had a similar symptom. For a few months I have had a persistent itch across my tummy and lower chest. There is nothing to see - no rash or change in the skin (except for scratch marks). It doesn't make any difference if I wear cotton or synthetics next to my skin and I have tried different products for clothes washing and different shower gels without any benefit. The itch often gets worse as the day goes on. Does this sound familiar to anyone? I told the rheumatologist about it at my most recent appointment but he seemed unsure what it might be, so maybe it's just a temporary problem which will go away in due course.

Regards to all,

dot

#2 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 25 February 2011 - 05:08 PM

Hi Dot,

Here's a link to some articles on itching and another to xerosis (dry skin), which can cause/make itching worse. One of the things that helped me was eliminating all fabric softeners in my laundry. Sounds pretty goofy, but it did help. I think itching is another one of those things we all get at some time or another. For some folks it seems to come and go, for others it lingers like an unwanted guest~ It can definitely drive you crazy.

Warm wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#3 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 25 February 2011 - 05:44 PM

Hi Dot,

I think there are few more annoying and irritating things than persistant itching so I really sympathise with you! Also the more you itch, the more you scratch, so the more you itch, etc!

Thank goodness I haven't experienced this to a large extent myself but my poor mother has been nearly driven beserk by continuous itching (hers was not related to Scleroderma but worried her a good deal none the less!) and eventually, after several fruitless visits to her general practitioner, she was referred to a dermatologist who gave her some steroid cream which she used and it did eventually clear it up, although it took quite a long time.

I do hope your itching is a temporary problem as you've suggested but if it continues perhaps you could be referred to a dermatologist who might be able to get to the route of the problem.

Here's hoping you're able to find a solution soon and get some relief.

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#4 Lynnie

Lynnie

    Silver Member

  • Members
  • PipPipPipPip
  • 173 posts
  • Location:UK HULL EAST YORKSHIRE

Posted 25 February 2011 - 09:40 PM

Hi There Dot

I too can sympathise with you on the subject of itching :wacko: I get bouts of it from time to time and it drives me crazy, I am having a bout right now in places I'll leave to the imagination :wacko: we have ruled out thrush(candida)and no matter what I do it is still itching away! :emoticon-dont-know:

Are you on medications that started at the same as your itching did? If so, it's possible it's a drug reaction as a lot of the drugs we are given can have this side effect, if it is see your doctor, perhaps they can change them for you,

I have been given anti hisatamine cream/meds to see if it settles it down for now

Hope you find your solution soon as its very irritating being irritated :nervous:
Take care
Lynn

#5 judyt

judyt

    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 641 posts
  • Location:Auckland, New Zealand

Posted 25 February 2011 - 11:15 PM

Hello Lyn,
I have had itchy skin a lot over the years, but just at the moment I seem to be on top of it - unless of course it has decided for itself to stop!!

About 18 months ago I was talking with a friend who has Lupus, she was talking about flares etc. and mentioned in particular that she is sensitive to sulphur and it makes her itch. There are sulphur preservatives in lots of modern foods, particularly meats and fruits so I decided to avoid them and see what happened. It took a while and lots of reading labels in the supermarket but now I have found alternatives to everything I used to eat. The main thing I don't have any more and can't substitute is ham and bacon. Never mind I use cooked chicken instead. Chicken sandwiches and salads are just as yummy.

The result of all this is that I don't have much itching any more. I do also avoid any additives in the laundry like softeners and the shower 'soap' I use has no soap in it. I think you will know what I mean, there are prescription products as well as over the counter bars which fall into this category.

Itching is such an unsettling thing and I hope you can get on top of it soon.

Judy T

#6 uknlv18

uknlv18

    Silver Member

  • Members
  • PipPipPipPip
  • 155 posts

Posted 26 February 2011 - 10:32 AM

Hi Lynne

I get itching all the time as well, it is on my forearms mostly, but I do get it on my tummy and abdomen. I double rinse everything to make sure I get all the soap out of the clothes which has helped. And my arms it is from touching wood like the wood on my computer desk, so I cover it with a cloth and that helps. Some medications (especially the ones for pain) can also make you itch.

Hope things get better for you soon!

Cheers
Jean

#7 dot

dot

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 6 posts

Posted 26 February 2011 - 01:48 PM

Thanks for all your replies. Nobody seems to recognise my itch as a feature of scleroderma or related conditions, so maybe it's just an unrelated irritation which will clear up in its own good time. I was a bit worried it might be to do with liver or kidney problems, which I don't think I have (yet) and don't want to have! Best wishes to all.
Dot

#8 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 26 February 2011 - 02:06 PM

Hi Dot,

I could be wrong, but I'd guess that any association with scleroderma your itching might have could be sicca syndrome (dryness) or remotely and unlikely, something like small fiber neuropathy rather than liver or kidney problems. I'm with you on absolutely not wanting those!

I've thought of another home remedy to do with laundry that a nurse friend taught me. Not only does she double-rinse her wash loads, she puts a cup of white vinegar in the rinse water. It seems to take out all the residue of laundry detergent which she finds really irritating.

Warm wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#9 uknlv18

uknlv18

    Silver Member

  • Members
  • PipPipPipPip
  • 155 posts

Posted 26 February 2011 - 07:19 PM

The white vinegar works a treat, but you do have to rinse twice as it can leave a bit of a lingering odour, so if you don't mind smelling a bit like pickles then one rinse is fine hehe. Also if you go swimming in chlorinated water a lot, if you soak your suit in water with a couple tablespoons of white vinegar, your suit will last longer. I found this out when I was going swimming every day and my suits kept getting very thin in places, that the chlorine deteriorates the material, and my aunt told me about the vinegar cure and my suits lasted a long time! :emoticons-line-dance:

Cheers
Jean

#10 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 27 February 2011 - 02:35 PM

Hello Dot

I has itching related to scleroderma at the beginning of the illness where the skin then tightened. It was unbearable and relentless alleviated by steroid cream, steroids and antihistamines. Obviously I don't know what's causing your itching but I do know that itching can be related to scleroderma...unfortunately! Boy I sure am glad them itchy days have gone bye-bye...oh yeah Jeannie's suggestion about not using any type of fabric softener, including those that go in the dryer made a real difference and I still don't use them, I have learned to love static!

Take care and keep posting.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#11 queenie

queenie

    Senior Bronze Member

  • Members
  • PipPipPip
  • 46 posts
  • Location:LIVERPOOL , ENGLAND

Posted 27 February 2011 - 03:23 PM

Hi Dot,

I too have itchy phases across my chest and my neck and at times in my thighs. when I told my general practitioner I was given strong antihistamines which I take when I have a flare up and they do seem to work and get the itching under control however I do not know if it is or is not related to the scleroderma.

Hugs and loves :emoticon-hug:

Queenie.

#12 Robyn Sims

Robyn Sims

    Silver Member

  • Members
  • PipPipPipPip
  • 166 posts
  • Location:Melbourne Australia

Posted 11 March 2011 - 11:54 PM

Hi all,

When my daughter was in about the third year of being diagnosed with scleroderma her itching was so bad. I would watch her try to resist the urge to scratch. It must be terrible.

I know many people in the early stages of scleroderma who itch. My daughter tried all sorts of creams, cotton clothing, etc. It eventually faded away after about one year.