Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

Has anyone ever experienced this?


  • Please log in to reply
9 replies to this topic

#1 jd2011

jd2011

    Newbie

  • Members
  • Pip
  • 7 posts
  • Location:Manchester

Posted 02 March 2011 - 05:37 PM

Hi Everyone,

I was just wondering if anyone has ever experienced this kind of problem with their hands. It has only ever affected one finger each time it has happened but it starts off itching really bad and then the skin literally starts to peel away a few seconds later. It ends up looking like a burn and always becomes infected. So far it has always happened with the "ring fingers" and in the same spot each time.

I know people with Raynauds can get digital ulcers, but could this also be as a result of having Raynauds? Or do you guys think it could be something completely different?

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,275 posts
  • Location:Minnesota

Posted 02 March 2011 - 10:10 PM

Hi JD,

Does the skin start to peel away because of scratching it?
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 jd2011

jd2011

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 7 posts
  • Location:Manchester

Posted 03 March 2011 - 01:29 PM

The first time it happened I started scratching it and the skin started to peel away, so the other times after that I didn't scratch it because I thought thats why it started peeling but no...the skin still started to peel away. :blink:

#4 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 03 March 2011 - 02:17 PM

Hi JD,

Hmm, I have Raynaud's and although thankfully I've never had ulcers, I have had splits in my finger tips particularly around the nail area. They form hard ridges which do eventually peel but nothing as extreme as you're describing.

We have a link here to fingernails, and skin problems which I hope will give you more information.

Perhaps next time you see your doctor/rheumatologist you could explain the problem and they hopefully might be able to give you something to soften the skin and stop it peeling. I've also applied udder cream to the tips of my fingers and around the nail bed and cuticles.

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#5 jd2011

jd2011

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 7 posts
  • Location:Manchester

Posted 03 March 2011 - 02:41 PM

Hi Joelf,

Thanks for the link. I too have had splits in my finger tips in the past, however this doesn't happen at the finger tips it happens near my knuckles. Also, the skin never appears to be dry or anything, its perfectly normal. It just happens out the blue which is what is so confusing about it. Thanks for the tip on the udder cream as well.

#6 queenie

queenie

    Senior Bronze Member

  • Members
  • PipPipPip
  • 46 posts
  • Location:LIVERPOOL , ENGLAND

Posted 06 March 2011 - 03:42 PM

Hi JD11,
do you suffer from swelleing in your fingers? the reason I ask is because I suffer with this on both my index fingers exactly were you would wear a ring below the first knuckle and base I do not wear rings on these fingers however I think it may be down to the pulling and stretching in the skin being really tight and I too suffer with raynauds.
hugs and loves :emoticon-hug:
Queenie

#7 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 06 March 2011 - 03:54 PM

I wonder if maybe an allergy or sensitivity to metal (you mention rings) could be the problem. I have a cousin who can't wear a watch or rings because of this and the peeling sounds very like what he experiences.
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#8 lizzie

lizzie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 497 posts
  • Location: UK

Posted 06 March 2011 - 05:47 PM

Hi Jd, this sounds really like a problem I had on a couple of occasions. When he looked at my finger the rheumatologist thought it could possibly be due to ischaemia (lack of blood flow)to the finger, but got the dermatologist to have a look at it as well. She was convinced that it was a form of dermatitis, most likely cause by an allergy to something.
Anyway, whatever it was it eventually healed up on both occasions and I have not had any trouble in teh last 3 years since then.

Lizzie

#9 jd2011

jd2011

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 7 posts
  • Location:Manchester

Posted 07 March 2011 - 06:50 PM

Hi queenie, no I don’t suffer from any swelling in my fingers but like you it does happen where you would normally wear a ring also, and I too don’t wear rings.

Jeannie - Sorry I should have said, I don’t wear rings at all I was just saying that it only happens on the “ring fingers” for some weird reason.

Lizzie - I am still in the process of actually getting a referral to see a rheumatologist but when I do I will be sure to ask them what they think. Another thing that made me think it was caused by Raynaud’s was that around the outside of it is the same purplish colour that my hands normally go when cold. Did this happen to you also?

#10 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,275 posts
  • Location:Minnesota

Posted 08 March 2011 - 12:42 PM

If it happens after exposure to cold, it could possibly be a condition called "cold urticaria". See Mayo Clinic: Cold Urticaria. Urticaria causes sudden itching and hives in response to cold. Usually it is from temps under 40 F.

My mother had cold urticaria. Usually it is much more dramatic than what you describe, affecting larger areas (like both hands at once, suddenly swollen and itching with large hives), but perhaps its possible to happen in a lesser extent. The trigger for cold urticaria is, of course, exposure to cold, so if you weren't exposed to cold (water, weather, freezer) immediately beforehand, then that probably isn't it. You may also be encountering things like a bug bite or nettles (gardening), allergies, whatever. It is probably the pattern of when/how it occurs that will help most in either avoiding it or getting a diagnosis (or both).
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.