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calcinosis gone to pot


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#1 chockers

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Posted 05 March 2011 - 08:05 AM

Hi Folks

Guess what I have done...I picked the calcinosis on my finger to get it to pop ha ha! Now I have a big white round ring which doctor says is infected, you can hardley see any redness. As I have a lot of antibiotics for acne rosacea he has put me on double as they don't work well and may be not the best ones to be on. There are issues with the methotrexate.

He thought it was a whitlow (felon, infection in a finger tip) but it's not and that's on my notes. Now it's on the tip of finger and had a go at covering it, the plasters made it sweat so I will have another go at finding something else.

Now what do I do to stop it ulcerating? I also have Raynand's with the tips of fingers being cold. Yes I am always banging it even with gloves on!

Is there anything I can do?

Thanks Chris

#2 Jeannie McClelland

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Posted 05 March 2011 - 10:50 AM

Hi Chris,

What a nuisance! I tell you, you don't appreciate your fingers until some thing goes wrong~ I probably would have picked the lump too. I get bad finger splits and have a real hard time leaving those alone too. :)

Here's a link to the page on Digital Ulcers with various treatment options and tips from folks who get them.

I've never had anything ulcerate, but I try to be really careful about getting my splits healed up as quickly as I can and protecting my hands as much as I can. I have Raynaud's too and try not to let my hands get too cold or cold for too long. Getting my hands damp is a real no-no. I guess what I'm trying to say is I try to keep the skin intact (it's the barrier to infection) and keep the circulation as good as I can.

I hope you can get it healed up soon!

Warm wishes,
Jeannie McClelland
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#3 Joelf

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Posted 05 March 2011 - 02:05 PM

Hi Chris,

Although perhaps picking at the calcinosis lump was not the best thing to do, I can empathise; the words "pot", "kettle" and "black" come to mind as I am absolutely the world's worst picker of anything that looks as if it could be picked and find picking spots etc. irresistible!! :rolleyes:

I've thankfully never had calcinosis or ulcers but I do get Raynaud's and as Jeannie said, I try not to let my hands or my core temperature get too cold which certainly makes it worse.

I think you will have to be extra vigilant about accidentally knocking your fingers and perhaps (if you can bear it) wear cotton gloves with a soothing cream on your finger tips. I realise it's almost impossible but whilst they're healing try not to get them wet......a good excuse not to do the washing up!! :lol:

I do hope they heal soon and aren't too painful.

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#4 Amanda Thorpe

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Posted 05 March 2011 - 03:22 PM

Hello Chris

Long time no post! How are you getting on apart from the calcinosis? Can't add anything as I have never has calcinosis but do hope it resolves itself soon.

Take care and keep posting.
Amanda Thorpe
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#5 chockers

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Posted 05 March 2011 - 04:32 PM

Hi Amanda
Yes I keep forgetting to post .As I like think theres nothing wrong ha ha .
Do you rembember me I met you in 2009 agm .I am going to miss this year and come 2012 the 30 yr one
As been twice .

So how are you .

love Christine chris the little lady

#6 suze932

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Posted 06 March 2011 - 08:32 AM

Hi Chris

Unfortunately I too am a member of the calcinosis/digital ulcer club. I have a finger-tip ulcer which started in 2009 (pitted skin) and which has been erupting/infected for about 8 or 9 months now, in spite of rounds of antibiotics. The core keeps reforming but, like you, covering it makes it sweat and 'pound' with pain so I try to keep it as dry as possible. Easier said than done!

And why is it that until you have an ulcer you never seem to bang your fingertips? I seem to be doing it all the time, which makes things worse.

I returned to my general practitioner in desperation this week and she repeated the last antibiotics for a further fortnight (doxycycline) but admitted that if this doesn't work then she will not know what to do next as her knowledge of Scleroderma and Raynaud's is lacking!

Sending you good wishes for speedy healing.

Sue :temper-tantrum: :flowers:

#7 Jeannie McClelland

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Posted 06 March 2011 - 09:56 AM

Hi Sue,

Could I humbly suggest you recommend the International Scleroderma Network and in particular our extensive medical reference pages to your general practitioner? All you need to give her is the sclero.org web address. Our articles are carefully researched from mainstream medical journals and a good source of information in an easy to access form. I know most of my doctors visit the sections of particular interest to them and my general practitioner who now has several scleroderma patients (referred to her by our local scleroderma centers of excellence) also uses us to expand her knowledge of the disease.

Best wishes,
Jeannie McClelland
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#8 Amanda Thorpe

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Posted 06 March 2011 - 01:37 PM

Hello Chris

Of course I remember meeting you! I have has a bit of a wild sclero ride since seeing you last, some good, some bad and some downright ugly! Look forward to seeing you again.

Take care and keep posting.

Hello Sue

Hmm you shouldn't be suffering because your doctor knows nothing about scleroderma, in addition she should be finding out about it for your benefit. Jeannie's idea is a real good one.

Take care and keep posting.
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#9 chockers

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Posted 07 March 2011 - 07:36 AM

Hi Sue

No this was not my normal doctor. He looked at my finger but he said it was a whitlow. They have 5 minutes per person per visit so no way would he go though my notes. I did say too him it was scleroderma realted.

Chris

#10 chockers

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Posted 07 March 2011 - 07:41 AM

I can remember you well and would know you if I saw you, even if I saw you just the once.

I did not come to the AGM last year as I felt I knew enough for now and had been to the rheumatoid groups as well, but will come to the AGM next year 2012 rather then this year, as it's the 30 year thing.


Hope you are well.
Christine

#11 omaeva

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Posted 07 March 2011 - 06:18 PM

Oh goodness I do this all the time. My fingers are just full of Calcinosis and has become bad enough to where I am now having surgery. Getting them to stop ulcerating is hard. I suggest keeping them clean and dry, use triple antibiotic ointment, and try not to pick to them. Though I have to admit, I have one on my thumb that popped on it's own and it's been a few months now. Makes it very hard to do dishes etc with it. Good luck!

#12 Robyn Sims

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Posted 09 March 2011 - 08:07 AM

Hi all,

Calcinosis, what a pain!! My daughter was complaining that she had picked her finger and it got infected. When I looked at it I realised she had her first one (calcinosis that is), and I hope it's the last. (wishful thinking).

Her specialist explained that it was like gristle, not boney. Also she was told that if it was removed surgically it would more than like recur anyway. It is healing well, but like you have all said, bandaging makes it sweat.

Good luck with the healing. I know it can take so long.

By the way, hope your seminar goes well Amanda and I also hope that you are starting to smell the Spring breeze and the blossums are peeking!

#13 Amanda Thorpe

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Posted 09 March 2011 - 09:38 AM

Hello All

I have never experienced calcinosis so don't know what the urge to pick at it must be like but please bear in mind that just because it works for others it may not work for you! Have a read of our calcinosis resources, unfortunately Robyn's right that even after surgery it can come back and there is no particularly successful treatment for it.

Take care.
Amanda Thorpe
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#14 Jeannie McClelland

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Posted 09 March 2011 - 10:02 AM

I need to amplify Amanda's warning - we absolutely can't put up a post advocating a method of self-removal. The danger of infection is much too great. To the some extent we also need to be careful about soaking solutions. There's controversy in the medical world about such things as hydrogen peroxide and alcohol in 'soaks' because they can actually delay healing (the hydrogen peroxide and alcohol in sufficient amounts to be anti-bacterial also damage healthy tissue) and as for betadyne, well that contains iodine and there are many people who are allergic to it (me for one :( ). If you want to post about methods of applying an anti-biotic, please make sure you make it clear it is an applicator you were talking about. A 'syringe' to many people means the whole assembly, including a needle, rather than just the barrel and plunger. In some places a topical ointment may come with an applicator tip, in some other places a doctor has to order it. Lots of variation~

So check out the great link Amanda gave you. And, whatever you do, be absolutely scrupulous about keeping any open wound clean.
Jeannie McClelland
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#15 chockers

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Posted 18 March 2011 - 05:25 PM

Hi Folks.

Well, I've been to the nurse today.
She says my calcinosis is the biggest she has seen...wow.

It has not got a hole in it. I have been swimming this week with 2 plasters on it. I wash my hands but don't soak them and I also keep gloves in my pocket.

Every now and then something rears its head; No real diagnosis, apart from overlap rheumatoid arthritis and scleroderma.

I've also been told to rest more. ME!!! Doing too much....Ha! christine

#16 Amanda Thorpe

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Posted 19 March 2011 - 04:05 PM

Congrats on having the biggest the nurse has ever seen! :emoticon-congratulations:

Take care.
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#17 chockers

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Posted 19 March 2011 - 05:07 PM

hahahahahahahaaaaaaaaaaaahhhhhhhhaaaaaaa :emoticons-line-dance: :emoticon-crying-kleenex: :yes:

I don't care!

Christine

#18 chockers

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Posted 04 April 2011 - 08:00 AM

Update

I have cancelled swimming until May. I now wear a mepore dressing on the end of my finger as that's the most comfy thing to wear. I keep it on most of day, cooking I just put latex gloves on, I just pop a glove on for messiy bussness and I wash my hands with the finger out of way. Washing up and cleaning I wear rubber gloves.

It has changed a bit and now it looks like there's a bit more to come out, it's sore, painful to touch. It does not stop me from doing anything apart from swimming.

I might buy a cast to cover it and go swimming but I have child like hands so won't be supprised if they are too big?

I suppose I will be like this for a while?

Christine :happy-dance:

#19 suze932

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Posted 10 April 2011 - 01:59 PM

Thanks for the advice. :thank-you: My finger ulcer/calcinosis is still there, even though I had been hopeful that it was on the way to healing. I too have avoided swimming until it is completely healed as I tended to use the children's pool (it's warmer) to avoid Raynauds' attacks but am afraid that the chlorine won't have killed off all the bugs/bacteria which could cause an infection. I am keeping it scrupulously clean, dry and covered, although this is easier said than done!! :fairy:

On 4th course of antibiotics (recommended by Royal Free Hospital) this week to see if that will have any effect but will telephone the specialist Sclero nurses for advice also. I took the online advice and gave my General Practitioner the Scleroderma Society comprehensive info leaflet - at least she won't be able to say that she knows nothing about Scleroderma when I next visit her. :unsure:

#20 inkedup

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Posted 19 April 2011 - 03:40 PM

I have a lump of calcinosis on my thumb. It's got quite sore (and yes don't you always bang it when normally you wouldnt!) I've just had to give up my nurse training because of all the handwashing, and this lump has got bigger as a result. The end of my thumb is a bit swollen, and there is a black centre and I'm not sure what this is. I had a gangrenous ulcer once in my finger, but apart from severe Raynaud's I've not had a problem since. Has anybody else had this?