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calcinosis gone to pot


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#21 Jeannie McClelland

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Posted 19 April 2011 - 05:07 PM

hi Inkedup,

Welcome to the Forums. Y'know, I think I'd get that swollen thumb looked at. The black spot in the center sounds ominous.

Best wishes,
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#22 Amanda Thorpe

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Posted 19 April 2011 - 05:54 PM

Hello Inkedup

Welcome to the forums! Please get your thumb looked at! I have foot ulcers and ignored the first one for quite awhile and it just got bigger and bigger and more painful. The moral of the story is these things won't go away on their own!

Yes, if you have anything painful anywhere you are required to knock it again and again and again...and again! :lol: Why is one of life's great mysteries like where do all the odd socks go? :emoticon-dont-know:

What's the inspiration behind your name?

Take care and keep posting.
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#23 Joelf

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Posted 20 April 2011 - 01:28 AM

Hi Inkedup,

Welcome to these forums!!

Ooh yes, your thumb sounds very painful and unpleasant; as Jeannie and Amanda have advised, I would definately get it looked at double quick by your doctor.

I do suffer with Raynaud's but thankfully have not had any Digital Ulcers or Calcinosis; I do hope I don't have that joy to come!! ;) :lol:

Do please keep posting and let us get to know you. :)

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#24 uknlv18

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Posted 20 April 2011 - 04:30 AM

Hi Inkedup

Welcome to the forums!

And I would guess it is tattoos behind the name Amanda :P

Jean

#25 chockers

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Posted 22 April 2011 - 03:48 PM

Today calcinosis
Another lump popped out ha ha now have a small one. Christine

#26 suze932

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Posted 24 April 2011 - 08:32 AM

Hi

Wishing everyone a Happy Holidays on this glorious day. Makes it easier to look on the brighter side. On the brighter side my calcinosis/digital ulcer seems to be diminishing in size, although keeps on erupting/infecting, despite my best efforts to keep it scrupulously clean and covered. These things take time I tell myself, but this one has been especially pesky, it started in 2009! :temper-tantrum: However, I can already feel hard pits on the tips of two other fingers so I s'pose it's not done with me yet!

Patience is a virtue that Scleroderma is teaching me in so many ways!


Hugs to all and thanks for this great site.
Suze :emoticon-hug:

#27 punydeb

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Posted 24 April 2011 - 04:33 PM

I'm sorry about the troubles, and I can so relate. In addition to bumping all the time, my fingers and toes swell so badly at night that any tiny cuts or hangnails I might have will constantly split open over and over and over again. I've even had an entire nail bed split from swelling. Then the Raynaud's really hinders healing. It's a vicious cycle we're in. Isn't it?

::sigh::

My toes look like purple Vienna sausages crammed in a can. Lovely. Good thing I can't feel them most of the time....

#28 Amanda Thorpe

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Posted 25 April 2011 - 02:23 PM

Hello Suze and Punydeb

Oh ladies you have my sympathies! I have had foot ulcers now since December and I thought that was long enough...obviously not!

Yes if it's there you have to bang it endlessly, at least with ulcers on the feet I am less prone to this, with digital ulcers this must be well...endless!

Patience...ah yes a requirement of being a sclerodermian!

Take care and keep posting.
Amanda Thorpe
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#29 inkedup

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Posted 03 October 2011 - 02:25 PM

Hi, back again.

I didn't realise I had any replies until today!! Yes, inked up as I'm covered in tattoos!

My calcinosis eventually erupted and grew out my thumb like an extra appendage. I looked like I had chalk coming out of my thumb. Now it's closed over and I can feel more in there. Glad I don't get ulcers on my feet like some of you guys though!

Lisa.

#30 chockers

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Posted 04 October 2011 - 04:13 PM

I looked at my calcinosis on x ray.

I have a finger full of calcium, loads of it, so getting a hard bit out does nothing as I have a mountain more to come out.

Christine

#31 Amanda Thorpe

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Posted 05 October 2011 - 04:57 PM

Hello Chockers

Sorry about the finger, are they going to do anything or just wait and see? It must be rather painful?

Take care.
Amanda Thorpe
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