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Gluten Free Diet

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#1 kris52770


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Posted 18 March 2011 - 04:53 PM

Hi Everyone, I read that some autoimmune disease may be triggered by gluten. I am sure this is an old topic but was wondering if anyone has tried this with success.
Best wishes to all.
Christine :emoticon-dont-know:

#2 debonair susie

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Posted 18 March 2011 - 07:18 PM

Hi Kris,

You may be thinking of Celiac Disease. My hubby and I happen to have a great-grandson who has this and is better controlled on a gluten-free diet.
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#3 Margaret


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Posted 18 March 2011 - 09:00 PM

Hi Christine ,

Gluten free and casien free diets are very popular among many parents who have autistic kids.....buying into the gut/brain concept. It can be a very expensive diet and there are blood tests that can be done to find out if you have CD. The *Golden* test is a biopsy, by Endoscopy, BEFORE you start the diet because that will show changes in the duodenum consistent with CD. If it is positive for CD, then going on the diet will allow the mucosa to return to normal. I have not read anything where going on the GF and/or CF diet has helped with autoimmune diseases in general.

Take care, Everyone.

#4 Joelf


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Posted 19 March 2011 - 02:58 AM

Hi Christine,

Like Margaret, I've never read anything about gluten free diets helping with autoimmune diseases.

A well balanced nutritious diet is important for everyone, but even more so for people with Scleroderma or other autoimmune problems.

I can empathise with you, as when I was first diagnosed I was constantly looking for answers and any reason that I may have developed Sclero, but unfortunately nothing about this bizarre disease is straightforward and even the specialists I saw were unable to pinpoint the cause.
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#5 Margaret


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Posted 19 March 2011 - 07:26 AM

Hi Christine ,

A friend of mine (in her mid 50's) was diagnosed with MS several years ago and decided to go on a strict diet of *normal foods*, as she puts it. She dropped all prepared foods that she couldn't pronounce the ingredients (chemicals and preservatives), dropped all drinks with artificial sweeteners and Asparatame in them, and went organic when she could afford the produce. She has done remarkedly well since doing that and has not progressed since diagnosed.

I don't know if MS is considered an autoimmune disease or not, but just eating healthy can be very beneficial to everyone. So many of us have grown up with prepared food that the idea of cooking a *home cooked meal* is very daunting.....it doesn't need to be.

Take care, Everyone.

#6 Amanda Thorpe

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Posted 19 March 2011 - 04:18 PM

Hello Ladies

Let me echo what Jo has said about diet:

In general, most doctors recommend that scleroderma patients follow a normal, well-balanced diet , without the addition of any herbs, vitamins, or minerals. Do not cut out any food groups from your diet, nor go on any "cleansing" diets, since this may accelerate the disease process.

You can read more about diet here.

Take care.
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#7 judyt


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Posted 19 March 2011 - 06:44 PM

I thought I would add my 2cents worth of opinion to this topic.

Firstly, I always knew that SOMETHING was wrong and over time tried almost every dietary regime known to man. Nothing made a bit of difference, and in fact I was trying out being gluten free at the time when I had a crisis which took me to the Emergency Room and ended with my diagnosis of CREST.

Secondly, our daughter and I always knew there was SOMETHING wrong for her too BUT in her case being Gluten Free has made the difference - she is better now than she has ever been. She is coming up 36 now and I had been trying various remedies since the day she went off her food at 15 months of age.

My conclusion is that we both already had Autoimmune disorders. Mine had nothing to do with diet and hers does. You could say that Gluten caused her disorder to manifest itself but the genetic tendency was already there and in my case it wasn't.

Warm hugs from downunder.

#8 Shelley Ensz

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Posted 19 March 2011 - 09:07 PM

As it happens, there does seem to be some sort of relationship between gluten sensitivity and systemic scleroderma. In fact, we have an entire section on it on the main site. There is increased incidence of Celiac disease in scleroderma patients, but I think the jury is still out as to whether that is cause or effect.

People who are sensitive to gluten are often also sensitive to casein (a protein in milk) and soy protein, because all three proteins are nearly identical. So, some people who just give up gluten and are still sick may find that they also need to eliminate casein (milk and milk byproducts) and/or soy (but not soybean oil) as well. If a person with scleroderma has gluten sensitivity, don't expect it to "cure" scleroderma to go on a strict gluten-free diet, but do expect that it might help reduce overall inflammation and perhaps stabilize some bowel or gut issues, by staying on it long term.

That's all IF you are gluten sensitive. You can go through a lot of testing or just try a real gluten-free diet for a few weeks to see if you notice any difference. Since most people have absolutely no idea how many foods (including spices) contain gluten/casein/soy, the only safe way to go about it is to eat pure, unadulterated fruits, vegetables, and totally unprocessed meats (with no flavorings added) for a trial.

It is easy to do but hard to figure out and extremely hard to avoid when eating out, and it takes a lot of dedicated study to do it right. If you don't do it right, of course, you have actually no idea whether it is truly helpful (or not) for you to avoid such foods. Many people think it means just avoiding bread and cereals, and don't realize it also means nearly all canned, boxed, and frozen foods as well. (They often even add flour to the lines they make frozen strawberries on before packaging them. So, this is not child's play.)

See Autoimmune Diseases: Gluten Sensitivity, Celiac Disease and Gluten Sensitivity, Celiac Disease, and Scleroderma.
Warm Hugs,

Shelley Ensz
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#9 Margaret


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Posted 20 March 2011 - 09:15 AM

Hi Everyone,

Thanks for those links, Shelley. I guess I should go to the Medical section more often. :emoticon-dont-know:
Gareth (because of his autism) has been tested so many times over the years for CD, both by blood work and biopsy. He has always tested negative. My biggest problem with even trying to implement the GFD for him is that there are so few foods that he eats.

Take care, Everyone.