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Newly Diagnosed - first post


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#1 Chopper

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Posted 01 April 2011 - 12:07 PM

Hello All!

I've skimmed through a few threads and I think I've found the right forum! What kind and informative members!

I am a 37 year old female. I was diagnosed this week with limited scleroderma and autoimmune hypothryoidism. I was diagnosed celiac the past August. What led to these diagnoses was gallbladder removal in the fall after 1 1/2 years of chronic mild pain, followed by gastritis and worsening gastroparesis. I had a nagging feeling the there was an underlying cause so I went searching for it and this is what we've found. At this time I don't have skin issues other than general dry skin and bothersome cuticles. I don't have positive antibodies for Sjogren's though I have the overlapping symptoms of dry eyes, mouth, etc. I also don't have typical Raynaud's though I am sensitive to cold and have mild color changes and numbness. Face flushing. Crunchy joints, though not much pain and no inflammation. I've had only an initial consultation with a Lupus Rheumatologist. Soon to get an appointment with an endocrinologist. I have GI doctor as well.

I look forward to learning from you all and sharing in some good discussions. I don't know very much, so feel free to point me in any direction that might be of interest to me, (particularly in the area of gastroparesis or GI issues).

Thank you!
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#2 uknlv18

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Posted 01 April 2011 - 02:56 PM

Hi Chopper

Welcome to the forums you will find it is filled with useful information and people who have been there done that as they say!

Cheers
Jean

#3 Jeannie McClelland

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Posted 01 April 2011 - 03:27 PM

Hi Chopper,

Welcome to the Forums! It's great that you persevered in getting a diagnosis. You already know the 2 most important things about scleroderma: this website and being your own best advocate.

Have I got links for you! Thyroid disease, Celiac Disease, and the ever popular (not so much!) Gastrointestinal issues - we've got information on them all. You'll find lots and lots of our members have at least two of the three of those, not to mention sicca syndrome (Sjogrens) and Raynaud's, so I'm sure lots of folks will have the answers or tips to dealing with just about all of it.

I hope we'll see more of you. You've just made a lot of very good, very understanding new friends.

Best wishes,
Jeannie McClelland
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#4 kris52770

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Posted 01 April 2011 - 03:46 PM

Hi Chopper,
Welcome!!!! Like you I am new. I have found this website and the wonderful people here a lifeline.
Hopefully you will find it to be a great help as well. I found out very quickly that it seems if you have a question or concern many people have already experienced it. The medical is very helpful as well. Look froward to hearing from you. All the best..Christine

#5 Joelf

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Posted 01 April 2011 - 04:11 PM

Hi Chopper,

A warm welcome to these forums to you!

You've certainly found the right forum for lots of information about Scleroderma and also you'll find you've made many new understanding friends to help you if you're feeling overwhelmed and worried.

Are you being treated by a Scleroderma specialist? It's very important as many rheumatologists lack the expertise to deal with this complex disease. I've included a link here which I hope you'll find helpful and also a couple of links to Raynaud's and Sjogrens which I hope you'll find interesting and informative.

I'm very pleased that you've joined our community and am looking forward to reading your posts and getting to know you. Here's a welcoming :emoticons-group-hug: (I'm the red one!!)

Jo Frowde
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#6 Amanda Thorpe

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Posted 02 April 2011 - 05:39 AM

Hello Chopper

Welcome to the forums, the best place to be if you have scleroderma! I don't have typical Raynaud's either as I don't get colour changes my main problem from it is cramp in the feet and hands when they get cold.

Take care and keep posting.
Amanda Thorpe
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#7 Chopper

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Posted 02 April 2011 - 07:38 AM

Thank you all for your warm welcomes! You made my day! It's so wonderful that this resource is available, and all of you too giving your time to encourage one another! I hope I can be a positive force too!

I am not currently seeing a scleroderma specialist, however, the young doctor that saw me at the Lupus Center of Excellence told me she is going to specialize in scleroderma and she already works at another hospital with 'the' scleroderma specialist in Pittsburgh. So I kinda got the feeling when she called me with my diagnosis that she's glad I came along and that she's looking forward to following me. Sometimes there's a benefit to seeing young doctors, they're motivated, and can hopefully develop a good rapport in the years to come.

Chopper
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#8 Lynnie

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Posted 02 April 2011 - 06:10 PM

Hi Chopper
A very warm welcome from me to the "sclero family" also.

I, like you, have very similar symptoms; I have limited aka crest without the c. You will find great support and friendship here, feel free to rant, ask your questions and share your highs and your lows, we will all be be there to help and support you! Remember now you have found this forum you'll never feel alone or isolated as we are all just a click away!!

Hugs and warmth and look forward to sharing with you :emoticons-group-hug:
Lynn

#9 Chopper

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Posted 04 April 2011 - 08:38 AM

Lynn,

Thank you so much for replying and your warm welcome! It's good to know who else has these similarities!

Chopper
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#10 susieq40

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Posted 05 April 2011 - 05:40 PM

Chopper, I'm a little late, but welcome!!! This site is great!!! Lots of support and new friends!!
HUGS HUGS HUGS!!!

susieq40

#11 Chopper

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Posted 05 April 2011 - 06:13 PM

Thanks Lynn & SusieQ!
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#12 Snowbird

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Posted 05 April 2011 - 06:24 PM

I'm late chiming in too but welcome aboard Chopper! Looking forward to hearing more about you/how your new appointments go. Sounds like you are in great hands to start with, good for you!
Sending good wishes your way!

#13 Shelley Ensz

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Posted 06 April 2011 - 07:54 AM

Hi Chopper,

Welcome to Sclero Forums. I'm glad you joined and look forward to hearing more from you.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.