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Awareness for scleroderma and Raynaud's


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#1 uknlv18

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Posted 04 April 2011 - 05:58 AM

Hi Everyone,

Just wanted to let people know that an article is running this Wednesday in the health section of The Yorkshire Evening Post about scleroderma and Raynaud's to help raise awareness. My ugly mug will be in there, but thought it might be interesting and any stuff that makes people more aware of scleroderma and Raynaud's and all the problems it causes us suffers is a good thing!

Cheers
Jean

#2 Elvis

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Posted 12 April 2011 - 10:27 AM

I thought this was a really good account of your illness. Well written, too. Anything that brings awareness to this disease is good.

Take care.

#3 uknlv18

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Posted 12 April 2011 - 12:46 PM

Thank you, I am going to be doing talks for doctors in training at my general practitioner's as well, I think the more we get people aware the better off we will be. Especially with the doctors, my hope is that more general practitioner's are at least aware of the symptoms and can refer quicker!

Jean

#4 Jeannie McClelland

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Posted 12 April 2011 - 04:13 PM

More power to you, Jean! And don't forget to tell them that sclero.org is the place to send newly diagnosed patients - maybe we can save them the panic that so many of us experienced before we found this site. :)
Jeannie McClelland
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International Scleroderma Network

#5 Elvis

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Posted 12 April 2011 - 04:52 PM

Jean,what a fantastic idea! did they approach you about it or did you suggest it to them?
You are so right. if more was known about it by general practitioner's it would be much easier to be referred and diagnosed.I have had a doctor google Sclero in front of me when I have had a problem,which doesn't fill me with confidence!
Hope all goes well.take care.xx

#6 uknlv18

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Posted 13 April 2011 - 04:28 AM

Hi Caz

It was a bit of both, I used to work in the Medical Education Department at the local trust and have volunteered for my Lichen Sclerosis and now my Scleroderma for the student doctors there. I went to my general practitioner for something else, my back I think lol, so many problems I forget which it was sometimes! And told him about the article and he asked me if I would come in. But Im sure if you suggest it to your general practitioner they would be more than happy to have you come in, they are always looking for unusual things to teach, and there isn't anything more strange and unusual than a case of Scleroderma! hehe

Jean

#7 Elvis

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Posted 13 April 2011 - 02:30 PM

Hi Jean, I have offered myself to student doctors at my local hospital-mainly for their exams in the summer but also in the hope that Sclero is more talked about and seen.

take care. xx

#8 lizzy

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Posted 26 May 2011 - 04:06 AM

Hi Jean,

I put this article on my computer, to show more info to others. I did put a comment on the article also; thank you for for having this put in the paper, it is so helpful for others to learn they are not alone :emoticons-line-dance:

love liz