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Biomarker for Diffuse Scleroderma skin has been discovered!


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It's weird to see new symptoms


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#1 Chopper

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Posted 06 April 2011 - 12:11 PM

Up to this point I haven't had too many external symptoms. However, every day I notice a new 'red spot' which I believe are the Telangiectasia. (I did a search here and read in another post that they disappear with pressure and reappear right away when pressure is removed, which mine do.) I don't have many yet, maybe 15 or so, on my lips, hands, chest and trunk. My lips have felt so weird in the last couple weeks, like chapped, but not chapped? Hard to describe. But I'm starting to get the red spots around the edge of my lips and even a couple on the lips (none inside yet). And I woke up during the night last night because my middle finger beside the nail is inflamed and tender to touch. And, of course, these make me wonder - what's next? Lots of red spots? All of my finger tips inflamed? Time will tell, but it's a weird feeling!
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#2 Amanda Thorpe

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Posted 06 April 2011 - 01:04 PM

Hello Chopper

Embrace the weirdness! It's a wierd disease with weird symptoms and trust me it just gets weirder as time goes by. Let's face it you couldn't make up a disease that can cause both telangiectasia and heart problems or ulcers and bowel problems, how unrelated can you get?

There's never a dull moment with scleroderma cause you never know what you're gonna get...except that it will be well...weird.

Take care and keep posting.
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#3 Jeannie McClelland

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Posted 06 April 2011 - 01:07 PM

Hi Chopper,

Your red spots sure sound like telangiectasia to me. My first one was a biggie on the top of my right fore finger, followed by another large one inside my bottom lip. I haven't had any more really big ones, but I've gotten lots of little ones on my cheeks, palm surfaces of my hands, and upper chest. Most of the time I ignore them and when I really need to get dressed up, I'm able to cover them well enough with makeup that I just look like I've been out in the sun. Other than being pretty annoying (and hard to pronounce) they are basically harmless.

The sore spot beside your nail is a new one on me. It might just be an ordinary inflammation from a hangnail, bug bite, soap that didn't get washed off well enough - all sorts of possible causes. If it gets worse (or doesn't get better), you might want to see your primary care doctor about it.

Here's hoping that the only new thing you get is a chocolate bunny in a couple of weeks. :)
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#4 Chopper

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Posted 06 April 2011 - 01:49 PM

Jeannie - I'm glad you said that about the fingertip pain. I truly don't know if it's a symptom. A couple weeks ago another finger was like that, and a few days ago I had the same pain on the fingertip of my ring finger, so now that my middle finger is doing it too, I assumed it must be a symptom. My hands have been feeling like they're a little puffy lately, the feeling like when it's humid and you're hot. But we've got snow today! Maybe this puffiness is making them more sensitive. We'll see what happens. The other two times it only lasted a couple days.

Amanda - Yesterday I read an article here on how the spots can be a marker for heart issues in something like 56% of people with them. That is so weird! Maybe I should get my bp checked more often!
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#5 Lynnie

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Posted 06 April 2011 - 05:47 PM

Hi Chopper,

As the others said its weird and wacky what we come up with :emoticon-dont-know: .

My telangiectasia is just on my cheeks (mildly) and on my chest, the bit were you can see it with a V neck top on, and from my wrists to my elbows,ankles to knees...but no further in either case :emoticon-dont-know: . I've had my heart scanned twice and there is no abnormality, so I think in my case anyway its simply skin involvement. But, I use a high factor sun block every day, whether its sunny or not to prevent any further damage due to UVA/UVB ays...for added protection. :D

Please do not ignore your sore finger(s) and see your doctor as, like others have said, you may have a infection that can be easily cleared up.

Take care,
Lynn

#6 Snowbird

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Posted 07 April 2011 - 03:24 PM

Hey Chopper

That's interesting. I think I had the same type of thing on one of my fingers that you are describing? It was really weird! The only way I can think to describe mine is that it went red and puffy but only all along the side of the nail bed. It hurt quite a bit for days...almost like it had a water blister under it (I don't think it did, just trying to describe it). This week it's still red but doesn't hurt? Go figure?
Sending good wishes your way!

#7 Chopper

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Posted 07 April 2011 - 03:59 PM

Snowbird,

Yes, it's happened to me 3 times on different finger tips in the last month. I wondered if I had damaged a cuticle, but I don't think it was. I have hard cuticles and tend to pick alot, but I don't think I injured myself. One lasted a few days, the other two lasted a couple days. Weird!
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#8 debonair susie

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Posted 13 April 2011 - 05:29 PM

Hi Chopper!

I am so happy that even though you are a relatively new Sclero Family Member, you have been to Chat AND posted several times, asking GREAT questions too :emoticons-yes:

Yes, the telangiectasia you have figured out. I also have it on my face, every so often, as well as on my lower lip and inside my mouth.

As for the finger issues, I also noticed changes in mine too, earlier on. The blister-like areas seem to come and go, where my fingers are concerned, but in MY case thankfully, nothing serious has ever developed, to date. It is good to take note and write down changes that you notice; then you are prepared for your dr visit!
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