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Biomarker for Diffuse Scleroderma skin has been discovered!


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just a quick update!


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8 replies to this topic

#1 queenie

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Posted 12 April 2011 - 07:05 AM

Hi Everyone,
:yes: :yes: :yes:
I am finally on the right road at last to a scleroderma specialist. my general practitioner just rang and said that the PCT have approved my referral to a specialist outside of our area and that she has done the referral letter which should be posted off today so my appointment should be through soon.

I am so excited like a kid in a candy store and I suppose that sounds mad but I so need to get on the right meds instead of meds being added in for each new symptom I've run out of fingers and toes to count the amount of meds I am on.

So as soon as I get appointment through, which shouldn't be too long she said, I will update you all. Things are not too bad at the moment fingers crossed and toes haha, the only thing worrying me is the 40 minutes approx journey to get to the specialist as she is not in my area, but hey I'll survive. If you can live with this you can find a way to deal with anything, right?

Anyway hugs and loves to you all,
:emoticon-hug:
Queenie

#2 uknlv18

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Posted 12 April 2011 - 07:32 AM

Glad to hear it Queenie! I hope you get a nice and understanding Specialist as well, even if they don't change the meds at least you will feel better knowing that they are what you should be taking. Here's hoping for the best for you! :happy1-by-lisa-volz:

Jean

#3 Joelf

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Posted 12 April 2011 - 07:42 AM

Hi Queenie,

What truly excellent news!! :emoticons-yes: I'm so pleased for you!

Now at last I hope that you'll feel that you're getting somewhere and hopefully your meds will be sorted out and you'll have a specialist you can have confidence in.

Do update us when you have more news.....I'm doing the Sclero Happy Dance for you!! :emoticons-line-dance:

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#4 Sweet

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Posted 12 April 2011 - 10:57 AM

:emoticons-line-dance: :woohoo:
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#5 Snowbird

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Posted 12 April 2011 - 07:06 PM

Hi Queenie

Glad to hear you will finally get the appointment you need/want. I agree, 40 minutes is nothing more than a piece of cake...where there's a will, there's a way, and no doubt you'll find it to get there. Good luck and keep us updated!
Sending good wishes your way!

#6 Jeannie McClelland

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Posted 12 April 2011 - 09:14 PM

Hey Queenie, that's great news that you are on your way to a scleroderma expert at last. And no, you don't sound mad - I laughed out of sheer relief at having a diagnosis at last! Maybe all we Sclerodermians are just a tad crazy? :lol:
Jeannie McClelland
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#7 barefut

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Posted 15 April 2011 - 04:42 PM

Hi Queenie,

So happy for you! Better days ahead for you girl! :emoticons-line-dance:

#8 Lynnie

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Posted 17 April 2011 - 03:57 PM

hi Queenie

:emoticon-congratulations: :emoticons-line-dance:

Excellent news hunny, I hope that it proves totally helpful and you come away from the appointment feeling "that at last you have arrived"!!!

Im sure the 40minute drive will be worth the discomfort, good excuse to stop off and have a lunch and a drink on the way!!

Let us know how it turns out, I'll keep my fingers crossed for you Queenie

Hugs and warmth
Lynn

#9 susieq40

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Posted 19 April 2011 - 06:23 PM

Hey Queenie,

:emoticons-line-dance: I hope the doctors will find something that is going to make you feel better.
My thoughts are with you! HUGS! :happy-dance: