Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


just a quick update!

  • Please log in to reply
8 replies to this topic

#1 queenie


    Senior Bronze Member

  • Members
  • PipPipPip
  • 45 posts

Posted 12 April 2011 - 07:05 AM

Hi Everyone,
:yes: :yes: :yes:
I am finally on the right road at last to a scleroderma specialist. my general practitioner just rang and said that the PCT have approved my referral to a specialist outside of our area and that she has done the referral letter which should be posted off today so my appointment should be through soon.

I am so excited like a kid in a candy store and I suppose that sounds mad but I so need to get on the right meds instead of meds being added in for each new symptom I've run out of fingers and toes to count the amount of meds I am on.

So as soon as I get appointment through, which shouldn't be too long she said, I will update you all. Things are not too bad at the moment fingers crossed and toes haha, the only thing worrying me is the 40 minutes approx journey to get to the specialist as she is not in my area, but hey I'll survive. If you can live with this you can find a way to deal with anything, right?

Anyway hugs and loves to you all,

#2 uknlv18


    Silver Member

  • Members
  • PipPipPipPip
  • 152 posts

Posted 12 April 2011 - 07:32 AM

Glad to hear it Queenie! I hope you get a nice and understanding Specialist as well, even if they don't change the meds at least you will feel better knowing that they are what you should be taking. Here's hoping for the best for you! :happy1-by-lisa-volz:


#3 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,900 posts
  • Location:West Sussex

Posted 12 April 2011 - 07:42 AM

Hi Queenie,

What truly excellent news!! :emoticons-yes: I'm so pleased for you!

Now at last I hope that you'll feel that you're getting somewhere and hopefully your meds will be sorted out and you'll have a specialist you can have confidence in.

Do update us when you have more news.....I'm doing the Sclero Happy Dance for you!! :emoticons-line-dance:
Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#4 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,895 posts

Posted 12 April 2011 - 10:57 AM

:emoticons-line-dance: :woohoo:
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 Snowbird


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,007 posts
  • Location:Canada

Posted 12 April 2011 - 07:06 PM

Hi Queenie

Glad to hear you will finally get the appointment you need/want. I agree, 40 minutes is nothing more than a piece of cake...where there's a will, there's a way, and no doubt you'll find it to get there. Good luck and keep us updated!
Sending good wishes your way!

#6 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,696 posts
  • Location:in the Rocky Mountains of the USA

Posted 12 April 2011 - 09:14 PM

Hey Queenie, that's great news that you are on your way to a scleroderma expert at last. And no, you don't sound mad - I laughed out of sheer relief at having a diagnosis at last! Maybe all we Sclerodermians are just a tad crazy? :lol:
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#7 barefut


    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,158 posts
  • Location:NW Washington

Posted 15 April 2011 - 04:42 PM

Hi Queenie,

So happy for you! Better days ahead for you girl! :emoticons-line-dance:

#8 Lynnie


    Silver Member

  • Members
  • PipPipPipPip
  • 172 posts

Posted 17 April 2011 - 03:57 PM

hi Queenie

:emoticon-congratulations: :emoticons-line-dance:

Excellent news hunny, I hope that it proves totally helpful and you come away from the appointment feeling "that at last you have arrived"!!!

Im sure the 40minute drive will be worth the discomfort, good excuse to stop off and have a lunch and a drink on the way!!

Let us know how it turns out, I'll keep my fingers crossed for you Queenie

Hugs and warmth

#9 susieq40


    Silver Member

  • Members
  • PipPipPipPip
  • 129 posts
  • Location:Montana, USA

Posted 19 April 2011 - 06:23 PM

Hey Queenie,

:emoticons-line-dance: I hope the doctors will find something that is going to make you feel better.
My thoughts are with you! HUGS! :happy-dance: