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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 Weasel

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Posted 12 April 2011 - 04:38 PM

Arrrgh! So a little while back I had the patch of inflamed skin on my scalp and it finally disappeared. YEAH.

But now, out of the blue, I developed a large inflamed area on my right foot. The top of my foot and the toes are discolored, there is nerve involvement because I have tingling and numbness at times. My foot hurts like crazy when I walk on it. I went to the doctor and she took an x-ray which looked okay, so she thinks the inflammation is due to my autoimmune (so far no one had actually given a firm diagnosis of which one it may be) disease. She gave me a cortisone shot and I was on Prednisone for a few days. Anyone else ever had similar things happen to them? I do have positive ANA and SCL-70 blood tests.

#2 Snowbird

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Posted 12 April 2011 - 07:01 PM

Hi Weasel

Sorry to hear about your foot, it sure does sound painful and I hope it gets better soon.
Sending good wishes your way!

#3 Shelley Ensz

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Posted 12 April 2011 - 07:22 PM

Hi Weasel,

Ah, no telling what it was, then. I'm sorry you had that but glad it cleared up with treatment.

Scleroderma tends to cause permanent stuff rather than quickly passing stuff. I've had inflammation in areas that then progressed to skin tethering and hardening, so if you get away without that happening, more's the merrier!
Warm Hugs,

Shelley Ensz
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#4 Weasel

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Posted 14 April 2011 - 12:16 PM

Soooooo...my foot was getting worse and I made an appointment with a Podiatrist. Turns out I have a stress fracture. My big toe joint is completely destroyed from osteoarthritis and will require surgery, my other foot is not far behind. I'll have to be in a cast for 6 weeks which means I can't work my regular job and since I don't have enough vacation/sicktime because I've used it all for various dr's visits and stuff I'll have to take unpaid time off. And since my feet ate in such bad shape I shouldn't continue to do a job that requires 10 hours of walking. This is bad...
:emoticon-crying-kleenex:

#5 Jeannie McClelland

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Posted 14 April 2011 - 01:10 PM

Oh, Weasel~ That really isn't good news for you. :sorry:

Is there any chance of some job accommodation for you? Short-term disability allowance? It's bad enough having to face foot surgery without having to worry about your job and finances too. I really am sorry.
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#6 Joelf

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Posted 14 April 2011 - 01:22 PM

Hi Weasel,

Oh dear, I am sorry to hear about the broken bones in your feet. My husband had a similar stress fracture in his third metatarsal and it was extremely painful although it wasn't put in plaster (it would have been better if it had been as it knitted together incorrectly. :( )

It's a real nuisance that it will effect your job as well; is there perhaps another job within the same company you could do, which wouldn't neccessitate your having to do so much walking?

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#7 Snowbird

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Posted 14 April 2011 - 02:26 PM

Oh Weasel

I'm really sorry to hear that news too! Jo's got a good thought...not sure what you do either but with any luck, if you have a good boss, perhaps some type of accommodation can be made to help you along? Keep us posted.
Sending good wishes your way!

#8 Weasel

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Posted 18 April 2011 - 04:00 PM

I called my supervisor to let her know that I would gladly work in their pre admit call office where all I'd have to do is to answer phones and light office work. Right now they have an on-call person who's a brand new employee working there 5 hours every day.I am a full time employee with 12 years with the company.You'd think they should cancel the on call person and let me work there,but..........
she told me that since it's not a work injury, they are not required to acommodate my needs........I'll have to take unpaid FMLA :angry:
This is a company who takes pride in their compassionate patient care. I guess that compassion ends when it comes to employees' needs.......

#9 Joelf

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Posted 19 April 2011 - 01:23 AM

Oh Weasel, I am sorry to read your post. :(

It sounds as if your employer is not prepared to attempt to meet you halfway. I don't know very much about industrial problems, but are you a member of a union that perhaps could speak to your employer on your behalf and explain the position to them?

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#10 Weasel

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Posted 19 April 2011 - 08:43 AM

Yes. I am in the union and I will address the issue with them as there are other issues there that are against union regulations (they have made similar accommodations with the exact new employeee I mentioned, when she twisted her ankle waterskiing on her vacation right after her hire and was then allowed to do only office work for 4 weeks which they provided for her and other stuff as well).Right now another co-worker and I are gathering the hard facts and documentation rather than speculations and rumors about the other issues. Once we have those I will file an official grievance with my union.

#11 susieq40

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Posted 19 April 2011 - 06:01 PM

Weasel, so so sorry to hear about your foot! I too had to have my big toe fused together and stay off of
it for 8 weeks. Sorry your work isn't cooperating with you. Do what you gotta do to get what you need!!
lots of hugs!!!!

:emoticons-group-hug:

#12 kramer57

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Posted 20 April 2011 - 03:04 AM

Hi Weasel,

Sounds like you are going about it in just the right way - getting the facts & documentation around to take to your union. Be sure to write down the conversation with your superviser too - YOUR idea of working the phone, her response, the date & time.

It's so hard to find a job these days, and it's awful how companies treat long term employees. New employees are cheaper - less hours, less benefits - so they'd rather do that, than hold on to a long time worker. I really hope it works out that you ccan keep working!!

Karen