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Biomarker for Diffuse Scleroderma skin has been discovered!


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Facial rash/spots


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#1 Elvis

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Posted 19 April 2011 - 04:51 PM

Hi, I've been having a lot of problems with the skin on my face. I have alot of dry/flaky/spots and a reddish rash on the skin on my face. The texture is also quite bumpy. I have tried so many different creams but it just seems to make the spots worse. Last week I went to see my general practitioner about this and I was prescibed a cream which just made my skin much worse with spots. Going back to general practitioner tomorrow as it's probably at it's worst now. Feel very self conscious about the appearance of my facial skin. Has anybody else had a similar problem. Any advice?

#2 Amanda Thorpe

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Posted 19 April 2011 - 05:42 PM

Hello Caz

Could the red spots be telangiectasia? The link provides a picture so you can see what it looks like as well as suggesting a cosmetic that can cover them.

Can you ask your general practitioner to refer you to a dermatologist? Anything on the face is hard to deal with and the last thing we need when already dealing with all the fun and games of scleroderma. Try and remember that as bad as it looks to us it isn't that bad to others. My lips are smaller than before scleroderma so much so that my top lip is half the size it was but no one has ever noticed without me pointing it out.

Please let us know how you get on with the general practitioner.

Take care and keep posting.
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#3 Elvis

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Posted 20 April 2011 - 03:58 AM

Hi Amanda,

I don't think the spots are telangiectasia as they are raised and it looks like acne but not as severe. It is also quite itchy but maybe that is do do with the dryness? You are right though that some things we are self conscious about other people don't seem to notice. I think really it's about how it can make you feel about yourself.

Going back to the general practitioner this morning. I will ask to be referred to a Dermatologist though.

Take care

#4 Joelf

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Posted 20 April 2011 - 06:47 AM

Hi Caz,

Sorry to hear you're suffering with itchy, red spots; it must be very irritating. :(

My mother has a similar sounding problem, which the doctor described as excessively dry skin due to her age (she's 89) and she was referred to a dermatologist who prescribed a steroid cream and a very strong moisturiser which has helped a bit. Her red spots, like yours, are raised and come up on her face, which she finds most distressing. She doesn't have Scleroderma and so it's possible that your skin problem has nothing to do with the disease; Sclero can sometimes be a red herring!

Let us know how you got on at the doctor's today, won't you?

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#5 Elvis

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Posted 20 April 2011 - 09:56 AM

Hi,

Saw general practitioner today and she has prescibed a Lanolin free moisturiser and a long term course of low strength anti biotics to clear up the spots and keep them at bay. She felt sure that the itching and the redness were to do with severely dry skin and also that maybe my skin is quite sensitive and really doesn't like anything with Lanolin in; interesting as my sister is allergic to Lanolin. General practitioner doesn't want to refer me yet to a Dermatologist as she would like me to try this approach first. She is unsure if this is Sclero related but you're right to say that it could be a red herring. I think I do have a tendency to blame things on Scleroderma. She asked me to give this treatment a try for a month and if no improvement then return to see her in a month.
Thanks for your advice

Take care xx

#6 Joelf

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Posted 20 April 2011 - 10:05 AM

Hi Caz,

Glad to hear you've had a result at your doctor's.

I'll keep my fingers crossed that your itchy skin clears up without any more problems. :)

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#7 chockers

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Posted 21 April 2011 - 12:16 PM

Well I have big skin problems, all to do with my auto immune system not working. So it makes you prone to rashes.

Try making an appointment with the community dermatology nurse, then try to get a referral to the hospital dermatologist.

Now the dryer the skin the greaser the ointment you must put on. As creams just go in and 5 mins later skin is dry again, I use an emollient ointment looks like lard I wash in it and then rub some on and keep the face greasy if it's dry which might mean twice in a hour a few times a day.

I have acne Rosacea and seborrhoeic dermatitis .I have it in my hair, face, ears and chest ( rare ), I would recommend the community dermatologist nurse as they have time to see what works and what does not and can inform the hospital better.

You might have a fungal thing on your face, mine never ever goes; I expect I have it for life .Good control or a red face. I find hospital fine but really as the appointments are so far between them you need the nurse as well. She knows me well now and all I have to do is ring her and I don't have to see her.

You need ointment rather then cream sometimes and you could have more then one thing wrong with your face with me it's a pain in the neck. The rosacea needs one cream the rest needs other stuff. I also need anti biotics for spots as they won't go very easily.

Christine

#8 Amanda Thorpe

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Posted 21 April 2011 - 03:36 PM

Hello Caz

I'm glad you're general practitioner was helpful and hopefully the new regime will work. Have yoy thought of using cosmetics to cover it up? If Dermablendcan cover telangiectasia I would suspect it can cover anything! I use a high end foundation that not only covers most things but stays in place all day, if you think it might be of use you can PM me for details.

Blame everything on sclero...sounds like a plan! :great:

Take care and keep posting.
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#9 chockers

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Posted 22 April 2011 - 02:26 AM

Cover up might be the worst thing, I think it started off my dermatitis and I have never got rid of it. I can't use most things on my face now. The best thing is get it under control and then you may have a pink face. I found community dermatologist nurse the best as she had time to sort it and I got some camouflage make up from the red cross and it covers everything.

Christine

#10 Jeannie McClelland

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Posted 22 April 2011 - 08:28 AM

Hi Caz,

Like Chockers says, some of the camo make-ups are pretty rough on the skin. Oh dear, I just had this mental picture of us Sclerodermians in battle gear, faces all camo-ed up in green and black paint, converging on some poor support group meeting. :P What did my husband put in my cuppa?!

Anyhow, the Dermablend Amanda mentioned was made especially for situations like ours. Here's a link to my post in a topic on this subject (masking facial involvement). Dermblend is a bit expensive, but lasts forever. As long as the doctor is sure that the rash isn't something that needs treating, I wouldn't be too worried about trying the make-up route. One thing I would say is that if you do use makeup, be sure you can clean it off and go to bed with clean, moisturized skin. I found I have to use a makeup remover to get it all off, and then wash my face to get the remover off. (And men wonder why we take so long in the bathroom. ;) )

Just another rambling thought, how much sun are you getting? Too much (and too little) can contribute to redness and a bumpy rash. I have to watch not to get too much and one of my kids always ends the winter with a bumpy red rash and flaky skin.

Keep smiling and people won't notice the rash much (good grief, now I sound like a Mum).

Best wishes,
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#11 Elvis

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Posted 23 April 2011 - 12:03 PM

Thank you ladies for the advice; all very good and made me laugh Jeannie!

Trial and error I think until I find something that helps me. I do use a foundation to cover up as I get quite self conscious; try to do without it though when I am indoors so as to give my skin a rest. Will keep you posted on progress :)

I'm gonna blame Sclero for all this as she deserves it!

#12 chockers

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Posted 13 June 2011 - 04:33 PM

I have to use a emollient cream its like lard but stops the face drying out and flaking and the more you use it the better the skin becomes. I take a pot every where I go. When washing my face it's done with the emollient cream then when dry I put more on.

Christine

#13 Elvis

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Posted 16 June 2011 - 05:45 PM

Hi,Just an update on my facial rash and dryness
Facial rash has cleared up almost completley.I use a lanolin free cream many times a day as my skin does dry out but I carry the tube with me and apply whenever I can.I took low dose antibiotics for a month and that helped alot to clear up the initial rash.Very dry skin affects my body now as well.