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Biomarker for Diffuse Scleroderma skin has been discovered!


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Skin symptoms and muscle pain


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#1 kris52770

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Posted 19 April 2011 - 05:49 PM

Good Evening,
I was wondering if anyone else has skin involvement. I have swelling in both legs but I also have the sensation of throbbing in my skin and muscles. This is pretty constant. Sometime it feels like it is all the way to the bone... Ouch....My feet ache terribly. Does anyone else have this much skin involvment?

Christine

#2 uknlv18

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Posted 20 April 2011 - 04:44 AM

Hi Christine

I have skin involvement in that I have Lichen Sclerosis and thickening of the skin in various other places. I have terrible foot pain and that is caused by the Sclero and am under treatment by a Podiatrist, as well as doing several studies for them to test out some foot inserts (which did not help at all by the way, but this could because I got the placebo ones) and go in tomorrow for them to run a bunch of other tests for another study on causes of foot pain in Scleroderma.

I get the bad muscle aches and throbbing but I do not think that is caused by the Scleroderma in my case but old age and lack of use! I find if I get in a rut and don't move much that I have terrible problems, which is understandable.

My left ankle swells all the time and they have said this is caused by the Scleroderma but there isn't much to do for it so it would seem.

I find muscle rubs that have heat affect in them helpful, as long as I have no open sores or patches on my skin, and long soaks in a hot tub. I do find that my skin is a lot dryer now than it used to be so have to use loads of lotions.

I hope you find some relief from the pains as they can be very debilitating. Here's a couple of spoons to help you out!

:spoon: :spoon:

Cheers
Jean

#3 Joelf

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Posted 20 April 2011 - 01:42 PM

Hi Christine,

Sorry to hear that you're suffering with such unpleasant pains and throbbing in your muscles.

Thankfully I have very little skin involvement (merely the tips of my fingers) but before I was diagnosed and put on my medication I had dreadful aching joints and quite a lot of overall pain in my muscles.

As Jean has said, it can be very debilitating, so I do hope that your doctor will be able to give you something to alleviate at least some of the discomfort when you next see her, prior to your hopefully getting your appointment with a Sclero specialist.

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#4 Jeannie McClelland

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Posted 20 April 2011 - 02:45 PM

Foot pain? Yep, got that. Muscle pain? Uh huh, got that too, but I think my muscle pain is more from fibromyalgia than anything else. It's a pain in the patootie, isn't it? There are different approaches to treating the pain (see here) and the nice thing is that sometimes, as time goes on, the pain lessens on its own. I hope you find some relief.
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#5 Matilde Acosta

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Posted 21 April 2011 - 05:05 PM

Hi Cristina, uffff, I really agree with your symptoms, I have localized scleroderma skin and muscles, skin very dry and itchy in some areas with dark spots, but has provided enough, but the pain if it is true that they have not sent after 12 years in the company of my friend inseparable "scleroderma", just send me anti-inflammatories, which help a little but not remove them, also a bath and let the warm water passing through the most painful places, it calms down a bit, they really are pains motion, while I'm quiet so are they ... jajajajja are imitators, but life goes on, my motto every day when I wake up is "no matter how I feel, I get up, get dressed and go" clear .... So when they invite me, because I can not go out alone. A friendly hug and forth.

#6 Jeannie McClelland

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Posted 21 April 2011 - 06:04 PM

Oh Matilde, you made me laugh about the pains being imitators and quiet when you are! :lol: I imagine them as nasty little characters tagging along on a happy dance. :emoticons-line-dance:

The idea of having a bath and letting the warm water run over the most painful places is a very good one. I can see me doing just that tonight.

And did everyone know that 'soak and seal' helps very dry skin? After a warm bath or shower when your skin is nice and moist is the best time to apply those lotions and creams. I'd been avoiding the soaking part, thinking it would make my skin even drier, but after reading an article about eczema responding to the soak and seal treatment, I thought I'd give it a try. It works! Not nearly so many flakes these days. :yes:
Jeannie McClelland
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