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Cellcept


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#1 whirlway

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Posted 23 April 2011 - 09:42 AM

I have been taking Cellcept for several years now and lately have not been feeling very well. I have had to do several prednisone tapers. (ICK)!!

I am wondering if anyone else takes this drug and has found it to be less effective after a period of time.

#2 Jeannie McClelland

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Posted 23 April 2011 - 10:11 AM

Hi Whirlway,

I also take CellCept and have for about 3-1/2 to 4 years now. I am having some progression despite the CellCept, but my best guess is not that it is becoming any less effective but without it my rate of progression might have been faster. I have to admit I'm not feeling real splendid these days either, but I think I would blame it on having been recently tapered completely off oral prednisone too. I am on an inhaled steroid, but of course that's not going to do much for anything outside the respiratory system.

Will you be seeing your specialist soon? I think I would take a new list of symptoms and when the onset was, if you can remember. I'm one of those daft people who, when asked how long, answers: "Oh, for a long, long time" or "Just recently." My pure favorite is "Quite a while~" :) You could also see your primary care doctor for a general check-up too. As much as we'd like to blame everything on the scleroderma or drug side effects, sometimes it's just something else.

I hope you feel better soon. Have a nice weekend,
Jeannie McClelland
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International Scleroderma Network

#3 Sweet

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Posted 23 April 2011 - 10:52 AM

Hi Whirlway :)

I'm not on Cellcept, but a very good friend of mine is, and has been for 10+ years. It seems to still be working for her. Have you talked with Dr. Craig about it?
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#4 whirlway

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Posted 23 April 2011 - 02:15 PM

No, he was out the day I called. I hate the way I have been feeling, brings back too many bad memories. I see him in June, after I get back from my vacation. Hopefully that will make me feel better. Thanx. ;0)

#5 Sweet

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Posted 27 April 2011 - 01:11 PM

Vacations seems to always help. Hang in there. :emoticons-group-hug:
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)