Posted 26 February 2007 - 05:06 AM
What's been happening is I notice that after I wash my hands & dry them on a towel, that with in a minute or whatever, when the remaing moisture leaves, all the skin on the underside of my hand (including fingers) is SO tight & shiny that I don't even have my normal range of motion & you can see skin being pulled from the bottom side of my wrist, like it's being pulled into the palm of my hand.
The tigntening I haven't really experienced before there, but I do get it over my knuckles when I'm at the computer, my skin looks like webbing from knuckle to knuckle.
New to me this winter, as far as raynaud's goes, is the horrible burning pain in my skin on the fingers that go numb the fastest. It's like holding onto a hot pan in the oven....I didn't have that last year when the Raynaud's first showed up. Any of this familiar to anyone?
Thanks for your time!
Posted 26 February 2007 - 05:13 AM
I'm really sorry you are having some burning, and tightening with your hands. Must be discouraging. Here is a link for skin involvement that I thought may help you. Please notify your doctor as well.
Keep your chin up.
Posted 26 February 2007 - 05:15 AM
The tips of my fingers are very tender and painful. I don't have the pain in my palm and I don't have the shiny effect on my hands. My podiatrist told me that the skin on my toes is tightening and I have horrible pain on the tops of my feet. He thinks that is the tendons tightening. I do have some shiny red on my toes. I didn't really answer your question. Take care,
Posted 26 February 2007 - 06:20 AM
On top of my hand between thumb and index finger is swollen, and the skin is reddish or brownish. When I try to put my hand flat, there is a lot of pulling at the thumb, with visible lines of pulling in the skin. I have to put some effort into straightening the fingers, since I have the tight palm & finger skin like you described. One time I had a tiny sore in the line on my palm, as if it split. Luckily it healed up quickly.
Posted 26 February 2007 - 07:32 AM
To prevent the burning caused by severe attacks of Raynaud's please keep THE WHOLE BODY warm. Wear layers and don't let yourself get chilled. If the body isn't warm, there's no way to warm the peripherals. Here's some tips for preventing Raynaud's attacks.
Posted 26 February 2007 - 09:05 AM
Ask your rheumatologist about physical therapy. I've been going for a few weeks now and my range of motion/mobility has returned to normal. My curling fingers are straightening some. I do continue to lose strength but she has given me gentle exercises and stretches to help with the pain, stiffness and mobility issues. I was prescribed 4 weeks but we are only going to do 3 because my PT feels I can do what she has taught me at home.
You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...
Posted 27 February 2007 - 08:41 AM
Posted 28 February 2007 - 07:26 AM
The palms of my hands and soles of my feet look like they've been laminated--especially my feet--and the pain starts as the blood flow slows down. It's the burning pain you get when frostbite begins, and sometimes feels like I just stepped on a live electrical wire in my toes and the ball of the foot. When that sensation starts, it always means I have to keep close watch on my feet since they aren't all that visible beneath all those socks and the moccasins, unlike my hands! For too long I passed off the sensation, but it caught my attention last August when I had no shoes on and realized I had all out "frostbite" on a warm night. The raynaud's is definitely getting worse this year, and that's a big reason I don't get to the computer much these days since this corner of the house is very chilly!!! Have you ever looked into Cialis or Viagra? I don't take either one, but they might be in the near future if the attacks get worse. Glad we have meds out there!
My tendons are (and have been) tightening seriously in my hips, upper thighs, shoulders, neck, and forearms, and it can hit very quickly in some areas. At this point, I use a muscle relaxer and a LOT of stretching exercises, but you're right about being kept up at night by either the pain or "crawliness" of the feeling. If something else shows up that can help, I'll give you a holler!
Best to both of you,
Posted 28 February 2007 - 02:45 PM
I also bought a $40.00 pafaffin wax bath which I use everyday. It is so awesome! Right afterwards my hands feel almost like my old hands.
My hand therapist also put me in touch with her supplier of massage tools and I bought a mini vibrating hand massager with 4 attachments. She suggested I pay particular attention to my large knuckles when using the massager.
So I have gotten into this routine each night and it has really helped with my flexibility.
1. Paraffin bath
2. Vibrating massager
3. Massage in moisturizer with glycerin and lanolin
Sounds like a lot but I do it while watching TV after the kids have gone to bed and it's not an inconvenience.
My therapist also suggested tracing your hand (like you did in kindergarten at Thanksgiving time ) and then you'd have a reference point in knowing how you're coming along with your stretching and flexibility.
My right hand is way worse off than my left in terms of flexibility but after my routine I can see a difference.
I hope some of what I have passed on from my experience will be helpful to you.
If anybody wants the name of that massage tool provider I will be happy to PM it.
Posted 28 February 2007 - 04:55 PM
I bought mine (even though I am from the States) over the internet. So, you may want to try that route.
Posted 28 February 2007 - 06:30 PM
Sounds like we are living parallel lives.
I just finished my hand therapy early too and for the same reasons. Initially she wanted to see me for one hour appts 2x/week for 4 weeks but we did about 2 one hour appts and 2, 1/2 hour appts and she felt that since I had the paraffin bath at home I culd continue what she showed me on my own.
My hands weren't BAD off to start (no curling yet) but I wanted to nip it in the bud because I can feel them progressing rapidly.
Glad you are doing good with your hands too. It is very discouraging (to say the least!) to lose hand mobility, even a little bit.
I'm encouraged by what Janey said about how her hands improved remarkably after she started Methotrexate (sp?)
I don't think Cellcept has done a thing to slow the progression of my skin and musculoskeletal involvement and who knows if it has REALLY helped my lungs. I kinda wish I were on something else. But I'm not the doctor and what do I know anyway?
Keep up your good work on your hands and so will I!
Posted 07 March 2007 - 04:58 AM
Posted 07 March 2007 - 05:17 AM
My rheumatologist told me the same thing...that the tightening/hardening always start at the tips of the fingers...but I really don't think you can say ALWAYS about anything that has to do with this disease and I remember several others on here saying that theirs started on their palms or at the base of their fingers. So.....who knows!
Posted 08 March 2007 - 03:56 AM
Any Beauty Supply shop will carry wax machines. You should be able to purchase most products without a Cosmetology License. Also, you could ask your hair dresser to get one for you if you aren't allowed into the Beauty Supply Shops. Your hair dresser can get the machine and wax for you. Hope this helps. Sheryl
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