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Biomarker for Diffuse Scleroderma skin has been discovered!


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I had one more GI test


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#1 Chopper

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Posted 03 May 2011 - 10:21 AM

Yesterday I had an esophagram and I was told it was normal. So I wonder how that will fit into the picture. I have gastroparesis which has worsened in the last few months. So far all the doctors I've met give me quasar looks at this situation because generally the esophagus is affected before the stomach, and if the stomach is involved, then I should be 'sicker' with other symptoms. So, I'm curious if anyone else has this situation? Can sclero affect the stomach, but an esophagram be normal?

Chopper

(positive for limited sclero (no skin involvement yet), hashimotos, celiac)
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#2 Shelley Ensz

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Posted 03 May 2011 - 11:26 AM

Hi Chopper,

I'm not a doctor nor do I have experience with this particular question. But I do have lots of warm hugs to send your way in hopes that helps a bit.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#3 Joelf

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Posted 03 May 2011 - 01:37 PM

Hi Chopper,

Well, it's good news that your oesophagram was normal. :)

Thankfully, I don't have any GI involvement (yet!) so like Shelley, I can't advise you from my own experience.

However, I'm also sending you a comforting :emoticons-group-hug: to keep company with the one that Shelley's sent you!

Jo Frowde
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#4 Chopper

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Posted 04 May 2011 - 08:55 AM

Thanks, Shelley and Jo! You're sweet!
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#5 Amanda Thorpe

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Posted 05 May 2011 - 01:42 PM

Hello Chopper

I think anything is possible with scleroderma, of course that's just my opinion as a layperson with it. I have always been described as having atypical scleroderma because it didn't present in the usual way or progress that way either, maybe you're one of the atypicals!

Take care.
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#6 Snowbird

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Posted 05 May 2011 - 04:10 PM

Hello Chopper

I don't know either.

Amanda's description is a good way of putting things, Atypical. It seems to me that these weird symptoms seem to sometimes follow quotes similar to (for example only, I heard this one somewhere) "Raynauds is often the first symptom and can proceed other symptoms by up to as much at 6-1/2 years BUT not always". We're just puzzles sometimes, aren't we?
Sending good wishes your way!

#7 Chopper

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Posted 05 May 2011 - 09:20 PM

Thanks, Amanda and Snowbird. The more I learn and read, the more I'm appreciating that things can be very different in each case. Thanks for the reassurance of that.

Chopper
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#8 debonair susie

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Posted 06 May 2011 - 11:14 AM

Hi Chopper,

Good news about your esophagram; bad news that it leaves you wondering :(

Everyone has said it very well and you have learned quickly...you just never know! :emoticon-dont-know:

I DO have a couple or three questions for you though: *Was this your first esophagram? (If so, you need not read further ;) )
Did the same Dr perform this esophagram? Was it the same readiologist who read the esophagram and did the report?
Was all done at the same facility as before?

If this WAS your first, then they have a baseline to go by for future esophagrams.

The reason for my questions: The results can vary dramatically on labs and diagnostic testing, (as far as what a dr may report) in my esperiences and have been told that by those in the medical field. So, if at all possible, it's important to have these done in the same facility, as one may see what another does not.
Special Hugs,

Susie Kraft
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#9 Chopper

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Posted 06 May 2011 - 01:22 PM

Hi Susie,

Yes, this was my first one. I too was thinking it would be a good baseline. The next test I'm having will be a sialogram to evaluate me for Sjogren's, even though I didn't have the antibodies for it. I was told the antibodies I have for Limited Scleroderma can sometimes be seen in Sjogren's patients. That's late next week.

Thanks for the reply!

Chopper
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.