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Scleroderma and Attitude

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#1 Matilde Acosta

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Posted 04 May 2011 - 08:33 AM

All that we have to live day to day, with scleroderma, we know it is not easy, it takes a number of elements that we put into practice to facilitate the relationship with our family and closest loved ones, it is necessary to maintain serenity to the symptoms and to feel that people are on our side, and to remember that their suffering, as well.

First, we must stand for a while on their side, and feel admiration for the patience you have to see our suffering, for the unconditional love they give us to be careful and watch for our health. We should not blame anyone for what we have, who knows why we were chosen, but what is certain is that difficult situations make us grow spiritually, make us stronger and help us understand the suffering and approach them, either to share our situation and learn something from them or to help lift the spirits.

The love we give back to our loved ones is very valuable to them. I speak as someone who has the disease, but also I have a son, a chronic renal patient, and that is when a family suffers ill suffering is doubled, and properly so tell them to show understanding and loving with people who care, responding always in love. As much as scleroderma attacks us, our loved ones still deserve the best of our feelings.

Remember that we are given the courage to face our dear friend scleroderma, which we must face with courage and serenity to accept no matter how it affects our lives. When we approach scleroderma with great faith and hope, always with positive thoughts and attitudes, then we have a condition that has changed our lives but should not change our way of living. We can share with family and loved ones all the moments of happiness and joy we can and let them know how valuable they are to us.

Today is a very special day for us to appreciate our caregivers, who are happy do everything for us.

Matilde Acosta
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#2 Joelf


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Posted 04 May 2011 - 03:01 PM

Hi Matilde,

What a lovely message and how true!

Here's a very special :emoticons-group-hug: for all of us and our families!

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#3 kris52770


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Posted 04 May 2011 - 03:26 PM

Well said!!!!

#4 enjoytheride


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Posted 04 May 2011 - 09:44 PM

A very warming thought and loving expression- thank you.

#5 Amanda Thorpe

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Posted 05 May 2011 - 06:03 AM

How true Matilde, how true. Scleroderma didn't just change my life forever but also my husband's life. I have to remember that it's our scleroderma journey not just mine.

Take care.
Amanda Thorpe
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