and yet another question....
Posted 06 May 2011 - 01:31 PM
Posted 06 May 2011 - 03:32 PM
Please don't worry about asking questions.....an enquiring mind for Sclero knowledge is a good thing!!
Thankfully I haven't noticed any Telangiectasia on my skin, so can't advise from my own experience. However, I do have a friend with quite a few of them on her face and arms and she (to date!) doesn't have PH. Although it's quite true that they can be an indicator for PH, they can also be a marker of oesophageal involvement, decreased DLCO, and heart involvement, but that doesn't necessarily mean that you will develop all these complications.
I would probably wait to ask your specialist about the Telangiectasia when you have your consultation, mainly because it's possible that your new family doctor may not be able to give you much advice about them.
Here's a to comfort you as you've been feeling worried.
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Posted 06 May 2011 - 04:36 PM
I have a few teleangiectasia on my face and hands, not many at all, really. I do have PH, esophageal involvement, and decreased DLCO. I think it's probably a question for your specialist. Your internist will probably give you 'that look', if you know what I mean.
I always take these predictors with a healthy pinch of salt. There are far too many 'sometimes' in there, both proving and disproving the predictive value. (When I hear the words 'predictor' and 'prognosis', I always think of poor old Punxsutawney Phil and how reliable his weather guesses are...)
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Posted 07 May 2011 - 07:13 PM
Again, I've learned something new! That's what is so great about this site, all the factual knowledge from everybody in the true know.
Posted 08 May 2011 - 05:20 PM
I have had high blood pressure for a good number of years and treated with medication LONG before I was diagnosed 3yrs ago.
I have teleangiectasia on my arms to just below my elbows and a few scattered patches on my legs my face not so much as you would notice, I have had them for a number of years 2 at the most but, I have had yearly heart and lung scans and I have no involvement in the PH or lung department as yet. So, I would not immediately get into a panic!! But please point them out to your rheumotologist when you see them and let them decide what is the best action to take for your care, as we all know that no two of us suffer or present in the same way. Its always best to ask their advice in these matters.
keep posting and asking your questions ok
Posted 08 May 2011 - 09:21 PM
Posted 08 May 2011 - 09:30 PM
You know what else I wonder, people with telangiectasia can have watermelon stomach in the antral part. I wonder if the antral gastritis I have is the beginning of watermelon stomach developing, or if it's related to the gastroparesis or celiac. I may never know, but at least I know that its possible to develop it.
Posted 09 May 2011 - 10:42 AM
I have them scattered throughout my body as well. I don't have PH yet, hopefully never will. BUT I think there is a lot to be said for peace of mind. I think it would make YOU feel better to at ask the question, so my advice is go for it.