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7 replies to this topic

#1 beaty71


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Posted 26 February 2007 - 02:58 PM

I have never joined a forum and I really wanted to be able to talk to other people with scleroderma.I've only talked to one other person with sclero and that was on the phone.I would really like to meet other people who are going through some of the same things I am.It would be great to get helpful tips an dshare some of the things that have helped me.

#2 Shelley Ensz

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Posted 26 February 2007 - 05:03 PM

Hello Diana,

Welcome to Sclero Forums! We're delighted to have you join us, although sorry that it's because of scleroderma.

We'd love to hear more about you, too. Speaking of which, a terrific thread for old or new members to post an introductory message in is at:

Getting to Know You

and it is also a good place to read about other forum members, to help find those that you may especially relate to.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Heidi


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Posted 26 February 2007 - 05:03 PM

Hi Diana,

Welcome to the forums! I am glad you found us and have decided to join in. I think many of us feel as you do and it is such a relief to be able to come here and talk about our disease with others who really do know what we are going through! There is a great thread (Getting to Know You) that you may want to read and post on where we have all talked a little bit about ourselves. It would be a great way to introduce yourself to the group.

Again, welcome!

Warm wishes,

#4 janey


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Posted 26 February 2007 - 05:08 PM

Welcome! I'm so glad that you have found us. This is a great place to share experiences, information, tips and all that REAL stuff that those who haven't experienced it really can share. In addition to the experience of our members, we also have thousands of links to studies on scleroderma and it's various symptoms, treatments, current clinical trials, etc. So please be sure to visit our medical pages.

Please let us know more about you and some of your experiences. We hope you post often.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#5 LisaBulman


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Posted 27 February 2007 - 03:22 AM

Hi Diana,
Welcome to the forums! It is so scary to make your first post and not know if anyone will respond. You will quickly see how everyone here supports one another and we can relate to what you are going through.
Please keep psoting new topics or jump right into a thread already going!

Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
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(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#6 nan


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Posted 27 February 2007 - 03:30 AM

Welcome, Diana,
You have come to the right place. There is a wealth of knowledge within this group. Take care of yourself and I am glad you're here. :D

#7 Sweet


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Posted 27 February 2007 - 05:42 AM

Hi Diana,

Welcome to the sclero forums! I'm sure sorry it's because you are ill. You fill find so much information, support and friendship here. We look forward to getting to know you better!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#8 emmie


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Posted 27 February 2007 - 04:19 PM

Hi Diana,

It is nice to find your way to a place where others understand, isn't it? I don't think there is a better place for information, support, encouragement and even a laugh from time to time! I hope you find it as helpful as I have.

xoxo emmie