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Scleroderma skin ulcers


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#1 NorthStarHope

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Posted 14 May 2011 - 05:24 PM

Hi Everyone, :emoticons-group-hug:



I have not been around for awhile, and I've been wondering how everyone is doing? Miss you all!!! My laptop runs a bit slow and I try not to keep the line tied up, so I have not been around as much as I used to be. Just wanted to let everyone know that I am spending more time with my sister and I am very very happy for this. Anyway I was wondering if anyone has any thoughts on skin ulcers; is there anything that might relieve the discomfort and pain? I will thank you all now for any thoughts on this subject.

Sincerely, NorthStarHope :emoticons-group-hug:
Sunshine and Happiness To All!

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#2 Joelf

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Posted 15 May 2011 - 12:26 AM

Hi NorthStarHope,

How lovely to hear from you again and I do hope that your sister is feeling better.

We have a link here for Digital Ulcers and their treatment which I hope will be helpful to you. We also had a thread on the UK forum about Ulcers and treatment which I hope will give you some further ideas.

Do please keep posting and let us know how your sister is doing. :emoticons-group-hug:

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#3 miocean

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Posted 15 May 2011 - 11:36 AM

Hi NorthStarHope,
I was thinking about you and was hoping that your absence meant all was going well. I have no experience with ulcers so cannot help, just wanted to say HI! :emoticon-hug:

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#4 Amanda Thorpe

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Posted 15 May 2011 - 01:35 PM

Hello NSH

Welcome back! As you'll see from the links Jo has given you I have foot ulcers and have district nurses come in twice a week to dress them. In the near future a tissue viability nurse is going to come and assess the ulcers to see if there's anything else they can do to help them heal more quickly. If they come up with anything I'll let you know.

Take care.
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#5 judyt

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Posted 22 May 2011 - 06:20 PM

Hi Amanda,
Have been thinking about you and your ulcers today. The District Nurse has just been to attend to mine. It is a beautiful autumn day here, blue skies, fluffy clouds and millpond sea. The sea is at the edge of our lawn and the temptation to go and paddle my poor sore ankle was just too great. I have found that a dip in the sea really does help but it has to be a still day or there is too much sand stirred up. Not many people have the opportunity to go into a clean clear sea so I shouldn't go on too much about it should I??

Anyway, what I really wanted to ask is if you have tried silver dressings?? That's what has gone on my ankle today - sounds great a little square of dressing goes on WET - yes Wet - and MUST be wet each day. Hallelujah no more hopping about with one foot in a plastic bag while I shower. The dressing is called Acticoat and is to be changed twice a week.

Maybe you or somebody else has some experience of this one - it is new to me.

Warm hugs
Judy T

#6 Amanda Thorpe

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Posted 23 May 2011 - 03:39 PM

Hello Judy

Oh the things we think about! Friday I have the tissue viability nurse coming with the district nurse to see what they can come up with. Hopefully the result will be the eviction of my ulcers! :emoticons-yes: I'll let you know how it goes.

I'm sure one of the nurses mentioned in passing that they are no longer allowed to use the silver nitrate dressings, why I don't know.

Take care.
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#7 judyt

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Posted 23 May 2011 - 11:50 PM

Hi Amanda,
Oh my goodness - the things that come and go these days!! Once upon a time the only thing we had to treat skin infections was a hot bread or porridge poultice - now it looks like silver nitrate has come into fashion and probably gone again before I have even heard of it. I have to say that the nurse warned me that it stings - and she was not wrong!! It has been stinging like mad since she put it on but I decided to stick it out until Thursday to change it and then see what is happening under there.

I will be interested to hear what the tissue viability survey comes up with. I have never heard of that one either!!

Warm hugs

Judy T

#8 Plinksgirl

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Posted 25 May 2011 - 05:42 PM

Hello NorthStarHope

I am new here and I can only give you information as to what helped my Mother.

Keep them dry-Mamma's Hospice Nurse was working with another Sclero patient and he refused to keep them dry saying that they crack and look bad. Mother's never got as bad as his. The old fashion bagbalm (yes the ointment for cow udders) worked at night but we would only do this like once a week.

You are welcome to email me. Id be happy to give you any information that I have as we took pictures in stages.

Hope this helps,
Plinksgirl

#9 Joelf

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Posted 26 May 2011 - 01:23 AM

Hi Plinksgirl,

Welcome to these forums!!

Sorry to hear that your mother suffered with painful ulcers.

Do please post again and let us get to know you.

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#10 night owl

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Posted 26 May 2011 - 03:47 PM

Oh ulcers, the right dressings and pain relief seem to go hand in hand it’s getting that balance that can be the tricky thing.

Sliver dressings have always suited my ulcers and I hope the dressings are not going out of fashion, the ulcers can anytime.

Gil

#11 NorthStarHope

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Posted 29 May 2011 - 04:34 PM

Thank you plinksgirl for your reply, I am grateful for all the new friends I have made and all the help I have received in coping with my dear sister's illness, she is my North Star** when I lose hope she proves me wrong, when I give up, she doesn't give up, so for everyone out there who has been through these hard times the northstar shines for us!!!


Sincerely,
NorthStarHope**
:emoticons-yes: :emoticons-yes: :emoticons-group-hug:

northstarhope* :emoticons-i-care:  :thank-you: 


#12 debonair susie

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Posted 30 May 2011 - 12:31 PM

Aaaaahhhh, the love of a sister and you are well suited, NorthStarHope :happy-dance:

Now, please know that we miss hearing from you, when there are extended time. However, there are times when we like that 'no news is good news' and that you and Sis are doing relatively well :jump-for-joy:

Continue to take care of yourselves, NSH!
Special Hugs,

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#13 marsha

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Posted 01 June 2011 - 08:47 AM

I have an ulcer on my big toe that does what I call a circle rotation, meaning it comes just beneath the surface, hurts like the dickens, then starts to heal only to rotate right around again!! it never quite breaks through the skin although the skin does get super dry and flakes of the site, and my feet are terribly dry with huge cracking on the heels and sides of foot. Anywho my wound doctor told me of a cream, she said to use it twice a day on the heels and sides of my feet, not on the ulcer!! My feet actually look 100 times better as far as the dry cracking goes but she did tell me that when you have Raynaud's you must treat your feet and hands like GOLD!! I'm not sure if this will help any of you but I thought I would throw it out for ya..if anyone has dry, Raynaud's feet.