11 replies to this topic

[Lynnie]

Hi Everyone,
I am fed up! Ive got really hot throbbing feet,my big toe joints (near where you would have a bunion) are really painful to the touch and stiff, and I feel like I am walking on bone but on inspection my soles of my feet are still "fleshy" just hyper sensitive and sore.

My left wrist was swollen at the wrist joint and painful last week that has passed but has left a fleshy lump in its place..its so bizarre!

I have been really fatigued as well this past week or so, like I sleep but when I wake I do not feel rested, and I have a achy headache and every day tasks are a real effort to do.

I see my rheumatologist next week but have any of you out there had this kind of bother? if you have I would be grateful to hear how it worked out for you and what you did to get some relief.

You who know me know I am not one to "pity party" but its really getting to me a bit am afraid. I have limited/crest and on prednisolone and other meds that I could set up my own pharmacy!!

Look forward to hearing from you all.

Hugs,

Lynn

[Shelley Ensz]

Hi Lynnie,

I'm really sorry you're hurting. I hope your rheumatologist can get to the bottom of it. It sounds like you are in a rough spell. Just hang in there though because usually that means brighter days are around the corner. Sometimes its amazing how fast things can come -- and thankfully, go. Here are some warm hugs to tide you over until your symptoms kindly go --

[Joelf]

Oh, Lynn, I am sorry to hear that you're suffering so much with your feet; I know you were in a lot of discomfort with your hands and now your feet; it really is the pits! I do have painful arthritis in my foot near the big toe, but it doesn't sound as if it's as excruciating as yours and it wasn't caused by Sclero; a horse jumped on my foot and did the "hokey cokey" on it and it's never been the same since!

It's a good thing that you're seeing your rheumatologist next week and I do hope he can suggest something to make you feel better and less fatigued. In the meantime here is a to keep company with the one Shelley has given you.

[Amanda Thorpe]

Hello Lynn

These things seem to come and go with scleroderma, swellings, joint pain and worsening fatigue. I have just come out of a two week fatigue fest myself and have had an extra ache in my right foot for 2 months now, you'd think I'd see the doctor about it wouldn't you!

Take care.

[miocean]

Hello Lynn,
I'm sorry you are in so much pain and frustration. I had a painful bump on my big toe for years. I could only wear two pairs of shoes, a pair of sneakers and a pair of black flats that I wore so much the leather wore off! My physical therapist treated it with a cold laser for a long time and eventually the bump went down. I still have trouble with shoes, the least bit of pressure in that spot hurts so much. I love summer because I can wear sandals One thing I have noticed is the soles of my feet have become very sensitive. I used to be able to walk barefoot everywhere and now prefer something, whether it be slippers or sandals, even inside.

Hope things ease up soon,
miocean

[Shelley Ensz]

Lynnie, have you found out anything yet regarding your feet?

[Buttons]

Hi Lynnie,

I'm having same sort of issues at the moment but the fleshy part of my feet seems to have shrunk so when I' m walking I feel as if I'm walking on stones and is very uncomfortable. I did buy some cushion like things to place on them to give some protection, it has eased it but it's not gone a way. My general practitioner thinks it's to do with the Metatarsal bones and to wear the pads.

I do wear sensible shoes all the time but even while on holiday I found my feet painful while wearing my walking sandals because of stitching on the footbed so now I'm having to look for some which have a soft footbed but which is smooth.

Buttons

[Weasel]

Hi, and I'm sorry that you're in so much pain. I can relate to it , because I am just going through this with my feet.
I had a stress fracture in my right foot and when they x'ray'd my feet they also found out that I have severe arthritis in both of my great toe joints.This explains why they have been super painful and stiff.The jointspace is completely gone in both joints. My podiatrist says there is not alot I can do except for taking anti Inflammatories which I can't have because of kidney disease.The other options are surgery( insurance won't pay for it unless I am in excruciating pain......).The other suggestion was prescription orthotics which I am getting once the cast is off my right foot. I would see a podiatrist and see what he says.I don't know if the arthritis in my feet is related to auto immune disease or not. Good luck, I hope they can fix this one for you.

[Amanda Thorpe]

Foot pain is the bane of my life, it is ever present and has reduced me to...comfortable shoes...a modern tragedy. Seriously though it is quite literally a pain and I have yet to successfully treat the various types of pain being mechanical pain, nerve pain, rheumatic pain, skin pain and ulcer pain. Just when I get one to calm down another flares up ! It's never ending! Well at least it's only my feet that hurt so it could be worse!

Take care.

[Joelf]

Oh Amanda, the pain could be worse, but it could be a lot better too!!!

Lynn, have you been able to get any help from your rheumatologist yet?

[akchrist]

Could it be gout??

[mollie]

Hi Lynnie...so sorry you are having pain. I have been experiencing very similar symptoms except that I also seem to have ankle and tendon involvement as well. Very difficult to walk and don't seem to be getting any relief even though I take pain medication for my back pain on a daily basis. Hoping that you will find relief soon.

Best regards,
Mollie