Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Query on Medication


  • Please log in to reply
7 replies to this topic

#1 uknlv18

uknlv18

    Silver Member

  • Members
  • PipPipPipPip
  • 155 posts

Posted 22 May 2011 - 06:40 AM

Hi everyone,

I have been having a terrible time with my acid reflux of late, I was told to sleep propped up slightly and have just spent £60 on a wedge that I was hoping would help with that. Before that I used stackes of pillows that invariably squirted out from under me at night! The wedge is nice, as it is longer than most wedges so that you tilt up from the waist and it is not just the neck. Trouble is it is causing terrible spasms in my neck and back do to the incline!

Now to the real question, I have been taking Lansoprazole for my acid reflux for probably 10 years now, and am on the highest dose. But it just isn't helping at all anymore; they tried me on Rabeprazole and it didn't help at all. I was wondering as many of you suffer from acid reflux, if you could tell me what you take for it, so when I go to my general practitioner tomorrow I can have some suggestions for medications to try? I am so tired of waking up with that terrible taste in your mouth or dry coughing all night.

Thanks in advance. :thank-you:

Jean

#2 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 22 May 2011 - 07:21 AM

Hi Jean,

I'm sorry to hear that you're having problems with acid reflux; I know it can become really unpleasant! :(

I've only occasionally suffered with acid reflux and I'm thinking that it's actually caused by the medications I take, not Sclero. I don't know if this applies in your case but I've included a link to medications that can aggravate the symptoms of GERD. I have taken Lansoprazole which helped, but I realise that my symptoms are much less than yours, so I haven't had to try anything else. I've included links for GERD treatments and reflux,heartburn and GERD treatments which I'm hoping might be helpful to you.

I know acid reflux is a problem for a lot of our members so I'm sure you will receive advice from others who have experienced this.

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 22 May 2011 - 09:11 AM

Hello Jean

What we eat and when we eat it can impact on reflux, have a look at reflux and diet as well as surgery options to prevent reflux altogether. Jeannie Mcclelland and Shelley Enze's husband Gene have both had the nissen fundoplication surgery and found it very successful.

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#4 lizzie

lizzie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 497 posts
  • Location: UK

Posted 22 May 2011 - 01:18 PM

Hi Jean, just to take up on a point Joelf made re some medications making reflux worse. I have Gerd and found it became much more of a problem when I started taking Nicardipine for Raynauds- I was waking up at night choking and coughing. I was then switched to another med for the Raynauds and have far less trouble- the Gerd is pretty well controlled by Pantoprazole.

#5 night owl

night owl

    Senior Bronze Member

  • Members
  • PipPipPip
  • 50 posts

Posted 22 May 2011 - 02:00 PM

Hi Jean

There are many medications for acid reflux it may be just the case of going down the list to see which one works. I have tried a few Omeprazole and simple Gaviscon are by favourites.

I find some things set it off like a glass of White or Rosa wine and pickles heavy in vinegar. I was told to prop the head of the bed up and use two to three pillows which sound more comfortable than the wedge.

Oh for a pickle at holiday.

Gil

#6 Lynnie

Lynnie

    Silver Member

  • Members
  • PipPipPipPip
  • 173 posts
  • Location:UK HULL EAST YORKSHIRE

Posted 27 May 2011 - 04:01 PM

Hi Jean

I take RANITIDINE 150MG TWICE A DAY and it works great for my GERD, the other types the "zoles" give me the runs ugh, but Ranitidine does me fine and worth a try.

hugs
Lynn

#7 JaneLesley

JaneLesley

    Bronze Member

  • Members
  • PipPip
  • 27 posts

Posted 01 June 2011 - 10:31 AM

Hi Jean

So sorry to hear of your problems.

I have no idea if this is of any help to you - I purchased an orthopedic pillow - it is an upside down 'v' shape. I put it on top of my usual three pillows and find I can get very comfortable without any neck problems and am having much better night sleeps that I have had in years. I have had no coughing since I started using this pillow and although I do still get bouts of reflux / hiatus pain - I do think things have improved quite dramatically.

The pillows can be purchased quite cheaply and even have bespoke pillowcases.

Wishing you well (and a good nights sleep)

Jane

#8 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 03 June 2011 - 11:13 AM

What a great thing for you to share, Jane... :emoticons-thankyou:

That's an issue that also plagues me and hubby, so I'll have to check into that for each of us! ;)
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)